No longer feeling alone

2

Comments

  • Johjoh
    Johjoh Member Posts: 50
    edited March 2015
    My chemo had a few hiccups. I had a reaction 10 minutes into it so they had to stop it and they gave me meds to counteract the reaction, then had to wait 30 minutes to continue chemo. I was suppost to be there for 3 hrs. I arrived at 9.30am and left the hospital about 3pm... Very long day!

    I'm into the 3rd day after having chemo and feeling ok, but I do get tired easily. I have taken 3 months leave from work. I don't know how people can work whilst on chemo.

    Joh
  • Kb
    Kb Member Posts: 54
    edited March 2015
    Poor thing. They had to do 4 needles for me, I'm booked into get the line put in for next time whatever they call it. Yes I was booked 10.30 and left after 2. I'm an at home mum thank goodness and my partner lookin after me at moment I'm lucky. You did have a very long day you would have been exhausted. We'll I send you hugs that all stays we'll now. My mouth is annoying me most and with the mouth thing my anxiety probably does not help so I'm lookin to get some relief I hope it gets here now, :-)
  • TheresaW
    TheresaW Member Posts: 34
    edited March 2015
    Sorry to hear your diagnosis. I'm halfway through my treat 4 AC & 12 taxol & carboplatinum plus radiation after that. I also will be having the genetic testing but they have suggested to wait until chemo is over. I had breast conserving surgery but unfortunately had to go back to have lymph nodes out..I'm actually in hosp atm, my temp went over 38 this morning so they are pumping iv antibiotics in me..I haven't had dreadful side affects from Chemo just slight nausea after treatment & fatigue plus the hair fall out..I hope you have minimal side effects & get thought this feeling okay..thinking of you
    Theresa
  • Johjoh
    Johjoh Member Posts: 50
    edited March 2015
    Sorry to hear you are in hospital and I hope all goes well for you and you get better soon.

    I've just had my blood test for genetic testing and hope to get the results in 4 weeks.

    My worst side effect I had from chemo was my arm got really sore at the catheter site and I ended up with a blood clot so the doctor has put me on blood thinner medication that I have to self inject into my stomach every day. The other side effects I had was the usual feeling tired, my tongue felt burnt for a week, & a bit of nausea and today I noticed my hair is starting to fall out.... Think it will be time to shave it soon.

    I have just been going along with it all and being positive and trying to keep a brave face and not letting this situation get to me.

    We need to stay strong and kick this cancer in the butt!

    ????
  • Kb
    Kb Member Posts: 54
    edited March 2015
    Theresa I hope you are doing better now sorry for late message. Are you home now?
  • Kb
    Kb Member Posts: 54
    edited March 2015
    Jo joh you are doing so we'll. don't have to be brave all the time. I had 5 to 6 days in bed. I got my period day before chemo and my sons virus I've had all sorts goin on and my rotten toof playing up now and I can't get my head around a dentist just now, It was a crap start. I Am loosing a bit of hair last few days, and trying to brave it and call a dentist I ended up calling the cancer hotline bawling. So me thinks now that's enough crap ha ha. It was a good release to cry and be the it is crap and that this is what coping really looks like. I send you big hugs. Jojoh do you have support people? Do you live in Brisbane. I ask because if you needed a phone call at any stage. Also the hotline are going to ring me so I can have phone counselling which will be a great help I feel.
    I send you and Theresa big hugs :-)
  • Johjoh
    Johjoh Member Posts: 50
    edited March 2015
    I live in Melbourne. I have support from my family and I can contact the breast nurses when I need them and I know there is more support out there. I did loose it and had a cry the day I found out I had a blood clot, and was so close to call the breast nurse but I couldn't find the number because I put it in a safe place but I forgot where the safe place was. I sort of got over it because then I kept my mind busy trying to figure out where I put the number. I found it the next day on my fridge!

    I am so worried of getting sick and picking up an infection so I have stayed home the last 3 weeks. My only outings are to my appointments. My 2nd chemo is on Tuesday, then I'll have 2 more to go.

    I really love this blog because I can talk to people like yourself and support each other by discussing our treatments and so on. It does make me feel better.

    I really hope things go smoothly for you from now on and thanks for everything, you have no idea how talking to you helps me.
  • Bearteggie
    Bearteggie Member Posts: 326
    edited March 2015
    I am sorry to hear you developed a blood clot and have to self inject. I too developed a blood clot after a pic line was inserted after my fourth chemo round. I am quite excited now because I only have two more injections out of 90 to do and then I am finished with that. I was very upset at the time as I was already very uncomfortable from surgery etc.

    We do need to stay strong but don't deny yourself a good cry (in the shower) sometimes. It is a grieving process you are going through too and you are allowed to feel all those different emotions that are part of it.

    You are doing a great job of staying positive and before you know it your treatment will be over.

    Take care.

    Joy xx

  • Kb
    Kb Member Posts: 54
    edited March 2015
    Lol the number on fridge that's beautifully funny the universe delivered the distraction you needed. It is great to vent and cheer each other up isn't it. Glad you have the support you need fab. I havnt been out much either, in fact I get anxiety with the small outings I've had, but hey we will get there, doing what is comfortable for us is what we do right now.
    You are not far off. Now Jo awesome
  • TheresaW
    TheresaW Member Posts: 34
    edited March 2015
    Yes Kb home now, all okay, they couldn't find the source of the infection. Had chemo on thurs & my WBC was very low again but they went ahead thank goodness, I don't want to drag this chemo business out any further than it needs to be..hope everyone else is doing well as can be..day by day is how I'm doing it at the moment.

    Thinking of you all
    Theresa
  • Kb
    Kb Member Posts: 54
    edited March 2015

    WBC whats that is is your blood count Theresa?? Oh I totally get the not wanting to drag out business, i'm 1 done 5 to go thats how I look at it too. Sounds like you have had it rough also Theresa big hugs for you. Geez I think I almost had the whole list of symptoms plus a virus and sore tooth ikkkkk

    take care each day at a time i agree.

  • Johjoh
    Johjoh Member Posts: 50
    edited March 2015
    Thanks Joy, I am still getting used to self injecting myself. I am getting better at it. I am also on other injections to boost my white blood count.... That's an extra 4 needles after every chemo. So I have 12 of them to go. Can't wait to my treatment is over.
    I'm glad you are nearly finished injecting yourself as I know it isn't pleasant. Good luck with everything!
  • TheresaW
    TheresaW Member Posts: 34
    edited March 2015
    WBC is white blood count, still very low this week also.


  • TheresaW
    TheresaW Member Posts: 34
    edited March 2015
    WBC is white blood count, still very low this week also.


  • Johjoh
    Johjoh Member Posts: 50
    edited March 2015
    Don't know if tooth problems are usual with chemo, but I do get sore gums now and then. I also had a blood clot after my first chemo so I've been self injecting every day. (Hate doing it) Doctors told me I'll have to do this until the end of my last chemo which will be at the end of July.
    I was diagnosed with early breast cancer and when the doctor told me I had to do chemo I was surprised, I thought I would only need radiation but with triple negetive Breast cancer I think it is normal. I'm having chemo as a safe guard, I have 2 more to go then radiation for 6 weeks. I'm not sure whether to have a double masectomy still trying to decide.

    Hope all goes well for you!

    Joh

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