Forum Discussion

RosaPink's avatar
RosaPink
Member
6 years ago

Triple Negative Breast Cancer

Hello,

I am a healthy (I thought) 69 year old woman and I feel as if I could live forever… I enjoy my life, am reasonably fit and very active – I swim, go on really pleasant bush walks with my partner, ride my bike occasionally, love to potter in the garden…. I also eat well and am conscientious about my diet but not fanatical. I must admit I maybe indulge in a little too much wine. Life is good!

But suddenly, out of the blue comes a diagnosis. Triple Negative Breast Cancer, Grade 3, but luckily found early. Those of you reading this will know what a mind-numbing shock this is.

And with this comes the beginning of huge decision making.

So, I have read as much about my cancer as I can..I learn it is a particularly aggressive little nasty (but, as I said earlier…luckily for me caught early), only 15 to 20% of people with breast cancer actually get this type… the amount of research is also less than for the more common hormone adaptive cancer and  metastasis tend to occur sooner rather than later.

I am also reading as much as I can about how to strengthen my immune system eg diet, supplements, food regimes etc. There is a lot of information out there, and often it is contradictory.

My initial decision was for a lumpectomy, with radiation, as opposed to a mastectomy without radiation. First hurdle jumped….clear margins around the tumor and 4 lymph nodes removed with no cancer. A good result!

But the chemo question still looms. The pros and cons, the weighing up of my evidence (biopsy, surgery etc), can I take the risk, the odds%% - it’s like a gamble – there is so much speculation involved. Did some cancer cells escape before the tumor was removed?….absolutely impossible to know.

I’d appreciate hearing from someone who has faced this diagnosis and have a chance to share the experience and hear how someone else tackled this situation.


14 Replies

  • Hi @RosaPink I was diagnosed with TNBC 12 months ago at age 51. Stage 1 Grade 3. Very first mammogram. After a lumpectomy and node removal I had 6 rounds of chemo (FEC-D) and 16 rounds of radiation. I am currently in remission. I highly recommend the Facebook site Triple Negative Breast Cancer Australian and New Zealand Sisters, @SoldierCrab shared the link in a previous message. I found a lot of information didn’t apply to me being TN and it’s been nice finding a group of women going through something very similar. I have also found the BCNA site and all the lovely woman wonderful. Try to be careful with googling TNBC it can be very dismal and often shows the worst case scenario. In fact after googling I’d return to these wonderful forums to get back some perspective as the information I’d stumble upon could be very upsetting.
  • Hi everyone l am new to this group and am lucky enough to be in remission after having a mastectomy in 2017. I chose not to have chemotherapy as my lymph nodes were clear. 
    Does anyone know if this type of cancer is high risk for daughters? And also whether my daughters should be having mammgrams and / or scans if they are under 40. Thanks  
  • Hello   @rozbanno I had TNBC in 2012... I was told my daughters/granddaughters should be checking their breasts monthly for changes and at Least begin Mammograms by 40 if nothing else has cropped up prior to 40.