like a kick in the guts
Comments
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I'm so very sorry to read about your diagnosis and predicament. It seems like you've had a very rough ride, but I'm glad to read that you have a strong and loving husband who is by your side at this difficult time.
You have definitely come to the right place with your questions. I am unable to answer them but I know someone on this network will have the answers you are looking for.
I just wanted to let you know that your are not alone. Everyone who writes here has walked at least part of your journey in their own lives. Please stay in touch and let us know how you are doing.
Sending strength, hugs and healing energy your way.
xxx
Jeanine
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I'm so very sorry to read about your diagnosis and predicament. It seems like you've had a very rough ride, but I'm glad to read that you have a strong and loving husband who is by your side at this difficult time.
You have definitely come to the right place with your questions. I am unable to answer them but I know someone on this network will have the answers you are looking for.
I just wanted to let you know that your are not alone. Everyone who writes here has walked at least part of your journey in their own lives. Please stay in touch and let us know how you are doing.
Sending strength, hugs and healing energy your way.
xxx
Jeanine
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I also,am sorry for what you have experienced and continue to experience.I don't have personal experience with what you are asking,but I am sure that many ladies do.Denise,if you look at the top of this page,click on 'my blog ' then when you are in that,click on 'create a post ' then type what you want to say.When you have finished typing,I think you just click on 'post'.This way,your post will come up on its own,and just not connected to someone else's,and lots more ladies will be able to see it:) I hope this is helpful and hasn't confused you too much!!Cheers xoxRobyn0
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I also,am sorry for what you have experienced and continue to experience.I don't have personal experience with what you are asking,but I am sure that many ladies do.Denise,if you look at the top of this page,click on 'my blog ' then when you are in that,click on 'create a post ' then type what you want to say.When you have finished typing,I think you just click on 'post'.This way,your post will come up on its own,and just not connected to someone else's,and lots more ladies will be able to see it:) I hope this is helpful and hasn't confused you too much!!Cheers xoxRobyn0
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I am sorry you r going thru so much. Knowing we can share our experiences is a fantastic sounding board for people like us and for our family and friends I guess who don't know how to help and want to know how. There's this 40 yr old bloke named Question, remember him he was interviewed by u think Ray Martin , I could be wrong and he's done so much despite his been wheelchair bound and experiences pain every day. To me he's an inspiration. I do love your last sentence; listen to your body and relax and have a cup of tea.0
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I Denise. You really have been through a lot in such a short time. When I was in worst pain during undiagnosed fracture from bone mets my oncologist referred me to a pain specialist and I was using slow release patches, norspan and fentanyl. Once fractured bone was replaced (after several unsuccessful attempts to stabilise it) I have had minimal pain. However, I do hydrotherapy exercise 2 or 3 times a week. Land exercise is almost impoosible but I find the warmth of hydro pool very soothing. I do hope you can get that pain sorted because life is so much more bearable hen pain is reduced. I have been living with bone mets for 7 years and generally they have remained relatively stable. There are plenty of good drugs so make use of them when needed. Love to you and good luck on your journey. xxxx
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I Denise. You really have been through a lot in such a short time. When I was in worst pain during undiagnosed fracture from bone mets my oncologist referred me to a pain specialist and I was using slow release patches, norspan and fentanyl. Once fractured bone was replaced (after several unsuccessful attempts to stabilise it) I have had minimal pain. However, I do hydrotherapy exercise 2 or 3 times a week. Land exercise is almost impoosible but I find the warmth of hydro pool very soothing. I do hope you can get that pain sorted because life is so much more bearable hen pain is reduced. I have been living with bone mets for 7 years and generally they have remained relatively stable. There are plenty of good drugs so make use of them when needed. Love to you and good luck on your journey. xxxx
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It is good you are letting everyone know how you are feeling. So important to share. I am still in the throws of finding out my final diagnosis re malignancy as I was told it is cancer then today the surgeon is not sure till surgery next week.
Hard yards for you atm and I am hoping things improve for you soon. I am reading this and thinking the appt for you was today? How did it go?
Take care
Shiney 50
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Thanks Julie, my problem is I can't get out on my own. I have been to hydro pool, I must pick it up again. My lovely sister and husband would help me to do it again. The problem is I cant bend down because of three fractures and a break in my lower back, and of course the bone mets. Surgery was ruled out about a year ago because I had to much cancer in that area. I have pain management in place and a lovely specialist. But if I take to many drugs I am so drowsy and spaced I sleep most pf the day away. If I dont take them I am in pain. We continually move things around to try and find the right balance. We just , we keep on keeping on. Have a happy day. Xxx
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Don't know where you live but here in the west we have a lovely group of volunteers that we can access through breat cancer support. They helped me out with getting to hydro when I was unable to drive and needed assistance to get in and out of pool. Real angels! I truly hope you find that balance of pain meds to suitably manage the pain so you are able to access hydro again. xxx
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Oh Denise I know I'm not as strong as you I do not want to go through all that pain you are experiencing expecially the bone cancer which as youre probably aware I have cancer again in my spine. Back in 2011 the cancer in those areas were dealt with and I was left with just scarring and I had a hard time convincing RPH that I had cancer in my bones, spine, hips etc. This time around it caused the breakdown of T1 and T8 and yeah I've been having nerve problems or spasms I guess, wearing a brace and pain. I am resuming a higher dosage of supplements called OPC3 with calcium of course and Advanced B. These sups are Isotonix which I partnered up with the company Market Australia and damn it all I'm going to for the first time beat this cancer. I've never ever said that because I was more concerned with managing my cancer. Well I guess I can do both. Now and then it gets me down because well, I hate pain but as I continue to diarise my illness I will keep in touch. i pray for you, and I havent done that for yonkies that you will one day get better. I don't know whether a cure is possible just yet but if it comes soon I must help all those other types of cancers so they can live a 'full' life too. Donna
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Robyn I can't see that I responded to you but thanks so much for your thoughts and yeah hugs are good even Cyber ones. Back to you aye.
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Hi Donna, yes you are as strong as me, we are all strong. Thankyou for letting me know what treatments you are on. I will discuss this with my oncologist/pain specialist. It is all such a help. Lots of love and support, Denise.
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Hi Donna, yes you are as strong as me, we are all strong. Thankyou for letting me know what treatments you are on. I will discuss this with my oncologist/pain specialist. It is all such a help. Lots of love and support, Denise.
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