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Alsopt's avatar
Alsopt
Member
10 years ago

Going mental

I'm going nuts 4 x acs 8 taxol mastectomy expander refills what set me off today was calling onco whom of course was busy I can't feel my feet in desperation I called bc nurse hum it appears my nerves are gone but biggest shock you have done massive treatments maybe we will stop chemo wtf my intention was its killing my nerves apparently 8 taxol s and the rest is enough but I'm scared I don't finish its killing me now if I finish chemo my bodies not taking it anymore nor my mind ladies anyone else stopped chemo? Still 5 weeks of radio I'm so confused apparently there's like a .5 now if I stop chemo one part of me wants to stop another is soo scared say I stop then it comes back? Can't do it advice please 

 

 

chemotherapy
mastectomy
radiotherapy
Reconstruction
  • Meags's avatar
    Meags
    Member
    10 years ago

    Hi there,

    I'm not sure my experience is much use to you, but wanted to let you know someone is out there thinking of you while the wiser and more experienced heads around this network get a chance to help you out. In the meantime, friends who have had this problem (neuralgia) say it does mostly resolve over time and you might find some useful stuff on the cancer council website.

    My oncologist (who is an Associate Professor and recently featured in some media coverage about some new research) told me that if anything ever felt too hard to stop and we would review the approach together Nothing really went seriously wrong for me during chemo, so I never had to test his advice, but I did have the impression you can stop, scale back, defer if you need to without it being disastrous.

    Hang in there - I'm sure you'll get some good advice from this group soon and your oncologist s/he has a chance.

    Very best wishes

    Megan

  • Cook65's avatar
    Cook65
    Member
    10 years ago

    Hi Alsopt

    the only thing I can suggest is writing down all of your concerns and questions and make an appointment with the oncologist. Have an open and honest conversation with them so that you can make an educated decision. Ask them to give you % of risks etc.  No one undertakes chemo lightly. It's a difficult and rough road. Only you can make that decision either way, so get as many facts as you possibly can. All the best. Karen xox