Just a tad worried!!

Thanks for sharing this Doll :)

Hi Kate,

I was wondering how it went.  Good on you for being assertive and seeking answers.  It might be that this particular oncologist just isn't very good at communicating.  Keep on asking questions until you are satisfied.  Ask for a second or third opinion if you need to.  Find an oncologist that you are comfortable with.  There are some good resources here on the BCNA website : https://www.bcna.org.au/understanding-breast-cancer/your-medical-team/

Arm yourself with information and questions for your meeting with the surgeon.  Have you seen the information about DCIS that BCNA have on the website: https://www.bcna.org.au/understanding-breast-cancer/types-of-breast-cancer/ductal-carcinoma-in-situ/  You can download Cancer Australia's resource DCIS Understanding your diagnosis and treatment here.  The John Boyages is a straightforward book that leads you step by step through taking control of DCIS.  See if your local library has a copy.  

Hang in there

Hi again.....had my appointment with the doc didn't really have any joy...about the lumps in my breast he could feel them but said there is nothing to be done and I shouldn't worry he doesn't think it's anything bad BUT he said if it is it will be the same kind of cancer I had b4 dcis and it's slow growing and and if it comes back we will offer u a masectomy and then he said u prolly have to have a course of chemo and then radio and I said excuse me this is my body your talking about and i have lumps in my breast and I want them out and if it isn't cancer fantastic but if it turns out it is then at least u guys can get on top of it with treatment the doc said no  he wants to leave it and see I said no that's not what I want I want the lumps gone and he didn't agree and that's how it was left.

so next week I go see the surgeon and see what he says same surgeon that did my op in January but I'm really confused and feel let down my body and I want something done to make sure we know what I'm dealing with 

Glad you have an appointment , breast care nurses are always amazing to they always seem to have the right answers , hope all is ok

Hi thanks ladies for your help ... I now have an appointment with the oncologist tomorrow and will try to get some answers and try and be firm getting the right answers and not just fobbed off . I do feel better talking to people about it  I'll let you know what he says ...thanks again ladies xxx

Hi Kate

My name is Kaye. I know how you feel. I went in for a biopsy early February and results came back showing DCIS. Bit of a shock. Didn't get clear margins so off for 25 sessions of radiation. Just finished last Friday. Have been advised the same that I will need to wait at least 6mths for the next mammogram. Very worried because as you say, how do you know all is OK.

The tears come and go and and think that is just a normal reaction. 

All we we can do is be positive.

xx

Hi Kate,

Welcome to the Online Network. Thank you for sharing how you are feeling and what you are going through. I agree with Doll, it's important to ask the question, these concerns need to be addressed.  Let us know how you go and remember we are here to help you out.

Ann-Marie x

Ask about the option of an MRI rather than a mammogram. You might have to pay for it but compared to the worry you are carrying it may well be worth every penny spent.

Oh Kate, I'm so sorry you have been left feeling like this.    Go back to your oncologist and ask them to explain to you about the surgical margins and the intentions of the treatment you have received.  Can you contact the breast care nurse (often easier to contact them and they can track down information or doctors on your behalf), your oncologist or your GP?  Do you have a follow up appointment with the radiation oncologist?  Your concerns about the lumps you have felt need to be addressed.  You don't have to wait until your next mammogram to have the lumps you have felt investigated.  A physical examination by your doctor is a start.  Take care.