Newly Diagnosed with TNBC
Hi everyone my name is Nique. I am 54yrs old and I was recently diagnosed with TNBC in December 2023 and I have had my first chemo and Immunotherapy on Friday Jan 12th. It is taking me a long time to process this information and sometimes I think it is surreal. My family has been really supportive throughout all of this especially my husband and one of my sister who herself went through her own journey with Breast Cancer (She had the Hormone positive). It is hard at the moment to say if the side effects are bad or not as I recently had COVID. Apart from the body ache (Which could be from COVID), everything taste metallic in my mouth and I do feel tired. I made the decision to cut my hair really short and then my husband will shave it off once it starts falling. For me cutting off my hair was a reality that this is real but it is still hard to digest at times. I am still working full time as I work remotely for an interstate company, but I Know that eventually I will need to decide whether to stay fulltime or part-time. My Chemo is every Thursday from my next session and I was lucky to have my sister there with me during my first one, unfortunately she is here on holidays and will be returning back to Dubai. I honestly don't know what I would have doe if she wasn't with me. She was there in the doctors office when I got the news and as I was in shock she took over and asked all the questions. Her and my husband have been with me to all my appointments, apart from being my support person she was also my husband's support person and for my kids. I honestly don't know how I am going to go through Chemo without her being there. Thank you for listening to me.
Two different types of breast cancer
In 2019 I was diagnosed with Triple negative breast cancer in the left breast and had a masectomy and chemo. In 2022 I was diagnosed with hormonal breast cancer in the right breast and had the second masectomy. I have been on Tomoxifin for 5 months but stopped taking it after speaking with my Oncologist. I had so many side effects. I am post menopausal i would love to hear from others who have had the two types of cancer. Also from others who encountered Tomoxifin side effects such as nausea, dizziness and depression.
Grade 3 Triple Negative
hi!! I just wanted to say my first hello and what an amazing place this is to come for loads of wonderful advice and info!! I was diagnosed on 6th Nov with Grade 3 Triple Negative IDC and am having a double mastectomy with reconstruction next wed 4th Dec. I’m a mum of 3 (19,16 & 7) and had only just turned 40 when I experienced a sharp pain in my breast and went to have it checked. No staging as of yet, I had one swollen lymph node biopsied which came back clear and CT was clear apart from pre existing liver hemangiomas (just something else to add to the mix) but still waiting on bone scan results.........if that isn’t the most anxiety endusing thing on the planet I don’t know what is, Ive been hyper sensitive to every ache and pain I get!! Chemo is planned for the new year. Anxious but eager to get into it, all the waiting is the worst 😣So much to take in....
I was diagnosed on Tuesday 3rd December with Grade 3 Triple negative invasive ductal carcinoma (1cm). Activated lymph but no cancer on fine needle (so far). I am 49. Lump was not palpable and picked up on screening. Meeting with surgeon on Tuesday and likely surgery on Wednesday. Trying to work out if there is any reason NOT to opt for double mastectomy - whatever the recommendation? Feel there will just be a ticking time bomb if not. Likely to be offered wide lumpectomy but although only grappling with this for less than a week, feel mastectomy (ideally with reconstruction as soon as practicable) will give much greater long term peace of mind and help prevent reoccurrence. Would love to hear from anyone who has contemplated or opted for this path.
TNBC & question re chemo
Hi, I was recently diagnosed with tnbc on 7th march. I’ve since had a lumpectomy & a few lymph nodes removed for biopsy. My tnbc was 12 mm, the lymph nodes clear but I think the margin behind the tumour was only .6 of a mm. At my post surgery appointment, it was suggested that I may not need chemo & the doctor thought that I may need further surgery to test more tissue or go straight to radiation. His decision isn’t final as the medical team will be discussing my case late next week. I’m a little confused as I thought that chemo was pretty much mandatory for tnbc. Has anyone ever heard or had any experience of tnbc not being treated with chemo?
Research Trials
I am new to the community - Hi. I have a question for people who are undergoing dose dense AC and Taxol for triple Negative breast cancer, in relation to how much exercise or movement they are doing. Background: I was diagnosed in May and have a treatment plan that is slightly altered - I have chemo, then surgery and then radiation. I have a triple neg invasive carcinoma ( it was 1 cm at diagnosis now 6 mm and shrinking (shrink MOFO SHRINK)) and a 3 cm area of DCIS in one boob. I was invited to take part in an exercise research trial. I am pre menopausal and I was already moderately fit + active. This trial has required me to walk 8 k steps per day and do weights 3 x a week during chemo. I am enjoying the golden elixir (chemo) of dose dense AC + Taxol for 20 weeks. Halfway there at 10 weeks done. The research trial is looking to establish if i can maintain muscle mass, invoke the sympathetic nervous system, impact of my bone density and what impact exercise has on treatment and side effects of Chemo. I was required to lift weights and do a heavy workout post chemo (AC). QUESTION/Discussion: I was wondering how other people on the same chemo treatment are doing in terms of moving and exercising ? Are other people able to maintain prior exercise regimes ? Have you made it part of your habit. If there was a trainer or an exercise professional would you be interested in working out post chemo (directly after infusion). I can’t swim anymore as I am an ocean swimmer and with a chest infection and neutropenia and low haemoglobin advice from the doctor was hell no. So i am left with pilates, weights and walking.
Overwhelmed!
Hi my name is Nat I am 42 years old and this is my first post....I have been reading others posts and collecting my thoughts for a few days before I decided to start my blog...so here goes! I am newly diagnosed 12/02/15 and have an Invasive Ductal Carcinonma Grade 3 and am Triple Negative. Wow cant believe I got that out! I'm feeling very overwhelmed at the moment with a million thoughts going through my head and questions to ask, not to mention wanting to talk anyone who can give me advice or is going through what I am. I have a booking for a Staging CT and Bone Scan on Monday and then see the Onologist to start Chemo before surgery (around 6 months chemo so I have been told) and then am having a double mastectomy with node clearance. There it is my first post....phew I feel better that is out and done!
