So stressed out. Just diagnosed with nearly 5cm triple neg idc at 33yo, no children yet, with very likely node involvement (not enough cells for conclusive but looks very likely in an enlarged node underarm) &nbsp;but all other scans and tests show no other cancer. I need to hear from others with same type and relative size and years beyond to have a positive outlook. Can't sleep, can't eat after seeing surgeon today - mastectomy surgery within next 2 weeks and auxiliary clearance then chemo and radiation. I am just so stressed about weather I bother saving my eggs as I read the outlook isn't that good for large triple neg but all I've ever wanted is children but no point if I won't be around. please I need to hear from others who have positive stories even ones with reoccurrence of large triple neg idc. Thank you.

Hang in there sweetheart.... I'm 5 years on, and was where your head is now. I had DCIS4 ( terminal at one point ) and a triple neg... I fought that war, I punched it fair in the fucking face!! Get angry!! Get really angry with it!!! Cry, scream, swear!!! Then get on with letting the drugs do their thing. Tell it " I AM NOT READY TO DIE! I HAVE TOO MUCH LIVING TO DO! SO FUCK OFF!!!" .... Prepare yourself for anything and everything!! The drugs will make you sicker than you've ever been, and I was sick and tired of being told "be strong, be positive" I was positive, I was positive I had cancer and was going to die!! But I didn't !! AND neither will you my lovely!!! <3

Dear Hopes and Dreamsi don't post much anymore but came on here and saw your post and felt compelled to answer you. I had triple negative multifical,ie 3 small tumours and 3 positive nodes. I am now 2 years post diagnosis. It seems hopeless and incredibly scary at the start but this is treatable!! Big gains in research and lots of worldwide focus on triple negative breast cancer treatment. It helps to read other survivorship stories and there are plenty of them with similar and bigger size tumours than you have. It s hard to find histories on this site and unfortunately a lot of great blogs seem to have disappeared. If you go to breast cancer.org you will find a whole section on triple negative with threads all about women who are thriving up to 10 years and more after a triple negative diagnosis. Another credible site is tnbc foundation. Tnbc foundation site also has discussion forums and up to date research posted on it. There are many other women on here who are doing well several years down the track and I'm sure they will also post. I understand totally how you feel, and it is important to know that not only can you survive but statistically you are likely to survive. Don't buy into all the doom and gloom on the web about tnbc. A lot of it is lazy reporting quoting statements from years ago.You have a treatable disease and you can get through this!I wish you all the very best and take care,Lisa

Hi Tripple Qld,I got my 10 year grade 3/ triple 2cm/ no nodes/ diagnosed on my first mammogram aged 45 survivor badge last September and celebrated in China with a bunch of great dragon boat friends.On my diagnosis, I was older than you and had 2 high school girls and my own business I had to to keep running through chemo and rads when diagnosed which was quite stressful at the time, as self employed people do not get any support but in a way kept me focussed on other things than me. Supportive Hubby, but no rellies around either. As you say you want children and don't know what is ahead of you. You didn't mention if you had a prospective father in mind! Firstly, you should listen to the doctor's prognosis which although isn't great for the first 5 years looks a whole lot rosier than the other types after 10 years. Meanwhile this won't be useful for family planning -as 10 years is leaving it just a little bit late!When you have a better picture of things sit back and look at your life and support system. Many women have unwanted children, many children are neglected. Some women have children who they dearly love and the mother dies suddenly unexpectedly anyway but life goes on. I remember my oncologist giving me survival rates then piping up - that there was a 2 % chance I could die of anything else in the next 10 years anyway! If we all worried that much the population would start rapidly declining. No one really knows what the future holds for us, but if you really want a child and have good support/partner around and are then blessed with conceiving via IVF after all you go through with breast cancer why not follow your heart?Mimsi :)

Hello there, I am a two time triple negative survivor. My first diagnosis was 3cm, aggressive with one 1cm enlarged positive node. I had lumpectomy, chemo, rads. I was 47 at the time. Unfortunatlely 6 months after all treatment completed I had a recurrence another 3cm aggressive tumour, all nodes clear this time. It was about 2 cm away from original tumour. Now the good news is that I am now 54 and got my 5 year all clear form second diagnosis in May last year, so heading for 6 very soon. Yes I had to do more chemo and have a mastectomy, but here I am nearly 6 years on. Hang in there, there are many stories like mine. One day at a time, remember to breathe.Sending you huge hugs.Paula xxxxPS I'd be saving the eggs.

Hi Tripple,sorry you have to join us but welcome.everything seems overwhelming when you first find out. Nodes, grade, stage, size, tumour aggressive,its impossible to entertain all at once. I managed to keep my balance by rationing the time I spent on quality research, once a day for 1/2 an hour (never Dr Google and never in the night before sleep), then moved onto simple pleasures, researching where I'll travel when I'm done with all the chemo and surgeries etc..easier said than done, I know, but it becomes a real discipline you can be proud of..Try not to think too far ahead, just one thing at a time. So far I've passed the mastectomy stage, 2/3rds of the way through chemo, and heading towards a second preventative mastectomy and reconstruction.5 months ago, I couldn't imagine making It to this point without being in a heap but you will get there. Right now, l'm looking at the line you typed .... 'but all other scans and tests show no other cancer' and I'm thinking that this is the positive to hang on to while you slow your mind and take a breath. There are so many great women on here.Jump on when you need them all.Sending you hugs and warrior strength. A. xx

So stressed Triple neg 5cm need positive stories

74 Replies

D63
Member
11 months ago
Copy Link
Hello @SimonM. Like @Cath62, I have had treatment recently at the Wesley in Brisbane. Happy to help if I can.
Mahjah
Member
11 months ago
Copy Link
Hi, sorry that your partner has joined our ranks. I live 1.5 hours West of Brisbane and I went public through the Mater. They were excellent, caring and informative. The Breast Care Nurses care was second to none. Not sure where you are located in terms of recommending a GP. Feel free to DM me if you would like. All the best.
Cath62
Member
11 months ago
Copy Link
Hi @SimonM, I am in Brisbane and the Wesley Hospital is probably the Gold Star for breast cancer in the private system. They also have oncology there too and surgeons and the oncologists work closely together in a multi focussed team of care.

There are great surgeons and oncologist in the public system too and most private surgeons and oncologists work both in the public system and private system.

My surgeon who was just the best is retired now but there are others who are great here too.

Happy to answer any questions you have. Best wishes to you and your wife.
SimonM
Member
11 months ago
Copy Link
Thanks so much - yep we've got our fingers & toes crossed for tomorrow
arpie
Member
11 months ago
Copy Link
All the best for your partner's Appt tomorrow @SimonM - your Sydney GP may also be able to point you to a specific Centre (or even surgeon too) in Brisbane/Gold Coast. ;)

take care
SimonM
Member
11 months ago
Copy Link
Thanks so much for this - the situation with the GP is a bit complicated, we're originally from Sydney, staying down here at the moment and have been to St Vincents Hospital for screening/testing, will be seeing our Sydney GP tomorrow for the first consultation. Then back home to Qld - the reason for the Sydney GP visit is that she's very good and we trust her judgement. But we haven't seen a GP at home for any of this yet, to be honest we're not overly impressed with our local medical practitioners - hence my asking here! Really appreciate the reply
arpie
Member
11 months ago
Copy Link
Sorry to hear of your partner's diagnosis. Well done for supporting her - we'll do our best to help with both your queries.

Maybe add 'Brisbane/Gold Coast' to your heading ... members living there may be able to help.

My GP put me onto a couple of Surgeons & I ended up going with one of them & was very happy with the results. So maybe ask them first up (tho surprised they haven't mentioned any yet.)

Brisbane (and probably the Gold Coast) would have dedicated Cancer Centres, where there should be Breast Cancer surgeons (some do both surgery AND reconstruction at the same time - others may do one or the other.)

Get your partner to join the Reconstruction or 'Flat Chat' groups, if she is not sure whether to go flat or have reconstruction, depending on the amount of surgery required xx
https://onlinenetwork.bcna.org.au/group/1-choosing-breast-reconstruction
https://onlinenetwork.bcna.org.au/group/29-flat-chat-no-breast-reconstruction

take care & all the best for your partner - if you attend her appointments, specially with the surgeon & oncologists (post op) consider recording them, so she can go over them later on if needs be. It is difficult to remember everything that was said.

(Check your messages - top right hand corner, the envelope.) ;)

Forum Discussion

So stressed Triple neg 5cm need positive stories

74 Replies

Related Content

Triple Positive HER2+

Holistic approach success story please

HER2 positive diagnosed Dec 24 -

Her2 positive

Stressing

Recent Discussions

Recurrence group?

New to the Journey

Newly diagnosed - Triple Negative - Chemo underway - Family history

Newly diagnosed with triple negative.

39 years triple-negative early cance,through IVF treatment & start chemo mid-May24

Disclaimer:

Foundation partner	Major partners