Forum Discussion
Lisa1407
5 years agoMember
Hi there, I am on Xeloda for the second time. First time I was on it for about 8 months. Worst side effect was the hands and feet which peeled and became really inflamed at the end of the two weeks on the treatment. Tiredness was also an issue. I went of Xeloda to give my hands and feet a rest and I could get onto a trial of Abemaciclib. I got about 13 months on Abemaciclib and have now switched back to Xeloda. It is working!! This time the side effects are worse. Have diarrhoea which I control with Gastrostop and have been having unbelievable abdominal pain. The pain was so bad that this cycle my oncologist lowered my dose from 2X1500 mg per day to 2X 1125mg per day. I have had twinges in my stomach which have not been bad. Hands and feet just the same. Tomorrow I move to my drug free week! I find I have much more energy during the week of treatment. Have another PET/CT scan booked for 14 December to see if lowered dose is still working. Fingers crossed!!