Forum Discussion
LucyLou_71
6 years agoMember
Feeling overwhelmed and anxious
hi everyone
i have been diagnosed with breast cancer with HER2+ , stage 2a. I saw the oncologist for the first time yesterday and I will be having the following- FEC x 3 cycles, 3 weekly then TH x 4 cycles, 3 weekly, followed by Herceptin only for 13 cycles, 3 weekly.
I am considering a port as I had such a horrible time with needles recently when I went back into hospital with an infection in my breast. The thought of a cannula every 3 weeks is making me feel sick.
The oncologist thinks I should give the cannula a go the first time and I can have a port or picc if I want for the following treatments. I only have one good arm they can use due to an auxiliary clearance.
He also said that I could have the 13 cycles of Herceptin injected straight into my leg rather than IV. Has anyone had experience of this?
thanks so much.
i have been diagnosed with breast cancer with HER2+ , stage 2a. I saw the oncologist for the first time yesterday and I will be having the following- FEC x 3 cycles, 3 weekly then TH x 4 cycles, 3 weekly, followed by Herceptin only for 13 cycles, 3 weekly.
I am considering a port as I had such a horrible time with needles recently when I went back into hospital with an infection in my breast. The thought of a cannula every 3 weeks is making me feel sick.
The oncologist thinks I should give the cannula a go the first time and I can have a port or picc if I want for the following treatments. I only have one good arm they can use due to an auxiliary clearance.
He also said that I could have the 13 cycles of Herceptin injected straight into my leg rather than IV. Has anyone had experience of this?
thanks so much.
22 Replies
- Patti_JMember@MattyBoy. I resisted getting a port through 15 lots of Paclitaxel. I only agreed to having one inserted when I knew that I could have it done locally, by a surgeon who had operated on me previously.
It is the best thing that I could have done.
I have my weekly bloods via my port. I had the infusion for my latest CT scan through my port. I will be on I.V. chemo. indefinitely, so my poor arm is spared.
I have not had any issues with the port. It certainly does not hurt like my arm used to. - MattyBoyMemberI had port put in last week, put in under general anesthetic by my Surgeon. Was too swollen to use this chemo (5 days after insertion), hopefully will be all good for weekly Taxol starting Monday week. Looking all of the pretty bruised colours in the area atm. I was also apprehensive on getting it put in, but veins were collapsing and can only use one arm so not many options. I can feel it in place, and its taking some mind over matter atm.
- MahaicaMemberI have a port and no problems so far I am having Taxol at the moment.
- MattyBoyMemberHi ladies, good to read all of your comments. I too have been told I need a port and was feeling anxious till I read this feed. Feel better now, thanks 👍
- LucyLou_71MemberHi @kamada
thanks for your sharing - I have my Port booked to be put in on Thursday with my first chemo the following Monday. I feel better for having made the decision to have the Port. Good luck with the rest of your treatment. Xx - kamadaMemberHi @LucyLou_71! Your treatment schedule is similar to mine. My diagnosis was Gr 3 Stage 1a E+ her2+. I had lumpectomy, SN biopsy and my MO wanted me to have a port put in before chemo started because he said with my schedule they would “run out of veins”. I am up for 3x3 weekly FEC then 9 x weekly Taxol with herceptin (17 x 3 weekly) starting the same time. Will also have 6 weeks of radiation and to top it off hormone therapy. He hasn’t mentioned using injections for herceptin though Anyway I had the port put in the day before chemo started (had a little break booked before BC madness started and wasn’t going to miss it!) and it was fine just a little sore for a few days but no big deal really. I am happy I did it because my veins have not done too well with blood tests lately for the first time ever. I had first FEC 12 days ago and am doing well though dreading losing my hair in the next week. A little aside - the MO wrote my treatment as FEC-T and my son thinks it is so appropriate to say it with a strong Irish accent. I have to agree. 😂 Hope you don’t find the chemo too arduous! Good luck xx
- AfraserMemberWelcome to scanxiety! It can be tough. Once you know something can go wrong, it’s easy to start thinking everything will go wrong. But if you can, remember that living in terror of what might be is no way to live. Living with what is can be hard but at least it’s real. Dr Google fuels fear of what might be. Talk to your medical team, they too work with what’s real. And don’t forget to celebrate the things that turn out well. Best wishes.
- iserbrownMemberAll good!
As we sometimes say keep away from Dr Google
Take care - After two weeks with a sore back, my better half booked a PET scan, just for peace of mind.
Yes, chemo sucks and shes been in bed 14 hours a day for months, which explains a bit of backache. But you know, peace of mind.
And she mentioned discomfort in her ovaries.
The scan was early in the week. The MO called a day later to say that the back was all clear, bit there was something on an ovary that we should "keep an eye on".
I heard all this second hand. And I stopped breathing. 60 hours is a long time to hold your breath. I looked up articles.... Sore ovaries? How does that work when you're not on any hormone based drugs? I ask dr google. I get more and more afraid the more I read.
I have never been as terrified as I have been the last two days. Too scared to cry. Too scared to say anything. Too scared to tell my mum and dad. I'm a deer in the headlights. My thoughts have been nightmares. I have been talking to people at meetings and making decisions at work on autopilot. I'm a freaking zombie. Im walking dead in the land of the living. I'm so afraid.
So I went along today to the weekly appointment to see the MO. All is fine. Its just an old scar that totally doesnt pose any issue, it has been present on all the scans all along. It's nothing. Not even a thing. And sore ovaries are normal when you're on all sorts of drugs.
Today I breathed. - primekMemberYou might find this helpful.
https://www.bcna.org.au/news/2016/04/new-form-of-herceptin-available-on-the-pbs/