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lisboy
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Joined 11 years ago
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Re: So stressed Triple neg 5cm need positive stories
Dear Hopes and Dreams i don't post much anymore but came on here and saw your post and felt compelled to answer you. I had triple negative multifical,ie 3 small tumours and 3 positive nodes. I am now 2 years post diagnosis. It seems hopeless and incredibly scary at the start but this is treatable!! Big gains in research and lots of worldwide focus on triple negative breast cancer treatment. It helps to read other survivorship stories and there are plenty of them with similar and bigger size tumours than you have. It s hard to find histories on this site and unfortunately a lot of great blogs seem to have disappeared. If you go to breast cancer.org you will find a whole section on triple negative with threads all about women who are thriving up to 10 years and more after a triple negative diagnosis. Another credible site is tnbc foundation. Tnbc foundation site also has discussion forums and up to date research posted on it. There are many other women on here who are doing well several years down the track and I'm sure they will also post. I understand totally how you feel, and it is important to know that not only can you survive but statistically you are likely to survive. Don't buy into all the doom and gloom on the web about tnbc. A lot of it is lazy reporting quoting statements from years ago. You have a treatable disease and you can get through this! I wish you all the very best and take care, Lisa11Views7likes0CommentsRe: Featured Posts from Yesterday
Hi everyone Thank you Lizzie13 for your eloquent explanation of your post last night. I am glad you didn't let the incredibly dismissive response put you off. I can only second and reiterate what others have said. I am moving on from this site after the response by bcna to admonish us like we are school children and then to remove posts in such a high handed way. Is this expression of my disgust also outside of the guidelines? I am disappointed as I found it very helpful here 18 months ago when I was first diagnosed. A lot of women have left and not returned. I wish you all the best.7Views0likes0CommentsRe: Featured posts
Yes it is very disappointing. I feel shut down and slapped down . Clearly there is no room for robust discussion on this site. I did not expect to feel bullied by bcna staff, so goodbye. I will join an overseas group that can have intelligent discussion without the moderator weighing in accusing others of being disrespectful for daring to express opinions she didn't like!35Views0likes0CommentsRe: Featured posts
I completely agree. This is something I have been feeling for some time. I believe that bcna admin should be in the background not front and centre of a site for women who actually are fighting this disease. I think that they need to reassess what this is all about. It's also not just about pink buns and fundraising. Everytime I open up I get an advertisement for pink buns. I'm sorry but I also find it offensive to look at someone in sparkly shorts on rollerblades having a blast eating pink buns. This is an insidious disease and I wish money went to finding a cure. This is my point of view and may well not be anyone else's, but I really find the whole pink wrapping of a deadly disease trivialises the fact that it is the biggest killer of women and that for women with metastatic disease there is still no cure! This fact hasn't changed in 30 years. Sorry to rain on all the smiley faces parade.4Views0likes0CommentsRe: Changes
Hi Peta I totally get what you are describing as I am going through similar feelings and responses. I have just gone back to work and it is stressful and I no longer want that anymore! I have also just spent a week at swimming championships where I had to deal with petty jealousies of other swim parents and nasty judgmental comments . I am so over other people's bs that I can barely tolerate and be polite. I think having emerged from a year of treatment and facing ones own mortality changes you. It is a life altering situation. I am giving notice at my job and looking for something else. I can no longer tolerate toxic people or those that make me feel bad and I don't apologise for that. Stay strong and don't put up with other people's crap. You deserve to feel the best you can after breast cancer and all you have gone through. Lisaxx17Views0likes0CommentsRe: First Mammogram after treatment
Hi everyone thanks for your messages, I knew others would understand the stress of tests after treatment. I think it must be a form of post traumatic stress and it is very real. I hope all goes well for those about to have their follow up checks. Lisaxx14Views0likes0CommentsRe: 3rd AC.... Not handling it!!!
Hi Chriss I remember feeling like this on AC. It is a powerful drug and it tends to build up re side effects. You are nearly through it though? I would assume you have one more. The only thing you can really do is rest when you need to and if it is really severe contact your onc just to make sure that this is not out of the ordinary. take care Lisa4Views0likes0Comments
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Choosing breast reconstruction
PRIVATE GROUP. Choosing breast reconstruction after single or double mastectomy can feel overwhelming, and deeply personal. This group is here to connect you through others' stories and images. Please respect everyone’s privacy—do not copy or share content outside this space. Information is based on personal experience and is not medical advice; always consult your healthcare team for guidance. ⚠️CONTENT WARNING⚠️ Members may share photos of breast surgeries. These images or discussions may be distressing or triggering for some. If you need support, please contact the BCNA Helpline - we are here for you.
