Forum Discussion

karen_b's avatar
karen_b
Member
14 years ago

Good days, scary moments - chemo here I come

The last two weeks have flown with so many medical appointments (blood tests, ultrasound, bone scan, ct scan,  surgeon check up, physiotherapy, lymphoedema education, chemo education, pap smear), school open nights for my eldest son, buying hats and looking at wigs and last but not least working on the odd few days that I was free!

I was doing fine when I went for my abdominal ultrasound and rocked up to the bone scan thinking "great they are running early I should get more shopping in afterwards" but then the nice young man asked if I had ever had a knock to the head.  Then he said he wanted a side scan of my skull, then he said there was a legion they were looking at.  Then I went to the waiting room and wrote 'Now I am scared' in my journal and my eyes filled with tears.  I thought to my self 'Here I am stressing about losing my hair and maybe I will be losing part of my head (or worse)!  Ten minutes later they called me back in for a three dimensional CT scan of my skull.  I don't do confined spaces very well (I think due to a scarey moment while caving in my youth) so with my eyes closed tight, counting my rapid breaths and trying hard to not think any more about what this meant I lay still for the required ten minutes.  I then spent the next four hours shopping in a daze waiting for the results to be ready.  I rang a 24 hour support line but they didn't pick up (rang me back 4 days later with apologies) so I finally rang my 'second-mum' at work for some comforting words and advice.  I raced back to get the results asking for them to be faxed through to my oncologist, tore them open in the car and (phew) they didn't read so bad.  I then rang my oncologists rooms and she rang me back at 5.30 to say that the bone lesion looked entirely friendly.  She said that I had probably always had it, it is too small to biopsy and unlikely to be breast cancer related.  Her recommendation is for another scan in 6 - 12 months.  Thank God that this all happened over only one day, by the end of the day I was totally drained but at least I had some positive news to go home with. 

I took the next day of work (to recover) and went to a voluteer run head gear shop at the local hospital and met the most amazing three women.  They are all breast cancer survivors.  After the first ten minutes we were chatting like old friends, nearly wetting our selves laughing (I look like Fatty Vaughtan as a Woman in some wigs) and after many hours I left with a spring in  my step and a bag full of hats, turbans and freebies and the confidence that I can come out the other end of this and be just as vital and vibrant as they are.

I start TC chemo day 1 cycle 1 tomorrow but although I am not looking forward to it feel that I am pretty well prepared.  My hats and turbans are ready, I have had my hair cut short, the house is unusually clean and my supermum is primed to provide heaps of support.  

Tonight I discovered that as I havent painted my toe nails since I was probably 16 (I have toes that I am not keen to highlight)  I am a complete failure at it.  My toes also seem to have gotten a lot further away than I remember!. I resorted to a kind of blobby stab at the top part of each toe which seems to have done the trick.   When purchasing my dark nail polish I decided to not go with boring black but purchased 'No Shrinking Violet' - a suitable name I thought for how I want to pass the next 12 weeks and a suitably dark gothic sparkly purple.  So with my new nails, new hair and inspiration from the many women I have met over the last 2 weeks who have said 'By the way, I am a breast cancer survivor' I am ready to embark on the next step of this journey.   My next post may not be so positive as I will lose my lovely new hair style sometime in the next three weeks but for now life is good - naive or not I am thinking I will get through this!

  • Hi Karen, I want to also say welcome...to the most bonding online chat group you'll ever come across! You have been through so much stress already and show a fantastic sense of humour. Good on you, that'll help you through, along with the support of family, friends and your newest mates, the breast cancer survivors of BCNA! I'll try hard to keep logging in and see how you're doing. Lee. X

  • Hi Karen, I want to also say welcome...to the most bonding online chat group you'll ever come across! You have been through so much stress already and show a fantastic sense of humour. Good on you, that'll help you through, along with the support of family, friends and your newest mates, the breast cancer survivors of BCNA! I'll try hard to keep logging in and see how you're doing. Lee. X

  • What a terrible scan experience! Once they know you have breast cancer they tend to go over any of your results with a finetooth comb.Which I suppose is a good thing but scary when you are waiting.Glad you had a positive experience afterwards.It's going to be up and down like that for awhile for you.Well you sound super organized and it makes us feel a little in control.Not sure what chemo regime you are having but stock up on vegie soup,anything lemon or ginger to drink.When you go into the chemo unit you may feel a little anxious so you can always ask for a "calm you down pill".I did and it helped.I was the biggest sook but look,there are no bravery medals given out there!!Hope it goes ok for you tomorrow.

                                        luv Tonya xx

     

  • Hi Karen - wow what a whirlwind couple of weeks you have had.  Your blog just sent shivers through me as it brought back emotions from 24 years ago when my Mum who had had BC twice, was then being investigated for spots on her skull.  They also turned out OK but was the scariest thing for all of us!

    As I have said in other posts, in this network we all have different stories and experiences but all resonate with us in some way or another.

    I am pleased that you have flash toenails and fingernails - No Shrinking Violets is something I think we all can relate and aspire to. What a great vision.

    Keep us all posted on your journey.

    Leanne x

    PS My Mum after having BC at 36 then 48, is now 71 and has just had her nails done for the first time in her life - is very proud of her lovely nails!  Amazing how something so simple can make us feel so much better!!

  • Hi Karen and welcome,

    Boy I got tired just reading all the things you have been doing.  Yes it is a busy time - I actually "cherish" the chemo time just sitting and "relaxing".  It might sound stupid but I make the most of a bad situation.  On the following 7 days I know that I "have" to relax.  It is enforced but I know that it is the way it is and look forward to the good days.  I had long hair for over 30 years and now I am bald as a beaver.  I am very surprised that I don't feel "devasted".  It is all part of the process.  Yes I prepared and got a wig with another on order.  Lots of hats, scarves etc.  I see it as something different.  I do look forward to the end of the year though when I should have some hair.  At present it is looking awfully like it might come back "white" - oh well something different again.  Keep coming back on the site and letting us know how you are going.  There will always be someone to "chat" with.  XLeonie