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Newly Diagnosed - TNBC - Mantis
Hi All
I received my breast cancer diagnosis a few weeks ago after finding a lump in my right breast. I had a lumpectomy and sentinel node biopsy on 24th August. My tumor was 25mm and fortunately margins and two nodes were clear but it's triple negative with a Ki-67 of 50% so I have an appointment with a medical oncologist next week to sort out chemo.
The overwhelming panic has settled a little but wow, a diagnosis changes everything! I have three school-aged kids and really worry about how this will affect them. The triple negative and high Ki-67 terrifies me.
I have the My Journey Kit and have been in touch with the breast care nurses who have been great. Any pearls of wisdom for staying sane during this process would be greatly appreciated.
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- This is for you @kmakm
- @Wonk Yee ha! Love it! Thank you :D :* <3
- https://www.facebook.com/groups/1166665270079659/ ; this is a facebook group for TNBC
- Love it @Wonk!
Thanks so much @SoldierCrab. Have sent a request to join xx - My hair grew back on taxol...no colour but hair nobe the less so you might start having regrowth.
- 7 rounds of Taxol now done with only 5 to go. I’m traveling ok, the worst thing is the leg and pelvic aches and pains. The little hair I had left is slowly disappearing and my eyebrows and eyelashes are thinning too.
I have my radiation planning appointment the week after I finish chemo then I’m booked in to have my port removed the week after that. Then it’s 20 fractions over just over four weeks and hopefully it’s done! I know the end of active treatment can be just as hard as treatment itself but it feels good to be able to see the end for now.
One thing that could change things is results from genetic testing which are due just before chemo finishes. I have a greater than 10% chance of a BRCA mutation so will just have to wait and see .... - Hoping like me it will be negative and no further surgery will be needed.
- It does seem that the road is long but you will get there. It's a great feeling to be able to start ticking things off. I'm not sure who said it first but I agreed that on AC-T you seem to count up for the AC and down for the taxol. And as you say, port removed, rads... End of treatment is wonderful but, as you say, it can also come with a bit of anxiety and depression. But you can get through that, too, particularly if you're aware of it.
Fingers crossed for your genetic testing. - Thanks @primek, fingers crossed.
And thanks @Sister. So right about counting up and counting down!
I’ve been up and down so my Oncologist suggested I make an appointment with a Psychologist which I’ve done for the end of January. - Good move. I'm seeing mine next on the 3/1. She's trying to help and I like her approach.
