Forum Discussion
Sister
8 years agoMember
To Port or not to Port
(Apologies if this appears twice - my first attempt has disappeared)
I've had lots of information from my questions about preparing for chemo but I have another decision to make - whether to have a port inserted or not. I have read the literature and listened to the advice of the nurses but as my husband says, no matter how nice the nurses are, making their job easier is not really my problem unless it affects me. He is concerned about me having another surgical procedure, albeit a minor one, that could be avoided. I'm concerned about that too but also concerned about the possibility of infection or ulceration (and pain) if I don't have the port.
I would love to hear your experiences from both sides - those who chose to go with the port and those who didn't. Why did you make the decision and how did it impact your treatment, health and recovery?
Thanks
I've had lots of information from my questions about preparing for chemo but I have another decision to make - whether to have a port inserted or not. I have read the literature and listened to the advice of the nurses but as my husband says, no matter how nice the nurses are, making their job easier is not really my problem unless it affects me. He is concerned about me having another surgical procedure, albeit a minor one, that could be avoided. I'm concerned about that too but also concerned about the possibility of infection or ulceration (and pain) if I don't have the port.
I would love to hear your experiences from both sides - those who chose to go with the port and those who didn't. Why did you make the decision and how did it impact your treatment, health and recovery?
Thanks
78 Replies
- AfraserMemberDon't be too fearful - I had all my treatment through a cannula and apart from spronging one In the toilet (it turned out to be faulty!) I never really had a problem. And you may still succeed with the port. Good luck.
- ZoffielMemberSedation is a very good idea on occasions, particularly if you are the one making the decision. We know ourselves best.
I'll take a pill when it suits me--I am a bloody nightmare when I'm stressed and backed into a corner. I'd rather chill than apologise so I plan ahead. It takes about 40 mins for a sedative to take affect and if you think you need one, call time and swallow it. It's better for everyone else to wait until you are medicated than to have screaming meltdowns (and that is from the staff)
- AnonymousNot applicableThe user and all related content has been deleted.
- SisterMemberAnd no alcohol tonight - bugger of a headache after all the emotion today. Settling for a cold chinotto (I know - it's an acquired taste) and a large block of Cadbury's best.
- SisterMemberOnce has said that he wants chemo to go ahead on Thursday even if through a cannula so I think that's what will happen. I was stressed enough about today - I'm going to need sedating by then.
- SoldierCrabMemberoh Sister what a crock of a day for you
virtual hugs girl you deserve them and a huge glass of wine for both you and hubby for advocating for you so well today.
I hope it gets sorted out quickly
and chemo can commence on thursday. - ZoffielMemberAh, what a bastard! My port was moody-- I had it tested and it had a kink just next to the input. That was after I had it repositioned, but that is another story.
It never worked well for taking bloods but didn't fail during chemo either. Still worth it, from my perspective, but it certainly sounds like yours has gone feral. Totally shithouse, particularly since you had such a hard time making the decision in the first place.
The delay with chemo is also stressful though a couple of days isn't likely to be the end of the world. If you are willing to go commando, have the chemo and sort the port later. - SisterMemberPort update. I went in for 1st round of AC today. Came home very sore and without having had it. Intense pain flushing the port, no blood able to be drawn from it. Second try with new needle and local cream. More pain. Xray to check that everything is in place properly. Nurses given go ahead to proceed. Steroid drip caused more pain and almost immediate and extensive swelling into the tissue above the port. Finally, everyone in agreement with my husband and me that something is obviously very wrong and the oncologist deciding that the port must have disconnected somehow. So close to having the AC injected directly into the tissue. It didn't happen and I can only hope that the nursing staff would have realised before they got to that stage. My husband had the uncomfortable role of advocate, observing, challenging and generally being a polite pain in the bum until it was conceded that, yes, the pain was real and not just anxiety (although to be fair, many of the tears were anxious ones as well as pain).
I go back on Thursday to have the port tested with dye and (probably) have the AC through a cannula. - wendy_h67Member@"Sister . All the best with your treatment.
- SisterMember@wendy_h67 All in and ready to go.