Forum Discussion
J_C
20 days agoMember
Waiting, waiting, waiting….
Hi all, diagnosed 1st September, multifocal invasive lobular carcinoma. Surgeons appt scheduled for 17 September. Surgeon has referred me for an mri with contrast. The surgeon completed my biopsies (...
arpie
19 days agoMember
So sorry to see you joining our select little group, J_C ... whack up any questions that you may have & we'll do our best to answer them as we've 'been there, done that'.
There is also a specific Lobular Cancer private group where ILC is discussed, professional medical papers/links added .... go here and join up, if you like, as ILC 'presents differently & acts differently' to other types of BC:
Group: Invasive Lobular Cancer (ILC) | BCNA Online Network
If you are living in a city or large regional town with more than one Radiology service - you (or your wonderful BC Nurse) may be able to ring around & get put onto their cancellation lists (if there aren't any 'earlier' appointments ...) then cancel the others once you get the earliest one available!
Hopefully, as your surgeon has listed it as URGENT - they SHOULD be able to slot you in quicker. (I am sure that most places DO have 'urgent slots'!)
I'd suggest that you take a trusted friend or relative with you to your meetings from now on, for both physical & mental support and even an extra set of ears - and also consider RECORDING them too, on your phone xx. It is almost impossible to remember everything that is said & this way you can go back over it in the quiet of your home & take notes. xx
Yep - the waiting really sucks! :( If you are feeling a bit stressed (which is 100% normal, as this diagnosis mucks even more with your brain than your body!) give our Helpline a call on 1800 500 258 (Mon-Fri, 9-5) for a confidential chat - and/or consider listening to Charlotte Tottman's Podcasts on her own experience with BC - as she explains it all very well xx
She is a specialist breast cancer Counsellor who had a double mastectomy following her own diagnosis, choosing to stay flat. She was surprised at her own reaction to the news/surgery/treatment, as she'd been counseling others for many years & thought she 'knew it all'! She has done 2 ‘podcast seasons' ... check out the 1st season, right from her diagnosis onwards and how she coped, then move on to the 2nd season.
She is very easy to listen to & you'll probably recognise some of your own reactions in many of the podcasts.
http://www.drcharlottetottman.com.au/my-podcast.html
Check out this thread too - there is a lot of general info on the forum & what to take with you to hospital - even 'tick sheets' that you can fill in to take with you to your appointments on your mental & physical health .... this info has been gleaned from many of our members over the years ... I hope it helps you xx
https://onlinenetwork.bcna.org.au/discussion/23477/a-big-welcome-to-all-new-online-network-members#latest
take care & all the best xx