So stressed out. Just diagnosed with nearly 5cm triple neg idc at 33yo, no children yet, with very likely node involvement (not enough cells for conclusive but looks very likely in an enlarged node underarm) &nbsp;but all other scans and tests show no other cancer. I need to hear from others with same type and relative size and years beyond to have a positive outlook. Can't sleep, can't eat after seeing surgeon today - mastectomy surgery within next 2 weeks and auxiliary clearance then chemo and radiation. I am just so stressed about weather I bother saving my eggs as I read the outlook isn't that good for large triple neg but all I've ever wanted is children but no point if I won't be around. please I need to hear from others who have positive stories even ones with reoccurrence of large triple neg idc. Thank you.

Hang in there sweetheart.... I'm 5 years on, and was where your head is now. I had DCIS4 ( terminal at one point ) and a triple neg... I fought that war, I punched it fair in the fucking face!! Get angry!! Get really angry with it!!! Cry, scream, swear!!! Then get on with letting the drugs do their thing. Tell it " I AM NOT READY TO DIE! I HAVE TOO MUCH LIVING TO DO! SO FUCK OFF!!!" .... Prepare yourself for anything and everything!! The drugs will make you sicker than you've ever been, and I was sick and tired of being told "be strong, be positive" I was positive, I was positive I had cancer and was going to die!! But I didn't !! AND neither will you my lovely!!! <3

Dear Hopes and Dreamsi don't post much anymore but came on here and saw your post and felt compelled to answer you. I had triple negative multifical,ie 3 small tumours and 3 positive nodes. I am now 2 years post diagnosis. It seems hopeless and incredibly scary at the start but this is treatable!! Big gains in research and lots of worldwide focus on triple negative breast cancer treatment. It helps to read other survivorship stories and there are plenty of them with similar and bigger size tumours than you have. It s hard to find histories on this site and unfortunately a lot of great blogs seem to have disappeared. If you go to breast cancer.org you will find a whole section on triple negative with threads all about women who are thriving up to 10 years and more after a triple negative diagnosis. Another credible site is tnbc foundation. Tnbc foundation site also has discussion forums and up to date research posted on it. There are many other women on here who are doing well several years down the track and I'm sure they will also post. I understand totally how you feel, and it is important to know that not only can you survive but statistically you are likely to survive. Don't buy into all the doom and gloom on the web about tnbc. A lot of it is lazy reporting quoting statements from years ago.You have a treatable disease and you can get through this!I wish you all the very best and take care,Lisa

Hi Tripple Qld,I got my 10 year grade 3/ triple 2cm/ no nodes/ diagnosed on my first mammogram aged 45 survivor badge last September and celebrated in China with a bunch of great dragon boat friends.On my diagnosis, I was older than you and had 2 high school girls and my own business I had to to keep running through chemo and rads when diagnosed which was quite stressful at the time, as self employed people do not get any support but in a way kept me focussed on other things than me. Supportive Hubby, but no rellies around either. As you say you want children and don't know what is ahead of you. You didn't mention if you had a prospective father in mind! Firstly, you should listen to the doctor's prognosis which although isn't great for the first 5 years looks a whole lot rosier than the other types after 10 years. Meanwhile this won't be useful for family planning -as 10 years is leaving it just a little bit late!When you have a better picture of things sit back and look at your life and support system. Many women have unwanted children, many children are neglected. Some women have children who they dearly love and the mother dies suddenly unexpectedly anyway but life goes on. I remember my oncologist giving me survival rates then piping up - that there was a 2 % chance I could die of anything else in the next 10 years anyway! If we all worried that much the population would start rapidly declining. No one really knows what the future holds for us, but if you really want a child and have good support/partner around and are then blessed with conceiving via IVF after all you go through with breast cancer why not follow your heart?Mimsi :)

Hello there, I am a two time triple negative survivor. My first diagnosis was 3cm, aggressive with one 1cm enlarged positive node. I had lumpectomy, chemo, rads. I was 47 at the time. Unfortunatlely 6 months after all treatment completed I had a recurrence another 3cm aggressive tumour, all nodes clear this time. It was about 2 cm away from original tumour. Now the good news is that I am now 54 and got my 5 year all clear form second diagnosis in May last year, so heading for 6 very soon. Yes I had to do more chemo and have a mastectomy, but here I am nearly 6 years on. Hang in there, there are many stories like mine. One day at a time, remember to breathe.Sending you huge hugs.Paula xxxxPS I'd be saving the eggs.

Hi Tripple,sorry you have to join us but welcome.everything seems overwhelming when you first find out. Nodes, grade, stage, size, tumour aggressive,its impossible to entertain all at once. I managed to keep my balance by rationing the time I spent on quality research, once a day for 1/2 an hour (never Dr Google and never in the night before sleep), then moved onto simple pleasures, researching where I'll travel when I'm done with all the chemo and surgeries etc..easier said than done, I know, but it becomes a real discipline you can be proud of..Try not to think too far ahead, just one thing at a time. So far I've passed the mastectomy stage, 2/3rds of the way through chemo, and heading towards a second preventative mastectomy and reconstruction.5 months ago, I couldn't imagine making It to this point without being in a heap but you will get there. Right now, l'm looking at the line you typed .... 'but all other scans and tests show no other cancer' and I'm thinking that this is the positive to hang on to while you slow your mind and take a breath. There are so many great women on here.Jump on when you need them all.Sending you hugs and warrior strength. A. xx

So stressed Triple neg 5cm need positive stories

74 Replies

strongtogether
Member
6 years ago

KylieG said:

Hi there I'm newly diagnosed, 40 but hadn't given up on having another baby, 5 cm tumour with lymph nodes- going through all the feelings, not sure what will happen but finally giving up the dream of a second child. And still in shock from the diagnosis of course. I hope it got better for you as I see you posted 2-3 years ago. I hope you were able to save your eggs somehow. My sister told me to find a single mother who's struggling and help her out to get my baby fix. I think she's on to a good idea!

Take one step at a time @KylieG. I'm not going to say something stupid like "don't be scared". Of course you are going to be scared.
I will say dont lose hope. In anything. It can happen, it should happen. There are great doctors and there is no reason why it can't work out well for you.
Keep the faith.
KylieG
Member
6 years ago
Hi there I'm newly diagnosed, 40 but hadn't given up on having another baby, 5 cm tumour with lymph nodes- going through all the feelings, not sure what will happen but finally giving up the dream of a second child. And still in shock from the diagnosis of course. I hope it got better for you as I see you posted 2-3 years ago. I hope you were able to save your eggs somehow. My sister told me to find a single mother who's struggling and help her out to get my baby fix. I think she's on to a good idea!
strongtogether
Member
7 years ago
Great to hear good stories like this one! Stay strong.
mum2jj
Member
8 years ago
WOOHOO. Brilliant news.
Paula xxxx
onemargie
Member
8 years ago
@"Tripple QLD" such good news love. Getting back to work will give you that feeling of normal again for sure. I’m 2 and a bit years cancer free too from triple neg. back working and physically feeling good. I Probably need to shift a bit of weight thanks to the menopause lol but I love food too much! big hug. Margie xx
Sister
Member
8 years ago
Yayy!
Kiwi_Angel
Member
8 years ago
@"Tripple QLD" amazing news - sending u the hugest of hugs xoxox
kmakm
Member
8 years ago
@"Tripple QLD" Brilliant news!!! Have a bloody wonderful weekend! K xox

This is my 3000th post ( :o ). So glad it's a gloriously happy one! :*
Tripple_QLD
Member
8 years ago
Just a quick update, Bone scan is clear. So after nearly 2 years and over -$20,000 in debt later I am finally nearly fit enough to return to work and with all clear that take some thing off my plate at least. I still think the surgeons are the wrong people to give me a check up as they should have done full scans not all bits and pieces but I see onco in 2months so I shall see what they make of it all. Thanks again everyone for the support.
onemargie
Member
8 years ago
Hi there Nicole @"Tripple QLD" thank goodness you have posted I just messaged you! So glad your MRI is all good and fingers crossed with all the other scans. I’m two years cancer free too wit triple neg and I still get a niggle here and there but it’s osteo pain that comes and goes. I know how it feels to have bc rip your throat out financially. So if you ever wanna chat just send me a PM with your number. Getting back to work will be the best thing for you emotionally too. Gives you something else to focus on and a purpose. Biggest hug love. Margie. Xxx