The information available on the Breast Cancer Network Australia website is not medical advice and is provided for information purposes only. It should not be viewed as a replacement for a consultation with a qualified medical professional. Our website is designed to offer information and support to the general public. Be aware that we do not provide any medical advice, and for medical advice we recommend you speak to a qualified medical professional or doctor. 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I was offered cold caps at the same place I would be having the chemo, at no extra cost or runaround so I decided to give it a go if I could tolerate it. I'm ...","body@stringLength":"1461","rawBody":"You can see I'm back with a vengeance... I was offered cold caps at the same place I would be having the chemo, at no extra cost or runaround so I decided to give it a go if I could tolerate it. I'm not hung up on losing my hair but know that it would make everything a little bit gentler for the kids (and partner) and if I could manage it and the extra time it takes, no problems. The day of the disastrous non-chemo, about the only thing that wasn't a problem was the cold cap - whether it wasn't on really firmly or I was just so traumatised from the preceding 6 hours, who knows... Jump 3 days to second try at chemo and I found the cap only just bearable. I've still got a couple of weeks to see if it has had the desired effect but I really hate having the greasy feeling of the conditioner-washed hair hanging around my face and I look like one of the lesser-groomed side characters on Midsomer Murders. So, I'm starting to assemble fors and againsts.
I know from reading everyone's posts that when their hair falls out and grows back, the texture, colour and spread can be quite different from how it was before.
I'm sure that even with cold caps (and I know even if successful there's likely to be thinning) there will be changes to the hair. Of those of you who have used them, how would you compare your hair to before, immediately after chemo course, and further down the track?
","kudosSumWeight":1,"postTime":"2018-02-15T16:46:40.000-08:00","images":{"__typename":"AssociatedImageConnection","edges":[],"totalCount":0,"pageInfo":{"__typename":"PageInfo","hasNextPage":false,"endCursor":null,"hasPreviousPage":false,"startCursor":null}},"attachments":{"__typename":"AttachmentConnection","pageInfo":{"__typename":"PageInfo","hasNextPage":false,"endCursor":null,"hasPreviousPage":false,"startCursor":null},"edges":[]},"tags":{"__typename":"TagConnection","pageInfo":{"__typename":"PageInfo","hasNextPage":false,"endCursor":null,"hasPreviousPage":false,"startCursor":null},"edges":[{"__typename":"TagEdge","cursor":"MjUuMnwyLjF8b3wxMHxfTlZffDE","node":{"__typename":"Tag","id":"tag:cold-cap","text":"cold-cap","time":"2025-03-25T05:02:16.472-07:00","lastActivityTime":null,"messagesCount":null,"followersCount":null}},{"__typename":"TagEdge","cursor":"MjUuMnwyLjF8b3wxMHxfTlZffDI","node":{"__typename":"Tag","id":"tag:hair-loss","text":"hair-loss","time":"2025-03-25T05:01:43.099-07:00","lastActivityTime":null,"messagesCount":null,"followersCount":null}}]},"timeToRead":2,"currentRevision":{"__ref":"Revision:revision:41653_1"},"latestVersion":null,"metrics":{"__typename":"MessageMetrics","views":1893},"visibilityScope":"PUBLIC","canonicalUrl":null,"seoTitle":null,"seoDescription":null,"isEscalated":null,"placeholder":false,"originalMessageForPlaceholder":null,"messagePolicies":{"__typename":"MessagePolicies","canModerateSpamMessage":{"__typename":"PolicyResult","failureReason":{"__typename":"FailureReason","message":"error.lithium.policies.feature.moderation_spam.action.moderate_entity.allowed.accessDenied","key":"error.lithium.policies.feature.moderation_spam.action.moderate_entity.allowed.accessDenied","args":[]}}},"archivalData":null,"customFields":[],"body":"You can see I'm back with a vengeance... I was offered cold caps at the same place I would be having the chemo, at no extra cost or runaround so I decided to give it a go if I could tolerate it. I'm not hung up on losing my hair but know that it would make everything a little bit gentler for the kids (and partner) and if I could manage it and the extra time it takes, no problems. The day of the disastrous non-chemo, about the only thing that wasn't a problem was the cold cap - whether it wasn't on really firmly or I was just so traumatised from the preceding 6 hours, who knows... Jump 3 days to second try at chemo and I found the cap only just bearable. I've still got a couple of weeks to see if it has had the desired effect but I really hate having the greasy feeling of the conditioner-washed hair hanging around my face and I look like one of the lesser-groomed side characters on Midsomer Murders. So, I'm starting to assemble fors and againsts.
I know from reading everyone's posts that when their hair falls out and grows back, the texture, colour and spread can be quite different from how it was before.
I'm sure that even with cold caps (and I know even if successful there's likely to be thinning) there will be changes to the hair. Of those of you who have used them, how would you compare your hair to before, immediately after chemo course, and further down the track?
"},"Conversation:conversation:41653":{"__typename":"Conversation","id":"conversation:41653","solved":false,"topic":{"__ref":"ForumTopicMessage:message:41653"},"lastPostingActivityTime":"2018-08-18T03:13:13.000-07:00","lastPostTime":"2018-08-18T03:13:13.000-07:00","unreadReplyCount":181,"isSubscribed":false},"ModerationData:moderation_data:41653":{"__typename":"ModerationData","id":"moderation_data:41653","status":"APPROVED","rejectReason":null,"isReportedAbuse":false,"rejectUser":null,"rejectTime":null,"rejectActorType":null},"Revision:revision:41653_1":{"__typename":"Revision","id":"revision:41653_1","lastEditTime":"2018-02-15T16:46:40.000-08:00"},"ForumReplyMessage:message:41660":{"__typename":"ForumReplyMessage","id":"message:41660","conversation":{"__ref":"Conversation:conversation:41653"},"author":{"__ref":"User:user:20011"},"revisionNum":1,"uid":41660,"depth":1,"hasGivenKudo":false,"subscribed":false,"board":{"__ref":"Forum:board:chemotherapy-and-radiotherapy"},"subject":"Re: Cold Cap Experience","readOnly":false,"editFrozen":false,"moderationData":{"__ref":"ModerationData:moderation_data:41660"},"parent":{"__ref":"ForumTopicMessage:message:41653"},"body":"Sure. The Mater private hospital at Springfield Qld. They will accept public patients at the moment for chemo and radiation.","body@stringLength":"136","rawBody":"Sure. The Mater private hospital at Springfield Qld. They will accept public patients at the moment for chemo and radiation.","kudosSumWeight":1,"repliesCount":0,"postTime":"2018-02-16T16:06:43.000-08:00","images":{"__typename":"AssociatedImageConnection","edges":[],"totalCount":0,"pageInfo":{"__typename":"PageInfo","hasNextPage":false,"endCursor":null,"hasPreviousPage":false,"startCursor":null}},"attachments":{"__typename":"AttachmentConnection","pageInfo":{"__typename":"PageInfo","hasNextPage":false,"endCursor":null,"hasPreviousPage":false,"startCursor":null},"edges":[]},"timeToRead":1,"currentRevision":{"__ref":"Revision:revision:41660_1"},"latestVersion":null,"metrics":{"__typename":"MessageMetrics","views":0},"visibilityScope":"PUBLIC","isEscalated":null,"placeholder":false,"originalMessageForPlaceholder":null,"messagePolicies":{"__typename":"MessagePolicies","canModerateSpamMessage":{"__typename":"PolicyResult","failureReason":{"__typename":"FailureReason","message":"error.lithium.policies.feature.moderation_spam.action.moderate_entity.allowed.accessDenied","key":"error.lithium.policies.feature.moderation_spam.action.moderate_entity.allowed.accessDenied","args":[]}}},"customFields":[],"replies":{"__typename":"MessageConnection","edges":[],"pageInfo":{"__typename":"PageInfo","hasNextPage":false,"endCursor":null,"hasPreviousPage":false,"startCursor":null}}},"CachedAsset:theme:customTheme1-1743643614981":{"__typename":"CachedAsset","id":"theme:customTheme1-1743643614981","value":{"id":"customTheme1","animation":{"fast":"150ms","normal":"250ms","slow":"500ms","slowest":"750ms","function":"cubic-bezier(0.07, 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Accept to continue or {url} it directly on the provider's site.","buttonTitle":"Accept","urlText":"watch"},"localOverride":false},"ForumReplyMessage:message:132170":{"__typename":"ForumReplyMessage","id":"message:132170","customFields":[],"revisionNum":1,"attachments":{"__typename":"AttachmentConnection","edges":[],"pageInfo":{"__typename":"PageInfo","hasNextPage":false,"endCursor":null,"hasPreviousPage":false,"startCursor":null}},"author":{"__ref":"User:user:16650"},"uid":132170,"depth":1,"hasGivenKudo":false,"subscribed":false,"board":{"__ref":"Forum:board:general-treatment-and-surgery"},"conversation":{"__ref":"Conversation:conversation:132160"},"subject":"Re: chemo or no chemo","readOnly":false,"editFrozen":false,"moderationData":{"__ref":"ModerationData:moderation_data:132170"},"body":"Hi @Emeraldgreen
I had chemo nearly 12 years ago, A/C and paclitaxel (the latter is a taxane, as is docetaxel). While I understand the concern about long term effects, I agree with others that the possibility of recurrence may be a greater concern. I was 67 when diagnosed, recent tests have shown that my liver, spleen and kidneys are in fine condition, I have had no problem with digestive issues and while surgery, chemo (more likely the A/C) and my age combined to tip my heart into an arrythmia, I continue free of any side effects, with a healthy heart function on minimal medication. Paclitaxel was probably responsible for peripheral neuropathy, affecting my feet. It doesn't affect everyone, most of those who are affected have a slight impact during treatment and it clears up afterwards.
It's hard to know how any individual will react to chemo. Nausea and fatigue are common and I didn't have either, I worked throughout treatment and felt fine. Two people on the same chemotherapy can have quite different reactions. Like many, I knew nothing about breast cancer when diagnosed and not much about cancer generally. I had (still have) a surgeon and an oncologist I trusted. I followed their advice and have never regretted it. No side effects at all would be great but cancer is difficult, complex and unforgiving. Throwing everything at it has given me 12 more years I might not have had (and hopefully more). That includes some memorable travel, a wonderful project at work for five years, a great deal of learning and two grandchildren. In return I take a few pills and can't sprint. Seems worth it to me. Best wishes for your continued recovery, whatever you choose. ","body@stringLength":"1717","rawBody":"Hi @Emeraldgreen
I had chemo nearly 12 years ago, A/C and paclitaxel (the latter is a taxane, as is docetaxel). While I understand the concern about long term effects, I agree with others that the possibility of recurrence may be a greater concern. I was 67 when diagnosed, recent tests have shown that my liver, spleen and kidneys are in fine condition, I have had no problem with digestive issues and while surgery, chemo (more likely the A/C) and my age combined to tip my heart into an arrythmia, I continue free of any side effects, with a healthy heart function on minimal medication. Paclitaxel was probably responsible for peripheral neuropathy, affecting my feet. It doesn't affect everyone, most of those who are affected have a slight impact during treatment and it clears up afterwards.
It's hard to know how any individual will react to chemo. Nausea and fatigue are common and I didn't have either, I worked throughout treatment and felt fine. Two people on the same chemotherapy can have quite different reactions. Like many, I knew nothing about breast cancer when diagnosed and not much about cancer generally. I had (still have) a surgeon and an oncologist I trusted. I followed their advice and have never regretted it. No side effects at all would be great but cancer is difficult, complex and unforgiving. Throwing everything at it has given me 12 more years I might not have had (and hopefully more). That includes some memorable travel, a wonderful project at work for five years, a great deal of learning and two grandchildren. In return I take a few pills and can't sprint. Seems worth it to me. Best wishes for your continued recovery, whatever you choose. 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