Dear Hopes and Dreams
i don't post much anymore but came on here and saw your post and felt compelled to answer you. I had triple negative multifical,ie 3 small tumours and 3 positive nodes. I am now 2 years post diagnosis. It seems hopeless and incredibly scary at the start but this is treatable!! Big gains in research and lots of worldwide focus on triple negative breast cancer treatment. It helps to read other survivorship stories and there are plenty of them with similar and bigger size tumours than you have. It s hard to find histories on this site and unfortunately a lot of great blogs seem to have disappeared. If you go to breast cancer.org you will find a whole section on triple negative with threads all about women who are thriving up to 10 years and more after a triple negative diagnosis. Another credible site is tnbc foundation. Tnbc foundation site also has discussion forums and up to date research posted on it.
There are many other women on here who are doing well several years down the track and I'm sure they will also post. I understand totally how you feel, and it is important to know that not only can you survive but statistically you are likely to survive. Don't buy into all the doom and gloom on the web about tnbc. A lot of it is lazy reporting quoting statements from years ago.
You have a treatable disease and you can get through this!
I wish you all the very best and take care,
Lisa
Thankyou Lisboy im pretty sure in these 2 months of waiting i have read every Study, Forum, Cancer site on the net.... and it has proved very helpful as my Surgeon is very impressed with my knowledge of EVERYTHING to do with my case and attitude for someone of my age (luckily i am a very smart googler and i know what to read and what not to read and how much weight to give it based on a whole lot factors like who rote it, when, scientific evidence etc ) . Having said that i got so Down the night i wrote this because i took the wrong person with me who wasn't helping and was, in front of the surgeon, demanding i give up on kids and just start chemo all because my surgeon said "I'm not going to beat around the bush, You are in TROUBLE, that is a big cancer" and i think hearing that my friend had an awakening and went a bit off the rails ( i had had other surgeons and drs visits prior so i knew my situation) Needless to say i wont be taking that person to any of my stuff again as i thought they could handle it but obviously not. Anyway i have surgery booked for Wednesday then egg harvesting injections start next week then multiple ultrasound nearly daily towards day 12 then harvesting on day 12 or 14 then chemo starts 1 week after that so ill be so busy i dont think ill have time to worry about much at all lol. I find it funny how you learn who believes you to the extent you are saying about your diagnosis and who has to hear it from a professional before it sinks in for them....i have a few around me unfortunately but some good ones too. thanks again i am feeling better and just cant wait actually to get this breast off and be done with the pain its been giving me for 2 months now.
