Forum Discussion
J_C
8 days agoMember
Waiting, waiting, waiting….
Hi all, diagnosed 1st September, multifocal invasive lobular carcinoma. Surgeons appt scheduled for 17 September. Surgeon has referred me for an mri with contrast. The surgeon completed my biopsies (...
J_C
8 days agoMember
Hi Tri,
thanks for replying, they have my ER positive, PR Negative, HER2 Negative results, my nurse let me know after asking the what ‘protocols’ they meant, it’s about conducting the mri at a certain point in a woman’s cycle, it’s all over my referral and information that I’ve had a hysterectomy and been thru menopause so don’t have a cycle so we can’t understand why they can’t book my appointment, I’d understand if they said there’s a significant backlog etc and could book me in a future date, I’m not in a metropolitan area so could understand that, but to not be able to book me in at all….just seems cruel in my brain and heart, because they know about the diagnosis and it is marked ‘urgent’…… I was controlling my emotions and anxiety quite well, but yesterday afternoon (day 10 of waiting) I think I may have hit a bit of a wall…… this mri is to tell us if my two lesions are actually 1 and will change my stage, surgery and treatment. So apart from heatrng ’you have cancer’ this wait is just nasty!
Tri
8 days agoMember
I hear you J_C and your feelings of rising anxiety, worry and sense of being given information that does not stack up for you sounds totally understandable. Everything turns on the diagnostics, so the delay in accessing them prolongs the experience. Sorry you’re going through this and sending hugs and positive vibes your way.