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Isaidso's avatar
Isaidso
Member
9 years ago

Decision time - lumpectomy or masectomy?

It's been quite a interesting three weeks or so for me. An inflamed breast, biopsy, inconclusive results, surgical biopsy and today a diagnosis of high grade intaductal carcinoma with prominent atropine change. No family history of breast cancer. Throughout this time, for whatever reason, I anticipated that it would be cancer and decided on a mastectomy. At the appointment today I was given either lumpectomy and radiotherapy or mastectomy as options? I'm not sure what to think or feel? I actually expected an invasive diagnosis (don't ask me why?) so didn't anticipate that I'd have a choice. My next appointment and decision time is 12 January so I have some time...I'm thankful for this forum to speak frankly about it all. I have three children 26,25 and 21 and have spoken to them about the positive prognosis. Cheers Terrie 
lumpectomy
mastectomy

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  • Share's avatar
    Share
    Member
    9 years ago

    Hi @isaidso, so sorry for your diagnosis - interesting that you mentally had "prepared" for the worst but it sill does not prepare you for a bc diagnosis.

    Regardless, welcome to the forum and you have seen so far from the responses that there are so many choices, options etc

    I too had no family history (at the time) and was advised to have a lumpectomy as the needle biopsy came back benign but my surgeon did not like the look on the mammogram or the feel of it.

    Following the lumpectomy it was found to be malignant, so I had to have a partial mastectomy and axillary node clearance - this was back in 2003 and sentinel node biopsy was still in test mode.

    The pathology came back  - 18mm lump with estrogen-positive tumour. As there were not clear margins, I had to go back in for surgery a third time to take more breast tissue.

    At the time, I did ask my surgeon if I would be better off with having a mastectomy. He told me I was young - 37 - and the chances of recurrence after having chemo and then radiotherapy is very small. If only I had been more forthright.

    In 2006, my Mum was diagnosed with breast cancer (who would have thought !).

    Four years later in 2007, another lump was found in the same breast - after yearly check-ups and on tamoxifen - a mastectomy was done.

    Following years of same check-ups and adjuvant therapy (tamoxifen, arimedex, femara) I now have secondary breast cancer in my bones.

    In hindsight, sometimes fear has a huge bearing on our decisions. I know that we sometimes have self-doubt regarding some of our decisions but @Afraser "mangled breasts, lop-sided boobs" and @primek "no nipples"  really are not helpful comments. I for one would opt for either of these in a flash if I was spared secondary breast cancer.    

    Armed with knowledge and your intuition, I am sure you will make the right decision for you Terri.

    My very best wishes to you in what ever decision you go with.

    Regards

    Sheryl xx

  • iserbrown's avatar
    iserbrown
    Member
    9 years ago
    Hi there - having to make a choice is very daunting.  Be guided by your medical team and your own instincts.  I didn't have a choice; mastectomy was necessary and I don't regret same.  It is also about the bigger picture in how you will cope without your breast or partial removal.  For me I was happy to have it removed and not too fussed about reconstruction but the surgeon pointed out I was a prime candidate for immediate reconstruction.  It is very personal and I hope you enjoy reading all our experiences as we are all willing you into a decision that you are comfortable with.
    If you're totally cofuddled perhaps speak with a Counsellor as well as.
    Take care
  • Afraser's avatar
    Afraser
    Member
    9 years ago
    As everyone agrees, lots of variation and choices to be made. I was however interested in Christina 55's comment about larger breasted women. I was a 16E. In spite of losing a breast, I healed quickly, no
    pain and had no problems with arm mobility virtually immediately. My choice of surgeon was pretty well accidental, but I lucked on to a very good one. That's something that's worth checking if you have the time. I did get some background on the oncologist my surgeon referred me to, and that was helpful. The relationship with both, but perhaps particularly your oncologist, will be important so good to get someone you can talk to and whose approach you feel comfortable with, if possible.
  • onemargie's avatar
    onemargie
    Member
    9 years ago
    Hi there terrie like all the girls above its a really personal choice I had L side stage 2a triple neg with no lymph node involvement may last year and could of had either lumpectomy  with radiation and chemo or mastectomy and chemo. I only had little titties so decided on the mastectomy as I thought going through the chemo is enough didn't want the radiation as well. have also taken the Right boob off nov 28 as a preventative. No family history for me either and I'm 44. Read about quite a few women getting a new cancer in their other boob 3 5 or 10 years later and just didn't want to deal with that. Just piece of mind for me. Still no guarantees of course of recurrence somewhere else, but thankfully my risk is low but this decision made me feel better and ive also chosen not to have the reconstruction as I simply don't want any more surgery. I'm totally comfortable with this decision and don't feel less like a woman because of it either. But it is a very personal choice and one you need to be comfortable with. Best of luck whatever decision you make.  Margie :)
  • melclarity's avatar
    melclarity
    Member
    9 years ago
    @Isaidso Goodness well it is difficult as everyone certainly is different, so here's my experience. I got DCIS 2011 had lumpectomy, radiation and tamoxifen for 4yrs. It came back inspite of all that in the scar as IDC same as you Stage 2, Grade 3 aggressive, they did another major lumpectomy as my surgeon said it was as good as or equivalent to the Mastectomy. I then had Chemo and now on Arimidex. BUT....because it was a recurrence and my Mum is the only family history I have of BC they now want a Mastectomy, that I am having with Diep flap recon in the coming months, Im am ER+ only and negative to BRCA1&2 Gene. Having said all of this....My Mum had a Mastectomy with no treatment and survived 26yrs and passed from an unrelated Cancer. All you can do is follow your instinct, I was happy with the path I chose in light of how things presented, bit by bit, however now not willing to chance another recurrence so Mastectomy it is, but only one side. Its very personal. Hugs Melinda xo
  • Christina_55's avatar
    Christina_55
    Member
    9 years ago

    Hi Terrie,  I have an Invasive Ductal Carcinoma and DCIS in the same right breast.  Also with no cancer in my family. I was informed that they prefer not to do mastectomies on larger breast women.  I'm a 14D.  So had a lumpectomy, no clear margins, then had a re-excision.  I had early breast cancers.   Started chemo then my next appointment with Surgeon was told I still had no clear margins. (which was a shock after going through everything),  So had to wait until after chemo finished. I have decided to have a bi-lateral mastectomy - no reconstruction.   I could have had another re-excision but after two goes,  I decided to have them removed.   As Rowdy says -- ask questions... My operation is on the 18th January and I did not need to have radiation because I am having the mastectomy..

    Hope everything goes well.   Christina

  • Janet_Plummer's avatar
    Janet_Plummer
    Member
    9 years ago
    I had a small/medium-sized, aggressive, estrogen-positive tumour diagnosed nearly 5 years ago now. I was offered a choice too and I was quite shocked to be honest as I'd always assumed mastectomies were a last resort. My oncologist said that although some women found more peace of mind in having a mastectomy it would not make any difference to my chances of a future recurrence. In a way that made no sense. How can you have more peace of mind when the outcome with a mastectomy was no better? So I opted for the lumpectomy. It was a no-brainer as far as I was concerned. Why undergo such disfiguring surgery if you can choose something less extreme? I gotta say that lopping off boobs unnecessarily seems a little barbaric to me. 

    But everyone's situation is different. I don't mean to imply any criticism of people choosing this option and of course in many cases mastectomies are necessary.  I would not hesitate to have it  done if it were necessary to save my life or even if it would have reduced my chances of recurrence or metastasis. The thing is though that you could have your boob cut off or even both boobs and the cancer can still come back somewhere else in your body. As others have said, there are no guarantees whatever you decide. 

    I am happy with my decision. I try to take care of my health a little more than I used to - more exercise, better diet, less alcohol - and so far so good. I have a small scar on the side of my affected breast which has faded over time, it is slightly smaller than the other one and a little firmer thanks to the radiation. But overall I feel I still look reasonably normal. Good luck with your decision. I hope it all goes as well as possible for you. It's a tough time you're going through but you can get through it and back to a normal life. 
  • rowdy's avatar
    rowdy
    Member
    9 years ago
    Hi and welcome to the site it can be such a hard decision. I had extensive dcis and had 2 lumpectomies and couldn't get clear margins. In the end I had a mastectomy with immediate reconstruction( tramflap). It will be 3 years this Feb lt feels like yesterday The best advice is ask questions, no question is dumb when it is your body
  • Karenhappyquilt's avatar
    Karenhappyquilt
    Member
    9 years ago
    Sorry for your bad news.  

    I had a lumpectomy.  I have a T shaped scar on my breast.  It was quite red and raised but is improving now.  I had one night in Hospital for the operation with no drain.  I had morphine for the pain initially but after a few hours stopped that because of nausea.  Panadol was sufficient after a few hours.  I was surprised how little pain I had.  But no operation is pleasant. 

    After radiation the breast which had cancer is noticeably smaller than the unaffected breast.  However with a bra on it's not so noticeable.  I also have some beast lymphedema.  

    I suspect it's a lot easier having a smaller breast than no breast and having to wear a prosthesis.  Less confronting.  

    However, if a mastectomy means no radiation, that would be good too. I found radiation quite tiring.  Not as bad as chemotherapy but still unpleasant once my skin showed the effects of the radiation.  And radiation can cause Lympodema.

    its a tough choice because there are advantages to both approaches.   Good luck with it and your treatment.  Karen 
  • Jess_BCNA's avatar
    Jess_BCNA
    Member
    9 years ago
    Hi Isaidso, I just wanted to also jump in to welcome you to the Online Network, and to let you know that if you need any help online or accessing any additional support and or information, please just let me know.