Forum Discussion
Waiting, waiting, waiting….
Hi all, diagnosed 1st September, multifocal invasive lobular carcinoma. Surgeons appt scheduled for 17 September. Surgeon has referred me for an mri with contrast. The surgeon completed my biopsies (...
Hi Moomincorn,
thanks for replying, I am probably being unreasonable, but my point it, they’ve said ‘protocols’ and then I find out it’s cycle related (which I don’t have) but they’ve not even contacted to to see if I have a cycle or where I could have been within that cycle…. I have contact my McGrath nurse a few times and she has followed it up and I’ve rung them myself but of course you get an admin person who is the gate keeper and just repeats the well practised and rehearsed responses. I can’t even get the referral and try to go to another radiologist….. I truly think I’ve just hit a point where I need things to happen because we need to move on, get a full diagnosis (which is probably after surgery anyway, but surgery needs the mri, vicious circle)….. thanks for replying, I know there’s nothing I can do but ‘hurry up and wait’……. Needed a whinge I guess…
J_C You are not being unreasonable at all. You are trying to make the gate keepers realise that they're delaying something that is important. They don't have any reason for not giving you a date.
Could the surgeon's office give you a copy of the referral? Or send it through to another place on your behalf? They're the one who made the referral so they might have more sway with imaging places than the breast care nurse.
It's important to whinge and let the frustrations out! It helps us to breathe while waiting for the world to catch up.