Forum Discussion
Pommy8
4 years agoMember
Wanted to say hello
HI new to group I know I will need your help soon.
just been told I’ve got DCIS high grade just waiting to see specialist on Friday to see what my options are.
Scary to get my head round.
Thanks .
just been told I’ve got DCIS high grade just waiting to see specialist on Friday to see what my options are.
Scary to get my head round.
Thanks .
16 Replies
- June1952MemberHi @Pommy8. Pleased to hear that you have good support and now a plan in place. The uncertainty does our head in at times, now you can rest and relax a bit and enjoy the weekend ahead. Keep in touch. 💖
- Pommy8MemberHeads up ladies went to see the specialist going in for a hook wire excision in a few weeks .
still not out the woods fingers crossed all goes ok.x - Good luck today @Pommy8 ❤️
- Cath62MemberThinking of you @Pommy8. Hope your appointment goes well today 💐
- Pommy8MemberYes my partner is coming with me and he will take notes and hopefully record meeting .
- June1952MemberHello @Pommy8 - do you have someone to go with you tomorrow ? We are always nervous and can only take in a certain amount at these appointments so someone to take notes is a good idea. If not, ask the specialist if you can record the meeting (on your phone) so you can refer back to it as you settle a bit.
It is a scary time and we've all been there. Do come back to us after your appointment an those with the same diagnosis will be a tremendous support. 💖 All the best, thinking of you. - Pommy8MemberThank you for taking time to reply.
so nervous for my first chat with specialist tomorrow. - arpieMemberHeaps of really good advice from everyone, @Pommy8 .... I forgot to mention about keeping BUSY - but someone else did! ;) If you can, get out & keep doing things that you LOVE DOING .... ALL DAY, if necessary, to free up your headspace xx. I love kayak fishing - so I basically just kept going out every day - I was on the water when I got the phone call to attend the GP for my biopsy results & immediately knew it wasn't good - because they hadn't noticed that I'd already Booked an appt for that day for the results .... ! But I kept fishing anyway! xx. Trying to maintain a normal routine is good ......
All the best for your surgery next week, @ilovewhenitrains .... great that you are in Perth - hopefully when you are both up to it, you can get together as a mini support group, for your mutual benefit. I've met up with a few from BCNA when they've travelled to my town - and a few years ago, flew to Darwin to meet up with @"Annie C" ... and we had a ball for a week up there!! We're looking forward to doing it again when all this Covid stuff settles down - but there will be 5 of us next time! ;). So many of us end up making REALLY GOOD FRIENDS on here .... that continues offline as well xx
Annie lives in the Kimberley .... @JJ70 is in Perth and is VERY active in promoting the correct info (ie all mammograms in Australia are free from age 40 with no upper limit) - NOT 50-74 as is usually advertised by the numerous Breast Screening organisations around Australia .... Tho both WA and Qld are now putting up the correct age groups! ..... Her Facebook page https://www.facebook.com/Can40Do45 is famous, for calling out those who are still putting up false information!
@Leone88 is also in Perth & she heads a Perth reconstruction support group - so if you are looking at going down the reconstruction path .... you can chat to her, as well as join the Private Reconstruction Group (lower right side of the page) to discuss stuff in total privacy! You can join ANY of the groups ....
@AngelaJS ... all the best with your biopsy results - how far away is Mackay from Hervey Bay? We have members throughout Qld too, who you may be able to connect with?
take care everyone xx - iserbrownMemberHere's a link from the BCNA website
Ductal carcinoma in situ (DCIS) | Breast Cancer Network Australia (bcna.org.au) - Julez1958MemberHi @Pommy8 , welcome to the online network.
There is a lot of support on here and no question is too trivial or silly - we have all been there one way or another.
There is a lot of useful information on this website - it’s a lot to take in and I am still discovering stuff.
I agree with what has been said above about taking someone to important medical appointments as you won’t take everything in .
I took my husband and that was really helpful as he remembered so much I didn’t .
I also kept a journal to keep a record of test results etc but also to write down my feelings and that helped me a lot.
But whatever works for you .
I also tried to keep busy in the lead up to getting test results and having my surgery - as A every one says the waiting is very stressful.
Ince I had my surgery I was in a much better headspace.
Take care.🌺