Forum Discussion

Bowie's avatar
Bowie
Member
9 years ago

Back Again ..so much fear

Well hi to everyone lm back again ..As my first post l had the lumpectomies one in each breast ..My results came as a shock ..l have to have a double mastectomy now ..as they couldn't get it all plus has gone into my lymph nodes ..Have to have bone and body scan on Monday ..l am devastated my world is spinning lm so scared l can't do anything ..l can not have reconstruction due to my R A ..l don't now how lm going to survive .

18 Replies

  • I have been following posts on the american  bc sites
    If you have a positive result for the ct scan which show metastices to other sites in the body ..sometimes mastectomy is not done ..so please get another opinion
    I know this is a crazy few days till you know

  • Hi bright space ..lm not sure of the hormone status ..lm sorry but they tell me stuff and l only process some of it ..
  • This is difficult to answer
    Not always
    Initial Breast cancer
    If you have a positive lymph node involvement the Medical oncologist will use the result along with the hormone her status of the bc type to plan the type of therapy you need
    ie sometime chemo only /sometimes both chemo and radiation

    What hormone staus were your results

    would be better if you left further questions till after you know the CT result 

  • Hi Bowie,
    So sorry to hear your diagnosis.  You will survive! As fairydust says, "one day at a time".  I had a double mastectomy, no reconstruction last Aug and I feel great now.  Also had spread to the nodes on my left, but thankfully no sign of spread beyond that.  
    Cancer has no logic, just work with your team for the best outcome.  We're here when you need to talk!

  • My surgeon said there is a 90 percent chance it has not gone in to other parts but l am just not understanding that it has just gone from ..lumpectomy to this ..l live on my own ..lm ok sometimes and then other times l am out of control with so much fear 
  • Does getting into the lymph nodes mean it has spread to other parts 
  • Big huggs Bowie ..lots of support to follow from bcna and this wonderful caring sharing community.
    For me i chose to  have a mastectomy with no recon.and recovery was  excellent
    I hope that you have a family member or friend with you when you have the scans. 
    A possible metastatic diagnosis is so difficult to get your head around so tthe next few days keep super busy to stop the thoughts...i did lots of gardening and cleaning! Loud music too.
    You are a strong resilient person .....lots of big deep breaths ..be kind to yourself
    All the best for next week 

  • One day at a time. Thats how to survive. One step at a time. Coming to terms with what has to be is hard. It is the only way forward. If you have support great. If you do not have support then the health team ,surgeon ,breast care nurses etc will be with you every step of the way.I think this disease is so difficult to understand.You have done nothing to deserve this it just is..I know you have a hard road ahead. You will make it your way. I found concentrating on packing my bag for hospital,clearing fridge . Stocking the pantry and freezer helped knowing I would be out of action. My husband did a large shop with a list. Its tough .MY cancer also went into the lymph nodes. .A year of treatment means I am now cancer free. I look forward to reading your post many months down the track. Time heals and you begin a new normal.