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System
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6 years ago

Finished 5 weeks of radiation...

This discussion was created from comments split from: New diagnosis - Jen029. Jen029Jen029 MelbourneMember Posts: 13 ✭ 6:41PM 103.3.145.153 Well, I have finished the five weeks of radiation. Got through it reasonably unscathed, just had a little bit of blistering in the last week which was well managed by the nurses. I kept working through the treatment so have been feeling pretty tired but hopefully that will improve soon. My biggest issue has been because I have looked pretty normal after keeping most of my hair with a pretty successful use of the cold cap I feel like there is pretty much no acknowledgement of what I have been dealing with at work. I am not looking for sympathy but sometimes it can be a bit ridiculous with what they expect. Just feeling a bit annoyed tonight, I don’t know if anyone else has had similar issues. 😤😠

9 Replies

  • @GavinCh It's interesting how often that scenario comes up here, where the younger kid/s seem to care more than the young adults in their twenties. Not everyone of course, but enough to be notable. There must be a psychology to it. If you feel that it's bugging you I would have a chat to a counsellor, especially one that has expertise in cancer. It must have something to do with sense of self as a newly minted grown up, and a protective mechanism against the fact that this is the kind of stuff that happens to grown ups. I think it's valuable to remember that most people's reactions are really about about them, not about you/your wife. Big hug, K xox
  • I agree,  it seems that those who don’t really understand the treatment and continuous worries etc and are oblivious to the efforts you go through to get yourself back on your feet. Even family haven’t a real understanding of this terrible decease knocks you around. Like you guys my wife is going through the treatment stage and needs a second operation and really the only people who seem to stay in touch are our mothers and very very close friends, my wife’s best friend is 600 plus Km’s away and makes contact almost daily, she has spent 6 plus hours on a train to spend a weekend with her and if doing the trip again next week for a few days.

    I wish I could do more but know I can’t but I’m with her for every appointment, operation, treatment trying to be both a caring husband and best friend, our two daughters also provide some fantastic support while our oldest son and other daughter don’t seem to have a care in the world.

    Sorry for the rant…….. But I think I needed that :)

    Fantastic to see you come through your radiation treatment @Jen029, once my wife has completed her second operation we understand she’ll be going through the five week plan of radiation. Keep up the positiveness and remember there are others here who do understand and know the amount of effort taken to date and moving forward.


  • Well done you for working!  You are an inspiration, I could not have worked, I take my hat off to you.  I have learnt that only those that go through cancer and treatment can really understand the toll it takes mentally and physically.  Enjoy your holiday :)
  • Yep, most people don’t understand how devastating it is in terms of physical and mental. Nor that you’ll never be the same person again. There is no going back to the person you were. The body you had. It’s way different than a snapped Achilles or broken bone. Those repair, with less emotional impact, and your body looks pretty much the same. It’s like I was a pot, which was broken, it’s been re-glued, but that hasn’t set yet, and maybe it won’t.
  • Enjoy your time off @jen029.  Make sure you keep up the moisturising on the rads area.  My skin held up beautifully and while I never really blistered, I got some very sore patches about 3 weeks after treatment.  If you haven't been using it, Moo Goo is the bomb.
  • Thank you, I will be taking a few days off and have a holiday coming up in a few weeks. I have had fantastic support from some people but others don’t seem to get it at all.  It has been a huge help having this forum to come to.
  • WOO bloody HOO!!   Well done, @Jen029 - that is awesome!  Even MORE awesome for working thru it!   I got blistering in the last week too.  Are you able to take a day or two off now & then to help you 'get over it' (like a Friday or Monday) to really break up your week to a 4 on, 3 off, or 3 on 4 off (with Fri & Mon off?)  

    It's funny, isn't it - we don't really 'want' sympathy - but in a strange way, we hope we get it - at least until we are able to 'process it' comfortably!    It is weird isn't it - but our 'bullshit button' gets lowered - and we don't necessarily tolerate the somewhat shallow attitudes of our family & friends as 'well' as we might have, pre Breast Cancer.

    Try not to get too upset with people - as they are often oblivious to your real feelings .....   take care, @Jen029 - & look after No 1 - YOU!  xx