Forum Discussion

HelenlovesSnoop's avatar
2 years ago

Hi from a newbie

Hi, I’m Helen and part one of my journey has flown by. Last year was a difficult year personally, so this year I decided it was time for ‘rebuilding’ - on my list was to go and have my first mammogram. I went to the Rose Clinic in David Jones for a mammogram in July, thinking nothing of it - then got a call to attend breast screening at SCGH (Perth) and was diagnosed on the day with a small cancer in each breast - ie 2 cancers, one lobular, the other ductal and more aggressive. Both the hormone positive kind. In September I had a bilateral mastectomy with lymph nodes taken on my right side (2 nodes did have cancer). A tiny margin of cancer was found to have headed toward the pectoral muscle. Now I am being asked to do everything - radiotherapy/chemotherapy/hormonal tablets, because I’m considered young at 54. I probably will but it seems like a lot. 
Yesterday an oncologist told me that mammogram saved my life!
I’m married with three teenage daughters and a cheeky Jack Russell. I’m an Aspie (very mildly autistic), and a Christian which is helping me a lot with this journey to date, but it’s still hard!
By the way my mother had breast cancer, twice, but later than me - at age 70 then in her eighties. It wasn’t considered relevant but now with my having two separate tumours I’m being sent for genetic testing.
I don’t know if we’re supposed to introduce ourselves and not just our cancer situation, but I guess that’s what’s mostly on my mind just now. Wishing you all the very best, Helen 🙂
  • Thanks @Julez1958, it’s true - these medical professionals do have a wealth of experience. The radiation oncologist did kind of win me over when she said ‘That mammogram saved your life.’ I could so easily have not done it!!
  • Hi @HelenlovesSnoopy
    Re having chemo / radiotherapy / hormone therapy , the oncologists do many years of training so I figured I should accept their advice.
    No treatment is 100% guaranteed to prevent the cancer coming back but the aim is to do everything that can be done to prevent it coming back.
    Not everyone has side effects and many only have mild side effects.
    There are things you can do to help alleviate side effects - it’s important to let your medical team know promptly if you have side effects.
    There is a lot of information on this website ( including this forum) about treatments and side effects and if you have a Breast Care Nurse they are a great source of info and support.
    Take care and don’t hesitate to post any questions on here.
    🌺
  • Thanks for the welcome Arpie - yes my family is very supportive, but while we’re being open with the kids of course we don’t want to worry them more than we have to. The good thing is that my future is looking good, but I can’t imagine what chemo will be like. 

    And yes we will be looking into my girls’ situation genetically speaking. 

    Xo

  • So sorry to see you join our exclusive little group @HelenlovesSnoopy, but glad that you have found us. Good that your Mammo found the problem & but a bugger you have to do the whole enchilada!  xx. I hope your kids/partner are supportive xx

    We have a Christian Group that you might like to join xx. Just click on the 'Join Button' .... 
    https://onlinenetwork.bcna.org.au/group/3-christians-diagnosed-with-breast-cancer

    With your Mother having had breast cancer twice - it might be wise to have your daughters genetically tested too, relative to your own results? .... Revealing some of your background really does help, round out our understanding of your current situation xx

    All the best with your genetic Testing and ongoing treatment  .... take care & look after yourself xx