Forum Discussion
Tripple_QLD
9 years agoMember
So stressed Triple neg 5cm need positive stories
So stressed out. Just diagnosed with nearly 5cm triple neg idc at 33yo, no children yet, with very likely node involvement (not enough cells for conclusive but looks very likely in an enlarged node underarm) but all other scans and tests show no other cancer. I need to hear from others with same type and relative size and years beyond to have a positive outlook. Can't sleep, can't eat after seeing surgeon today - mastectomy surgery within next 2 weeks and auxiliary clearance then chemo and radiation. I am just so stressed about weather I bother saving my eggs as I read the outlook isn't that good for large triple neg but all I've ever wanted is children but no point if I won't be around. please I need to hear from others who have positive stories even ones with reoccurrence of large triple neg idc. Thank you.
74 Replies
- SJLYMemberHello, I am new here, also recently diagnosed and 32yo. I just wanted to let you know I didn't have time to have IVF as they wouldn't wait that long to start chemo, but I desperately wanted to do something and I was offered to freeze a whole ovary. It's experimental, so there aren't really any stats on success rate, but there has been 1 live birth in Australia to date. The good thing is, the procedure was done the next day and chemo could begin right away. Even though there are no guarantees, i felt better just doing something. If I had the option of IVF, I would 100% have done it. Good luck to you. I am so sorry you are going through this and wish you all the best for your treatment.
- ccasperMemberWelcome @SJLY sorry you have joined us. Interesting about the ovary. Glad you were able to do something. I didn't only as I have a son already and they wanted to start chemo straight away too. Feel free to inbox me if you ever want to chat x
- FranPMembersyly i was diagnosed with a 4cm triple neg aggressive high grade3 cancer and brac1 pos in 2007 and had partial mastectomy and 15 lymph-nodes removed then aggressive adjuvent chemo and radiation... i'd had a hysterectomy when 33 but they had left an ovary in so i wouldn't go into early menopause and i have since had this also removed. i am ten years cancer free this year so far so good . i take nothing for granted and i am ever vidulant and body aware. have my yearly mammograms and ultrasounds and biopsies if required . i deceided not to have a double mastectomy ( my choice) but my surgeon said if i got another cancer he would remove then then if need be , but depends if it did come back where it was i guess but as i said i am ten years and for me every year is special and every day is a bonus . i grab life with both hands and live to the fullest of my capabillities. and sometimes go a little beyond them but i am living for so many of my friends as well . i hope things go as well for you too . xxfranp
- So many words of wisdom above. I wanted to add we find out we are much stronger than we think. There is good support. We have great doctors, nurses, radiation people, physios and hospitals, we are so lucky wth our health care system. It's not perfect, but pretty good. You are young and strong, you will get through this, but it will be hard some days. Take the medication, especially for nausea and constipation, don't laugh, you don't want to be constipated. You have your life in front of you. There are great times ahead. Very best wishes Karen
- FranPMemberin my last posting feb 20 it read i had vidulant chemo meant to say adjuvant chemo think my spell check was on holidays lol hope you are feeling a bit better. everyone here is wonderful and you can say and ask anything no mater how silly or embarrassing you my feel as we have all been there,
- FranPMemberi have to admit when i first had genetic testing and found out i was brca1 pos trip neg 4cm breast cancer i did freak out a bit had so called friends say oh no does that mean your gonna die , i honestly thought that was it , and had some well meaning women that had read about triple neg say there isnt a cure and son on i was a mess , but many women on here gave me hope and the strength to just do what i had to and as i said may 15th this year is 10 years for me , I know things can change in a flash but i live life to the full and do as much as i can while i can. and what ever tomorrow has in store i will cross that bridge if i have to when it gets here. so thanks to all you wonderful ladies that gave me hope and love and internet hugs. ..franp
- iserbrownMemberFran you summed up very well what this forum is about - we all get it and we all try and help or make you laugh if we can! The so called friends, we all come across those, very insensitive but if the boot was on the other foot, look out! I had a dear friend of 40 years which I lost through this process and now I am not interested in revisiting that friendship. This BC keeps giving, but it's places like this forum that helps us to get through and become focussed on the now and not the what if!
Take care and sending you a virtual hug xx :smiley: - Hi I'm a TNBC and started chemo last week. I'm not sure whether to do the BRCA or other gene testing or not? my grandmother died of cancer aged 53 in the 60s, but apart from her I know nothing about my grandmother's family cancer histories. Never ever met or heard anything abiut them. Not sure whether I should check or not. I'm 50, and TNBC normally happens to younger women too, not women in their fifties??..or ?.Confused
- mum2jjMemberYou may have a history there? I am the first in my family to have TNBC so haven't had testing, however have just enquired about meeting with a geneticist as there is a strong family history of every other type of cancer in my family. I don't think I will qualify for free testing. Does anyone know how much private testing is?
- socodaMemberI think @Melclarity had private testing?