Anyone here taking Capecitebine/Xeloda?

Hi @Caz1,
I was on capecitibine for 33 months, whilst not a picnic it was doable, we are all individual and the side effects that I had, you may not, it will probably be a couple of cycles before anything happens and if it does your oncologist can always change your dose and or days, I was on the full strength dosage but on a 12 day on 9 day off treatment plan, my best advice is to moisturise your hands and feet as much as you can, avoid hot baths or showers, wear socks and just see what happens, there have been several of us on this regime and we have all reacted differently, its a very good drug which is why I was on it for nearly 3 years, good luck and more advice just gives a shout,also if you do get sore feet or hands, please notify your doctor straight away, dont wait,
good luck,
wendy55

Thanks Wendy. Did it affect your walking?

Hi@Cazl,
No,It didnt, my feet were sore, more dry and flaky than anything, but it did not stop me from going on holidays in our caravan, I did not do a lot of walking though, some ladies have had a worse expereince with feelings like having razor blades in their shoes, hopefully that wont happen to you, 
What dosage and treatment plan are you on,
wendy55

Thanks @wendy55  :)
Starting on Monday, dose 1000mg per day for two weeks to see how I cope, hopefully working up to 1500  after that.
Taking for 6 months. Near complete  response after neo adjuvant chemo,  radiation  and mastectomy (in that order)so this is insurance I believe. Im in Melbourne,so scary time to start but onco doesn’t 
to wait any more.  :| 
Did you get any nausea or mouth ulcers? I got t them last time on AC.
Caz xx 

 

Hi, @Caz1 How are you?
It must have been extra hard for you to start new treatments in Melbourne at the moment.😢
I am starting Capecitabine next Monday and have just read all the details especially side effects...and now a bit scared.
How are you coping so far?  It will be very helpful for me if you could share a little insight (even bad ones😅).
Sending 💖 from Tasmania

Hi @Benmamy
Nothing major in the side effects so far, BUT I’m easing into it and am not on the full dose yet. Only thing is occasional waves of tiredness, but that could be due to anything in the last year!
I’m  two weeks on and one week off, this week was my off week and I’m ramping up to full dose  from next Monday...we will be doing it together my friend  :)
Good luck ,and let’s touch base in a couple of weeks  ;)
Caz xx

PS   It IS slightly terrifying to start chemo in peak lockdown  :(

Thank you so much @Caz1
Glad to hear that the side effects weren't too bad so far (I know still not nice. we become so resilient, don't we?)
Yes! it must be terrifying.  In any occasions starting chemo is not fun.  In the middle of Lockdown!!?? - it's just Crazy.
I don't know how much my dose will be yet. I will have chemo education session with a pharmacist first but it will be nice to have someone going through a same thing (chemo not lockdown sorry 😔) so I hope we can keep in touch too 😉
I sincerely hope your new dose will be super kind to you💞 but I am here to hear you too - good or bad.  
We are all in this together xx

Hi @Benmamy how’s it going on the Capecitabine?
Hope all is well in your world  :)
Cazzx

Hi @Caz1 I'm doing ok.  How about you?  It must have had been such long hard months for you all Melbourne people, but you guys have done it!!!!  I know it's not over but people like us who could be vulnerable cannot express our appreciation and admiration for you guys enough, Thank you 😊
Capecitabine has been not too bad for me.  I have had a few tummy problems and I have gotten a strange pigmentation problem.  My doctor said it is a bit rare but she has heard about it.  It is not itchy or painful at least at the moment but it looks very odd.  I am a little worried that I might become like a ugly version of Dalmatian dog 😅
Hope you have been well.  🙂