Forum Discussion
Mastectomy 42 triple negative diagnosis
Hi everyone
I was diagnosed on the 3rd of August I live in the south west of WA.First up I think you ladies are amazing and so very supportive.
I am a 42 yr old sole parent with a 15 and 18 yr old son,previously always a working mumma.
My eldest son has Bi Polar type 1 and my my 21 yr marriage broke down in Oct 2016,life has been pretty tough.
But I have previously been able to muster a lot of strength and courage and plan on doing this again.
I have just had a right mastectomy and auxiliary node clearance last week.I have the triple negative factor and I am desperately wanting to connect with others who have this diagnosis.I have infiltrate lobular carcinoma original tumour was approximately 57mm’s but has turned out to be an odd shape and had a second adjoining tumour very similar size immediately behind the first one.
My mammogram was clear it was picked up in the breast ultrasound and then in more detail by the MRI.
My only symptom was a slightly inverted right nipple.
I am waiting for my results for
lymph node involvement until the 1 St October and treatment plan. I have an extremely supportive mother who lost her youngest sister to breast cancer at 40 yrs old 22 years ago.
I have a wonderful group of friends,while I still struggle with the diagnosis I am committed to treatment and wellbeing and where ever possible supporting others.
Thankyou in advance for reading my post I believe knowledge is power and support from those within this circle is so very important.Which in turn I would alsways offer :)
I was diagnosed on the 3rd of August I live in the south west of WA.First up I think you ladies are amazing and so very supportive.
I am a 42 yr old sole parent with a 15 and 18 yr old son,previously always a working mumma.
My eldest son has Bi Polar type 1 and my my 21 yr marriage broke down in Oct 2016,life has been pretty tough.
But I have previously been able to muster a lot of strength and courage and plan on doing this again.
I have just had a right mastectomy and auxiliary node clearance last week.I have the triple negative factor and I am desperately wanting to connect with others who have this diagnosis.I have infiltrate lobular carcinoma original tumour was approximately 57mm’s but has turned out to be an odd shape and had a second adjoining tumour very similar size immediately behind the first one.
My mammogram was clear it was picked up in the breast ultrasound and then in more detail by the MRI.
My only symptom was a slightly inverted right nipple.
I am waiting for my results for
lymph node involvement until the 1 St October and treatment plan. I have an extremely supportive mother who lost her youngest sister to breast cancer at 40 yrs old 22 years ago.
I have a wonderful group of friends,while I still struggle with the diagnosis I am committed to treatment and wellbeing and where ever possible supporting others.
Thankyou in advance for reading my post I believe knowledge is power and support from those within this circle is so very important.Which in turn I would alsways offer :)
43 Replies
- Well then @Shellbelle_75, you'll be looking at hormone therapy after your active treatment has finished. Broadly speaking, that means Tamoxifen if you're pre-menopausal, or if you're post-menopausal, an AI (aromatase inhibitor) which you'll see referred to as Letrozole/Femara, Anastrozole/Arimidex, and Exemestane/Aromasin. Your cancer uses oestrogen to grow, so these medications virtually stop oestrogen thereby starving any new tumour that's looking to grow. Well that's the theory anyway! They don't always work but generally speaking, the docs like the oestrogen receptor positive cancers because these drugs reinforce the active methods used to get rid of your cancer. K xox
- The learning 'curve' is vertical I reckon...
- @kmakm yes you are right as I am pre menopausal that’s what I had been told 5-10yrs after treatment
- Hello @Shellbelle_75
Its a huge learning curve so dont be too hard on yourself. There is great information on BCNA website and dont hesitate to call 1800 500 258 if you would like to speak with a cancer nurse. Wishing you all the best with your treatment. - @Giovanna_BCNA Thankyou x
- Hi! We all have breast cancer and we are all here to support
Try this link to find something nearby
https://www.bcna.org.au/services-and-support-groups/ - @Giovanna_BCNA
Maybe you could change Shellbelle_75 's heading to say Triple Positive in it so others might comment, AS I know I dont comment on posts about that type as I didnt have it. - Shellebelle has put up a separate post for that purpose already
- Thanks ladies mistake on my behalf I appreciate everyone’s support and advice with Breast Cancer as it a shit diagnosis for anyone
it was just a part of me looking also as a part of reaching out for others who where triple positive as I feel confused about the specific treatment for this diagnosis
thankyou so much for your support @SoldierCrab and @iserbrown x - It's very easy to be befuddled as you start out - we are all here to support regardless and without judgment. Until you are here you don't realise that Breast Cancer is the diagnosis that we all have but then the type and treatments are all so different and we all react differently to treatment and or emotions so don't worry we get it!
Take care and I hope you find others nearby to you in WA
