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Alola's avatar
Alola
Member
8 years ago

Anyone not taking chemo ?

I was diagnose with breast cancer on my left breast and went for operation on 30 March, and one of the 3 sentinel notes taken has cancer. So I went  for the second operation to take more the lymph node, and the result is clear (4 lymph notes), 
I am diagnosed with : Lobular carcinoma grade2, stage 2,  12 mm cancer, ER3+ 90%, PR2+ 2%, Her2-, Ki 67/MK167 20%

My oncologist said I have option to go OR skip the chemo for my treatment. To determine it, I took the endopredict test.
If the test is low risk  (of distant cancer"'s recurrence)  I don"t need Chemo but only doing radiotherapy and taking hormone tablet for 6 years.

I am waiting for the result, and nervous. Whether it is safe for not taking Chemo if the endopredict test is "low risk"??
I have discussed it with my surgeon and she said if it is low risk, the chemo will not be beneficial to me.
I am confuse and nervous ( make me depressed and sad),  should I  take chemo or not , considering its side effects
Which direction should i go, in order I can make right decision and will not regret. 

Anyone has the same experience as mine? 


  • Hi @Alola  
    Mine was somewhat similar to you, I had ductal carcinoma grade 2, stage 2b,  40 mm IDC, ER3+ 95%, PR2+95%, Her2-, Ki 67 5%.   along with various dcis .  one node only affected.  So My Ki67 was a bit lower than yours hence, for you the extra test will help.  Like you I was a bit nervous Not to be given chemo as that's what we've all heard about for cancer treatment, but one of my team explained the ki67 indicator has only been around 5 or 6 years and shows whether or not you will respond to chemo as a treatment.  in some cases you hormone therapy is enough.   
    As primek said, IF chemo was deemed beneficial your team would encourage you.  remember treatments, both chemo and non chemo treatments have come a long way.
    Like Socoda, at this stage I feel very lucky I didn't have to have chemo. I can only imagine that 5 years ago I would have been given chemo for mine, but and am very glad for a test that could tell me in advance that it wasn't going to be beneficial for my type of cancer.
    your test results and your team will guide you to the best outcome.
    Aine

  • Thanks to Kath, Melinda and Cath for your supportive posts which help me to cool down and think
    a little bid clearly, even though I am still  nervous waiting for the result. 
     I will discuss with my oncologist again prior to my treatment, so i will have peace of mind.

     
  • Thanks @primek . Hi @Alola - Kath asked if I could share my experience with you and I certainly can. Last June I had a single skin and nipple sparing mastectomy which came back as Er+, Pr+, Her2-, Stage 2 Grade 1 cancer. I had four nodes removed all clear. When I went to my oncologist she told me I could have my breast tissue sent to America to see what my recurrence level might be. At that point in time they were classing my recurrence level as low. If it came back as high I would be having chemotherapy. I asked what would happen if it came back middle range and my oncologist told me she actually wasn't sure what would happen then but we would look at options if it occurred. So as they had already classed me as low chance of recurrence without the testing I decided to just not have the testing which meant no chemo. I also didn't have to have radiotherapy due to having had a full mastectomy. So I am currently on Tamoxifen for the next how every many years with no other treatment. I was a bit frightened at first as I thought that I was being left out of necessary treatment but it was explained to me that the chemo and radiotherapy would actually do more damage to my body. The hormone therapy is to starve any microscopic cancer cells so the cells can't grow. (Sometimes the hormone treatment doesn't work but its the best course of action). So I am quite happy to just be on my hormone therapy. I also consider myself very lucky not to have had chemo. Rest assured that your team of oncologist and radiotherapist are going to do their best for you and if they feel that chemo is not necessary for you it is because they truly believe that they are giving you the best course of treatment for your individual needs.   Big hugs to you. Xx Cath
  • You really have to be guided by your Specialists, as Kath said, they absolutely would tell you what the recommend. Your diagnosis is so important in determining whether or not you need to. I had a different diagnosis with IDC ER+ Stage 2 Grade 3 so very different. Hopefully some other ladies can jump in who have a similar diagnosis. Hugs Melinda xo
  • @socoda You may be able to share your experience with this lady.
  • Well all looks good so far and the predict test will be much more definitive of the benefits. If low then hormone suppression will be enough with regular screening.
     If the team really believed you should have chemo they would have urged you to do so. The decision though is yours. We all worry that we made the right choices. But you have done this next test so you will be making the most informed decision.

    Take care. Kath x