Hi, lovely ladiesis update from me I done my pet scan and have good results and I got a call from my day oncologist today and they already set my treatment dates.Starting next week with paclitaxel weekly for 12 around and carboplatin. Pertuzumab,trastuzumab three weekly so 4 round Is there anything I have to bring during the chemo?And do any of you have or had any similar treatment like mine ? I’m her2 positive Any tips or hacks for the chemo side effect?I’m very nervous and have no idea of what to expect so any guidance is appreciated

Hi SusieI did the 12 weeks first also which they also thought would be good for my stage3 her2. I had a pet scan around 10 weeks and all the cancer was gone in the scan. I did continue to go out and take the kids to school throughout all my chemo when I felt up to it, lots of hand sanitiser and getting to the shops early when it was quiet, I didn’t get sick once. I did get diarrhoea too which I just used Imodium for and small bland mealsHaving it every week was hard but I soon got into a routine and it was manageable I work from home so I continued to do that with the odd lunchtime nap here and there

Unfortunately it’s hard to tell how you will react to chemo until you start - but the first couple of weeks will usually establish a pattern, which can help you plan a bit. Not everyone gets bad side effects so fingers crossed. Paclitaxel can trigger peripheralneuropathy so keep your oncologist advised of any tingling or pins and needles in hands and feet. Some day oncology centres offer ice treatment to combat this side effect. Best wishes for your treatment.

I had all the same chemo and others as you except the carboplatin. I had 12 weeks paclictaxel, 4 rounds of ac chemo I forget the actual names and also the herceptin/perjeta combo of which I have two more to go. I’m also her2Theres a thread on here struggling through chemo which has a few of us who have completed recently and has lots of infoI had very little trouble with the palcitaxel and herceptin/perjeta but the ac knocked me around a bit not nauseous but just generally tired and not feeling great. Everyone reacts differently so until you start you really won’t knowmy chemo was in a private hospital and everything was provided including food if I felt like it, which I often didn’t but you would need to check with your individual centre to see what’s availableHappy to answer any questions you may have at any timebest of luck

Hi @susie55 I had a slightly different chemo regimen of TCHP for Triple Positive, but it included the Trastuzumab and Pertuzumab. They gave me diarrhea which is a known side effect, so I recommend starting on Metamucil now (with your oncologist's blessing) and having Gastro Stop on hand just in case.Make sure you still drink water and eat bananas, white bread, rice etc if you do get diarrhea.All the best and let us know how you get on.

Hi @susie55 I had the AC followed by the paclitaxol and Tratstuzumab and Pertuzumab. I had the opposite to @Suki so perhaps wait until you have your first treatment so that you have a better idea of what you are dealing with. We are all so different with our reactions/side effects. Take along something to keep yourself occupied as it can get boring. If you take a book, make sure it isn't too involved as you may not be able to concentrate on it. I always took my crossword and ipad games. Some people prefer to listen to music and sleep. Make treatment time about you and do what you want.

Chemo tips / hacks? | BCNA Online Network

Suki
Member
6 months ago
Hi @susie55

I had a slightly different chemo regimen of TCHP for Triple Positive, but it included the Trastuzumab and Pertuzumab. They gave me diarrhea which is a known side effect, so I recommend starting on Metamucil now (with your oncologist's blessing) and having Gastro Stop on hand just in case.

Make sure you still drink water and eat bananas, white bread, rice etc if you do get diarrhea.

All the best and let us know how you get on.
unicorn3
Member
6 months ago
I had all the same chemo and others as you except the carboplatin. I had 12 weeks paclictaxel, 4 rounds of ac chemo I forget the actual names and also the herceptin/perjeta combo of which I have two more to go. I’m also her2
Theres a thread on here struggling through chemo which has a few of us who have completed recently and has lots of info
I had very little trouble with the palcitaxel and herceptin/perjeta but the ac knocked me around a bit not nauseous but just generally tired and not feeling great. Everyone reacts differently so until you start you really won’t know
my chemo was in a private hospital and everything was provided including food if I felt like it, which I often didn’t but you would need to check with your individual centre to see what’s available
Happy to answer any questions you may have at any time
best of luck
Afraser
Member
6 months ago
Unfortunately it’s hard to tell how you will react to chemo until you start - but the first couple of weeks will usually establish a pattern, which can help you plan a bit. Not everyone gets bad side effects so fingers crossed. Paclitaxel can trigger peripheral
neuropathy so keep your oncologist advised of any tingling or pins and needles in hands and feet. Some day oncology centres offer ice treatment to combat this side effect. Best wishes for your treatment.

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