Forum Discussion

PrincessMag's avatar
9 years ago

Just diagnosed - 22 years old

Hi everyone,

I was diagnosed with invasive ductal cancer on June 20th 2016. I also know it is triple negative?

I have to have some more biopsy'sand a bone scan to see if I need chemo first or surgery then chemo.

My breast care nurse told me I'll be having the strongest chemo and probably having treatment for 8+ months.

 

I am really scared about chemo. And also bout losing my hair :( i have long blonde hair that I love and I feel like I'll be ugly to my boyfriend once i start treatment although he has been so supportive.

 

Id love any advice you have on wigs in Victoria and any tips for chemo 

 

Also is there anyone else around my age?

 

Thanks,

Maggie 

  • Hi Maggie sorry for your diagnosis. I know how much of a shock it is to get the news your have breast cancer. Just take it one day at a time.

    I did worry about losing my long naturally red hair, but I cut it to shoulder length beforehand so I could get used to it, then cut it  short and finally shaved it off. Surprisingly my husband really loved my bald head.

    There are places you can donate long hair so it can be turned into wigs for children with hair loss. I think the Variety Club accepts long hair. Someone like to do this as it makes them feel better to donate it rather than just losing it to treatment.

    I bought a wig but never wore it. I also used scarves, but in the end I just rocked the bald look. I really got into it and wore a lot of makeup with my bald head. It made me feel badass.

    I was surprised at how quickly it has grown back after treatment finished.

    There are wonderful wigs and scarves around and it won't be gone forever.  You can always get your boyfriend to shave his too. 

    Take care and all the best, Nadine.

     

  • HI Maggie,

    I am a mum of a 21yr with triple neg bc  who is still nearly finished treatment its a long road,  take one appointment at a time and breath just breath... :) 

    Nat stressed more about loosing her hair than anything the docs threw at her lol it has been six months of chemo and radiation and all her hair including her leg hair (dam it one bit we wish didn't come back lol) is growing back quite fast.

    Her tip to you was buy hats and beanies, wigs are hot and scratchy.  Any way I know there is a group on here for young women but there is also one on facebook that she talks on regularly its a private group only for young women with cancer NOBODY else can see what you write in there, she gave me the link for you. 

    https://www.facebook.com/groups/SurroundedbyPinkSisters/

    Big hugs for you 

    Ask any questions you think of in here and someone will be able to help you xxx

  • I found Angel Wigs online - http://angelwigs.com.au/

    I think they are quite expensive (made from human hair, so you can colour and style them like you would your own hair) but they look very realistic.

    Do the Look Good Feel Better programs run in Ballarat?

    I am seeing my Oncologist tomorrow, to find out when I can start chemo. All I've been thinking about is my hair!!!

  • Hi Maggie,

    I am so sorry you have to deal with BC at such young age but thenmain thing is that it has been identified and now it can be dealt with so that at the end of this treatment you will have your health back and a good life.

    I found prospect of losing hair very daunting.when I learnt off it but weirdly enough it did not bother me one little bit when it happened. I have always had thick pusheous blode hair everyone envied and right now am soorting a bald look and lobing the freedom that comes with not needing shampoos conditioners drying the previously thick mop of mine in this cold... 

    When I learned it would fall out I somehow knew syraight away I would hate wearing a wig as I always imagined them itchy and weird... I went and bought up various caos andnscarves and watched many you tube videos on various ways of wearing head scarves to make it look good and was even enjoying the prospect of playing with various looks...

    Several weeks before Chemobstarted I went to the haridresser and asked for the shortest possible cut he could give me that was still crazy and had attitude... If the hair was going to go it would be with the bang... zit was a shock going from a very thick long mane to a short botish hair but after 2 days I had gotten used to it and the new sassy cut became 'me'... 

    One week into chemo my hair started to feel uncomfortable and scalp started to get irritated so thendiscomfort had me off to the hairdresser and he he buzzed most off it iff to a crew cut (No 4). I must say the look was a shockninitially but was used to it within 2 hours...

    I think had I gone from my long mane to crew cut I would have been devastated but having been used to short cut already this was a breeze to get used to). And I was SO SO SO happy to have.done it when thebhair started to fall out in week 3. When I say it was fallong out I mean falling out like crazy... 50% of my hair fell out in maybe 2 hours and another 30-40% over the next 24 hours...

    Having the shirt crew cut made it managable... It was driving me.nuts still as my hair had been so horribly thick that as much fell.out there seemed to be so.much more to go... I would stand over the bathtub shaking my head and running fingers through thebremaining hair trying to peel it off my scalp.

    I can honestly say that had I nowlt had thebcrew vut the exoerience would have been devastating... I cannot imagine having long hair shed like that... Also what shocked me (as nobody warned me) was rhat it would not fall out everywhere... Sides went first, followed by thebback of the head low down and then bits on top of the head... But there were large oatches remaining high up making me look like an extra from a Mad Max movie. Had it been long I think would have been devastating... Vrew cut made it jusy frustrating to deal with the 1cm hairs that were getting caught in a beanie type cap I found most comfortable to use when cold... So the next step was to buy myself an electric body shaver and buzz the remainder of my hair off. Funnily enough - I am loving the bald look... It took me a whole.of.couole.of.hours to het used to the move from the crew cut to no hair and if anything as thenhair hriws I keep on clipping it off every few days to keep it bald and easy to deal with...

    Chemo as such and various theroaies give you enough to contend with that no hair to fuss over is honestly no biggie and I do like playing with scavbes and various hairbands (used to keep scarves together as am terrible and tying scarves). I only use them when I see my friends that have young kids as did not want to alarm the kiddies with having to explain what happened to the hair...

    On the street though I mormally just whack on a beanie and nobody gives it a 2nd look so I can honestly day the 'no hair' bit as daunting as it was before it happened has proven to be the least bother of everything...

    I strongly reccomend the staged 'cutting it short' then crew cut approach as it helps you adjust to the new look and prevents the shock of going from very long thick hair to none at all... 

    And I do promisse - you will not miss needing to care for your hair once it is gone. You can still be fashionable with either headwear or wigs but when it comes to getting ready it is such a breeze.

    Hugs

    Jel.