If you want to chat? I just wanted to share what I have been through and learnt so far...*warning it
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Hi Shelli, hope you went allright with the chemo today. I am on TAC what they introduced to me as their "golden" treatment; I had no idea what they were talking to me about at the time. And then I give myself a white blood cell injection the next day supposedly cause it's killing all mine. I also have a finget issue; swollen fingers with hypersensitive fingertips - they don't know what it is but I have just started some medication which we hope reduced swelling (quality of life ain't that flash); plus my eyebrows are practically zero which makese look a little scary. I have to have some type of humour because otherwise I would be constantly crying and boy am I sick of crying. I will try some of your food and bev ideas especially the peppermint tea. I can't seem to find a tea I like and I was a bit of a tea drinker. Again hope you are ok and I presume the chemo side effects will hit you in a couple of days - everyone's different apparently. Take Care.0
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Hey! I have the right arm swelling and hand as well - ALSO i have the nails and fingers that are so painful i cant open anything and typing even hurts so i am with you there - i am hoping that will fade after the chemo. Humour and mindset are everything. If you can find something else to focus on apart from being sick - its so hard as you are so tired - but its totally worth it - it helps with the looking forward to doing something! The computer is my friend! Good - peppermint tea (or any combianation of the mints) is good and doesnt hurt the throat - or any spearmint style tea. I like the Madura from Coles/Woolies.. if that helps! I love tea - if you can get nice leaves as well and brew a nice batch and drink out of a nice tea cup - always helps. Yep Thursday will be my whacked out bed day! :-) Speak soon and chat any time you want especailly if you need ideas on the food and drink or anything else! :-) x
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Donna, thank you for your kind words. it really means a lot. our experiences seem to have the same thread with different variations. I am also over any sugar coating - just talk to me like a normal person. Not "that sick person" there are more posts to come - i just didn't want to offend anyone with my more blunt approach but it seems to be resonating with some people so there will a next edition coming soon! :-) xx
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Hi Shelli, been thinking of you and what you must be feeling like today. All my thoughts are with you. I had an emotional day yesterday, don't know why just couldn't keep the emotions in check which is something I have to work on. I have drunk numerous peppermint teas and am going to coles today to get spearmint or any other mint their is. I have a little more energy to plan and cook this week; the drugs seem to detract me from any interest in trying to cook anything - it's just stuff anything in my mouth that looks like it could be slightly nutritious. I have lost quite a bit of weight so my confidence is not sky high and of course hairless, my eyebrows have disappeared - what else can I say. I don't how much we can say on this forum so won't go into too much detail, but hope someone is looking after you and you are going ok.0
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Hi Shelli
I realling feel for you - all that you're going through. I'm guessing you're earlier in your journey than I am. I was diagnosed in 2010, and had my first mastectomy and chemo then. I was pretty lucky - even with the drain bags etc, I didn't have any arm swelling. Certainly my hands and fingers hurt - this is still happening. It's a know side effect of Arimidex (don't know whether you're on that). It finny, the Mc Grath nurse I had at the time said all the Arimidex sid effect stop after a while, but they dont.
I found during my chemo cycles I couldn't stand coffee and some foods, which is normal. Your idea of pepermint tea is great - mine was rose tea.
II'm cancer free apart from one stubborn bit of metastasised cancer in my lower back. That's been there since 2010. I now need a six weekly injection for that, as well as continuing on with the arimidex. I read through your problems and feelings and consider myself very fortunate. THough I'm not well enough to go back to work, which is hard financially. But coping ok at the moment. Need to keep up with my yoga, relaxation techniques and sound therapy.
Take care
Here when you want to chat-if nothing else, I'm a good listener.
Hugs and love
Kathleen xxxxxoooooo
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Hi Shelli
I feel awful-I dont believe I ever answered this post! How rude of me!
I thankfully finished my chemo in 2011, following my first mastectomy. That one was the grade 2, & the worst. The second mastectomy I chose, because even though the cancer was much smaller, & I didnt need more chemo, I just didnt want any more boob present. And, then, much to the chagrin of my breast surgeon, I chose not to have a breast reconstruction.
Time has gone past, & I still have a bit of secondary that had metastasized into my sacrum. So thats why I still take arimidex.
So not going bad. I can relate totally to your various feelings whilst experiencing chemo cycles- its horrid. I went off coffee, meat, lots of things. Even steamed veggies tasted off.
Where are you up to now? Hope you're on the up, & finished chemo. Let me know. Tomorrow, I'm going to have a terrifying MRI. They're giving me sooky juice (light anesthetic), so let's hope I nod off in the godawful tube!!
Take care.
See your posts on facebook too
Love from
Kathleen xxoo0 -
Hi Shelli,
I've been reading your posts and also the post about asking for ideas or tips for newbie's. I suppose I'm classed as a newbie 3 weeks ago. I couldn't ever imagine what your going through or what lies ahead for you but you seem to have the most positive attitude and a true fighting spirit.
Just wanted to say that reading through the tips that others have left for you have been awesome and I suppose something that will help me possibly down the track if I have to have chemo.
Just wanted to say Hi and lovely to chat with you
Hugs to you Shelli
Leisa xxx
Ps: Would you mind if I added you on facebook?
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Hi Shelli,
I've been reading your posts and also the post about asking for ideas or tips for newbie's. I suppose I'm classed as a newbie 3 weeks ago. I couldn't ever imagine what your going through or what lies ahead for you but you seem to have the most positive attitude and a true fighting spirit.
Just wanted to say that reading through the tips that others have left for you have been awesome and I suppose something that will help me possibly down the track if I have to have chemo.
Just wanted to say Hi and lovely to chat with you
Hugs to you Shelli
Leisa xxx
Ps: Would you mind if I added you on facebook?
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