Forum Discussion

unicorn3's avatar
unicorn3
Member
6 months ago

Early stage lymphoedema

Hi everyone. So I’ve just come back from one of my lymphoedema clinic appointments and they said my sozo measures and arm measurements were a bit high. I’ve been given some extra exercises and self lymph draining massage instructions to do but I was just wondering for anyone who has had reversed it fro this stage had any extra tips that I can do to maximise my chances of turning this around
ive got another appointment in 5 weeks and if it hasn’t changed they want to look at compression which I’m keen to avoid with the weather warming up 
I’m a busy mum of three and work from home on our own business too so there’s no time for gyms or yoga or anything like that, just looking for extra things I can incorporate into my already packed days.  
Appreciate any tips and tricks that you may have 
just for background I’ve had left side mastectomy, full auxiliary clearance, 3 weeks radiation and 16 rounds of chemotherapy all completed. Still doing immunotherapy and taking anastrozole
Thanks and have a great day 🙂

exercise
lymphoedema
mastectomy
  • iserbrown's avatar
    iserbrown
    Member
    6 months ago
    @unicorn3
    Natural feelings of frustration of what you've been through!
    In time acceptance comes and you can look forward to each day knowing you've beat the mongrel called BC!
    Take care
  • unicorn3's avatar
    unicorn3
    Member
    6 months ago
    Thankyou @iserbrown. I look forward to that day and many more years ahead 
  • Coastiejas's avatar
    Coastiejas
    Member
    6 months ago
    Hi @unicorn3
    I know what you mean about how unfair this all is! I'm 50 and often get cranky about everything that we have gone through when I see others who are blissfully unaware.... I  think we are entitled to feel how ever we want after all of that! But as you say we have to pick ourselves up and dust ourselves off and be really thankful for the amazing treatment that's out there and think of all the other warrior women who have been through this too and will go through it after us! I see it as a gift as now, I have a new perspective and nothing phases me when I compare it to what I have been through with treatment. I have stayed positive right through the whole process.... and tried to look at the positive side... after all a frown turned upside down is a smile!
    I hope you have a great week ahead too!