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Dandelion's avatar
Dandelion
Member
9 years ago

1 lymph node involvement opted for Left side Radiation after a mastectom with tissue expander

hi all, I'm on my day 4 of radiation and slowing getting the swing of breath and hold (to protect my heart) feeling less stressed about that. 
I have noticed my skin on spots to become extra dry almost like leather feeling. I thought this would be too early for symptoms and wonder if it's to do with the horrible sorboleen cream they gave me or because I have a tissue expander in.
It feels like it sits wet on your skin and not obsorb. 
Is radiation on a mastectomy more pron to skin damage and is there a miracle cream out there? 
I'm questioning how on earth will I get through the next 21 sessions .


14 Replies

  • Hi @fairydust, so true about what becomes normal. Today felt easy doing rads . I also spoke with the nurse and oops what appears to be my dry skin is a build up of sorboleen. I had been applying it to thick and needed to wash using a face washer oops the simple things are not so simple . Anyway think I have it sorted and feeling much more confident . I use to be s tanner so he's hoping that's all il get . Yay to you @fairydust for getting through 25 sessions , hope life becoming normal for you x 
  • @Dandelion it is amazing what becomes normal over time. I didnt have a masectomy so cannot answer that part of your question. However got through 25 sessions.
     I also just had sorbelene and later burn cream. For me it was only really the last weeks that things got difficult.  I asked the breast care nurse if people with fair skin have a greater reaction. She said it depended on each individual person how their skin reacted. Interesting.
    One of the things that kept me going was meeting up with the same people doing treatment. I felt we were all in this together  The staff were also good.
  • Sounds like your doing really well @Glemmis how exciting 2 rounds to go
  • Hi @Dandelion, I had a mastectomy & have had 23 rounds of radiation, 2 to go. I was recommended to use Sorbolene & was given Novosone, a mild steroid cream to use morning & night. I didn't get any redness until about half way through & one spot of mild irritation in the middle of my chest higher up, it was like dry skin & a bit itchy. My underarm is a bit sore too now. They said my skin is doing well. The sorbolene does tend to sit on the skin but absorbs over time. They also recommended "sorbolene baths" where you smother yourself in it & let it absorb which I have done a couple of times. The radiation oncologist also said to keep up the exercise as the skin tightens up. Is there a breast care nurse you can see in between visits with the radiation oncologist? They will advise you. Also the therapists who administer the radiation are very knowledgeable. We all react differently, try not to worry too much but make sure you tell them your concerns.