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Ann58's avatar
Ann58
Member
9 hours ago

Just venting

I wasn’t sure where to post this. And there are a few things to say.

  1. Has anyone had the experience of people giving advice as to what to do with treatment etc? 
    I’ve had people tell me to seek other treatments. Yesterday someone who I vaguely know sent me links to iodine to cure breast cancer. And said that he hopes I don’t do surgery or radiation. That surgery spreads the cells. 🥺 of course this had rattled me & I’m in a triggered state. I’ve deleted the message & blocked the number
  2. also, I’m so emotional, scared, sad, not sleeping well. I’m going to try to call the help line today & seek a counsellor. I have a counsellor for trauma CPTSD but I can’t afford her now and she’s not registered to get subsidised sessions 
  3.  Another piece of advice from another person was to try to stay out of fear as it lowers vibration. I totally understand vibrational energy but how on earth do I stay out of fear 100% of the time

i am scared. I am afraid of what is to come. I find it difficult to still myself, to meditate or pray.

i also know that this will pass but right now, I feel vulnerable & alone (even though I have a supportive husband) 

I find it difficult to reach out too. Hope this is the right place to post here 

 

fear
support

1 Reply

  • Afraser's avatar
    Afraser
    Member
    2 hours ago

    Dear Ann58​ 

    Vent away! It can relieve a lot of stress. Doesn't actually fix anything but the emotional release can be a tonic.

    At a time when you are feeling low, uncertain and plain frightened, unqualified and I am afraid insensitive people telling you nonsense are people you need to avoid if at all possible. At least for a few months until you get a handle on this new phase of your life (and have a much stronger sense that there will be many more phases too!). It's highly unlikely they know anything about the subject. Their 'research' is probably on some uncredited and weird website. I'm of the opinion that a counsellor should be available for anyone with a cancer diagnosis. The emotional impact is often harder to gauge than the physical - and cancer specialists are mainly and rightly concerned with your body. Cancer can also dredge up or put a new focus on other issues. I saw a counsellor for a few months - not about coping with cancer, she agreed I was doing really well with that! No, I actually needed a disinterested but intelligent person to tell me that my 50 hour working week, inability to delegate very effectively, 'can do' response to everything was not necessarily something I should go back to as 'normal'! It worked too! Your GP may be able to assist - sleep is precious and a short time on sleeping pills may help and restore some balance and stillness. 

    Your medical team will advise about treatment. There will be decisions to be made, but I sometimes think that the scariest part of the whole process is just knowing you have cancer. Once you accept that, things actually get a bit easier. Surgery isn't a great thought, but getting rid of cancer is. Reactions to treatment vary wildly - so best to see how it affects you and assess the situation then. I had surgery (mastectomy), chemo, herceptin and hormonal treatment. No nausea, worked throughout chemo. Lucky, but many of us are. And no, surgery does not spread the cancer - although some cancer may evade a first surgical intervention. Surgeons are well versed on that possibility and what to do about it. 

    Just breathe, take one step at a time. Don't imagine things that may never happen. Trust your team. Stay close to that supportive husband. This too will pass. Best wishes.