Hi @Mazbeth, did you have AC chemo? May I ask what side effects you experienced? I find chemo fog on starting Day 4, worse day is day 5 where I want to curl up in a foetus position because I feel so disjointed from whatever ‘my normal self’ looked like and managed cognitively emotions flare up and I breathe, self talk, go for short walks, look upwards but still can’t shake off - who is this person walking in my shadow? I have never been a big sleeper and I’m generally an early riser ready to embrace the offerings of the day...now sleep has reduced significantly. Hence, why I am up writing at 1,45am. Listening to soothing music to help find sleep. Oddly my brain doesn’t feel like it’s racing, just awake (toilet breaks, water breaks, temp checks, mouth wash breaks to relief the mouth sores. Then I feel the symptoms of both aches following the white cell injection (pegfilgrastim)
I am told that the 2nd lot of weekly, 12 week chemo is milder yet I have read that the side effects can appear in other brutal ways. I guess there is no escaping the unknown symptom beatings only that this shitfest has crept into our lives and we do the impossible to cope in the most possible individual ways... I’m coming from a place of I just don’t know. What I do not is that this forum and wonderful people helps. Thank you xx
