Forum Discussion
Waiting, waiting, waiting….
Hi all, diagnosed 1st September, multifocal invasive lobular carcinoma. Surgeons appt scheduled for 17 September. Surgeon has referred me for an mri with contrast. The surgeon completed my biopsies (...
J_C It's sad to hear that the imaging place is creating unnecessary headaches for you at a very difficult time.
Have you tried to contact the surgeon's office to let them know what's going on?
My surgeon's office stepped in and made miracles happen when it turned out two referrals hadn't been acted on.
MRI wait times will vary based on many factors but for comparison my surgeon sent a referral for me and the imaging place called me the same day to book it. The MRI has to be done on day 10 of my cycle so there's around a two week wait but as you've pointed out, that does not apply to you.
Hi Moomincorn,
thanks for replying, I am probably being unreasonable, but my point it, they’ve said ‘protocols’ and then I find out it’s cycle related (which I don’t have) but they’ve not even contacted to to see if I have a cycle or where I could have been within that cycle…. I have contact my McGrath nurse a few times and she has followed it up and I’ve rung them myself but of course you get an admin person who is the gate keeper and just repeats the well practised and rehearsed responses. I can’t even get the referral and try to go to another radiologist….. I truly think I’ve just hit a point where I need things to happen because we need to move on, get a full diagnosis (which is probably after surgery anyway, but surgery needs the mri, vicious circle)….. thanks for replying, I know there’s nothing I can do but ‘hurry up and wait’……. Needed a whinge I guess…
J_C You are not being unreasonable at all. You are trying to make the gate keepers realise that they're delaying something that is important. They don't have any reason for not giving you a date.
Could the surgeon's office give you a copy of the referral? Or send it through to another place on your behalf? They're the one who made the referral so they might have more sway with imaging places than the breast care nurse.
It's important to whinge and let the frustrations out! It helps us to breathe while waiting for the world to catch up.