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Angiebloom's avatar
6 years ago

Grade 3 Triple Negative

hi!! 
I just wanted to say my first hello and what an amazing place this is to come for loads of wonderful advice and info!! I was diagnosed on 6th Nov with Grade 3 Triple Negative IDC and am having a double mastectomy with reconstruction next wed 4th Dec. I’m a mum of 3 (19,16 & 7) and had only just turned 40 when I experienced a sharp pain in my breast and went to have it checked. No staging as of yet, I had one swollen lymph node biopsied which came back clear and CT was clear apart from pre existing liver hemangiomas (just something else to add to the mix) but still waiting on bone scan results.........if that isn’t the most anxiety endusing thing on the planet I don’t know what is, Ive been hyper sensitive to every ache and pain I get!! Chemo is planned for the new year. Anxious but eager to get into it, all the waiting is the worst 😣
  • @Angiebloom
    Welcome to the forum, I know you will find it a positive and caring place as I have. 
    Over the last year, in the midst of lots of anxious waiting and fear of the unknown, it was the only place where I felt truly understood.
    I asked lots of silly questions and got tons of support and advice from everyone.  Don't hesitate to do the same, we all get it :)
    I am just at the end of my treatment and yes it has been an absolute rollercoaster but once you get started you will feel that you are at least moving forward. I will be thinking of you next Wednesday <3

    @kmakm, we share the same diagnosis date, so next Wednesday Dec 4th will mark my one year anniversary.  Fortunately it is also a friends birthday, so I plan to celebrate and breathe out!

  • @Angiebloom Welcome aboard for the wildest ride ever!! Glad you have found us & that this forum has helped you already. All questions will be answered & everything you will experience, would have been by many of us here. THE best place for first hand advice & support.
    Although waiting for results is always going to be one of the hardest things to wait out, your surgery/treatment will go ahead quite quickly & it is good that your plan is laid out for you. 
    Focus on the now & not what may be as things change all the time so no use worrying over things that may not happen. Stress fuels cancer so try to stay as calm & positive as you can. I hope your family & friends are surrounding you with love & support. Get as much help as you can & let those around you help out with school drop offs/meals etc. People love to help. Get some frozen meals in the freezer ready too.
    I found a McGrath nurse great help to answer all your questions. I found her on their website & just emailed her. We speak for ages on the phone & they also counsel your family if needed. If your kids need special guidance, I know that CanTeen Australia offer great services for kids who are effected by cancer in their family.
    I will be thinking of you next Wednesday for your op & the day a BIG box will be ticked off. It is the day before I was diagnosed 2 years ago. Wishing you prayers, love & strength. xx 
  • @Angiebloom Welcome to the forum. I'm sorry that you're here, but now that you are I hope you find it as warm and supportive place as I have.

    The waiting is hands down the absolute pits. Keep yourself as distracted as possible between now and then. TV, friends, exercise, hobbies, meditation, go for it. You have to feel the pain but there's time enough for that process later, when you know where you are. And once you have a treatment plan and get underway with it, you'll feel better.

    Accept all the help you're offered (I found that very hard, especially at the start), be kind to yourself, and stay away from Dr Google...

    The day you're having your op is the second anniversary of my diagnosis. As a fellow BMXer, I'll keep you in my thoughts. Big hug, K xox
  • Hi @Angiebloom and welcome to the club none of us ever wanted to join. We are sorry you had to find us, but we are glad you have found us.
     It's not the news anyone wants to hear. We have all heard it. You may have noticed I'm from the heterogametic sex. My wife was diagnosed with tnbc some months ago.
     Please know that you are loved, and please allow your loved ones to help you over the next couple of years. When they offer you help they really mean it, so take up their offers.
     There are dark days ahead and in some ways the waiting is the hardest part. Please don't ever lose hope. You have every chance of beating this thing. Look after yourself and don't hesitate to lean on the great members of this community. 
     Sending you hope and virtual Roses
     
  • Hi @Angiebloom
    I just wanted to say welcome to this forum where we all understand the fear, the highs and lows,and of course 'the waiting'!
    We each have our own story and journey, but we share the emotions that go with it all. I wish you all the very best for your op on the 4 December.
    Following your pathology you will have a treatment plan, which in a weird way allows you a degree of control back on your life. Keep letting us know how you are going, and if you have any questions.
    We all care, even though we don't know each other personally!
    Best wishes, xx