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Hi Cas
I also have a Seroma but mine is a leaking one...blew up like an egg one night on side of boob and then has been leaking ever since ....its a really slow process for me and I am being a couch potato...I have the PS, breast nurse and GP look at it and am also on antibiotics again so a check up is a good idea
PS told me the body is trying to heal and sends fluid to the site bit it is tuff going
Thinking of you
Elizebeth0 -
Thanks Elizebeth, (unusual spelling, I like it)
It is possibly a seroma. I'm supposed to be sitting around like a couch potato but I don't do sitting around withouta fight so I have been travelling to Brisbane each day and busting my butt in a journalism workshop for 4 days so far with another 2 to go. I'm ok in the morning, I wear very soft sports bras each day with my light posthetic. I'm fine until about 4pm then I have to take the bra off. As of Friday I can have several days of rest before my first oncology appointment on Wednesday. Not a chemo appointment just the pre chemo appointment to decide what to do. My greatest worry is my uni work and trying to stay on schedule. I've studied for almost 4 ye,ars I'm 14 weeks from finishing and now this. I'm not happy about having breast cancer but I'm damn well not beaten by any means. At least I have good reason for going grey?Thanks for thinking of me, I'm constantly amazed at the comraderie and empathy shown by the lovely ladies here.
Cas0 -
Once I finally saw my oncologist the chemo started fairly quickly. Which was a food thing, I am a big believer in get it over with!!
As I said my surgery was cancelled a couple of time- 3 actually- and I was finally referred back to my oncologist to make sure there was nothing sinister going on as my blood counts had been a bit low. The surgery was last cancelled in July. It's taken since then to see oncologist, have tests, get results, get results to PS and finally to get a new surgery date...so yeah getting good at being patient!!
Trying to spend time getting organized for Christmas as I will be out of action for much of Dec and also trying to get fit and well so no more cancellations. That in itself takes lots of time. I am full on into juicing, meditation, exercise!! I laughed with a friend the other day that it's almost a full time job just stayng well!! Oh yeah I also massage my arm daily for my lymphdema. Occaisionally I work, look after the family and house too!!! LOL. Hehehehehe now I sound like a whinger. We all do what we have to do.
I am glad your arm a bit better. Also glad Mum Janey on to you to go to the Dr.
Take care.
Paula
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Today I took the day off my intensive workshop and I did nothing all day except talk on the phone, sit on Facebook and I finished my Honours application.
I thought I would get into the swing of scarves and things so I wore a scarf around my head. I kind of like the feeling so I might continue to wear them so that it won't be so much of a shock when I have to.
In my travels online this morning I came across this shop.
http://www.hatshow.com.au/
They have the cotton beanies that I have been looking for and I love some of the scarves and the fringes. I think I am going to have a wardrobe of head wear soon.
I am getting impatient now to go and see the oncologist so that I know what I'm in for next. I don't trust the office staff at his rooms because they have already mucked me about with appointments twice. Can anyone tell me whether he will request blood tests or anything that I can do between now and then to speed the process up? I don't want to have waited a month to see him and then find that he needs more information.
Today my mother insisted on potting some Agapanthus that I have been given. My uncle lives on Mt Tamborine behind the Gold Coast and the agapanthus are growing wild in the bush near him. Someone has obviously dumped them and they've taken off. I just love blue flowers, any variety so I'm thrilled to bits to have aggies everywhere in the ground and in big pots.
So Janey, I've been very good today, I relaxed and I even had a sleep this afternoon for 2 hours.
Cas0 -
Today I took the day off my intensive workshop and I did nothing all day except talk on the phone, sit on Facebook and I finished my Honours application.
I thought I would get into the swing of scarves and things so I wore a scarf around my head. I kind of like the feeling so I might continue to wear them so that it won't be so much of a shock when I have to.
In my travels online this morning I came across this shop.
http://www.hatshow.com.au/
They have the cotton beanies that I have been looking for and I love some of the scarves and the fringes. I think I am going to have a wardrobe of head wear soon.
I am getting impatient now to go and see the oncologist so that I know what I'm in for next. I don't trust the office staff at his rooms because they have already mucked me about with appointments twice. Can anyone tell me whether he will request blood tests or anything that I can do between now and then to speed the process up? I don't want to have waited a month to see him and then find that he needs more information.
Today my mother insisted on potting some Agapanthus that I have been given. My uncle lives on Mt Tamborine behind the Gold Coast and the agapanthus are growing wild in the bush near him. Someone has obviously dumped them and they've taken off. I just love blue flowers, any variety so I'm thrilled to bits to have aggies everywhere in the ground and in big pots.
So Janey, I've been very good today, I relaxed and I even had a sleep this afternoon for 2 hours.
Cas0 -
Glad to hear you've 'behaved' today Cas
I love blue flowers too. I have lots of aggies growing in my garden mostly blue but a couple of white ones. They are considered weeds by some councils here in Melbourne but fortunately not in mine. They remind me of my grandmother's garden. Lovely old fashioned flowers.
One of my favourite quotes - "Happiness held is the seed, happiness shared is the flower".
So pleased you took time out today.
Love Janey xxx
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Sometimes a "me" day does wonders for the soul.
Take care
Paula 0 -
Sounds like you achieved lots. Glad your legs ok
hehehe
I have fond memories of wig shopping believe it or not. I had to do it twice as after my recurrence my hair was still short and so the original bob was no good...at least not at work where clients had no idea of my cancer. Would have had a hard ti me explaining how my hair suddenly grew overnight. On both occaisions I took two girlfriends who are a riot and my daughter. We laughed and laughed. It's great that you go while you still have hair so the ladies in the shop have an idea of your cut colour etc... That is unless you are going to go radical and change your look completely. I imagined I would go blonde...just because I could, but it looked awful. The nurses in oncology told me my hair would start to fall out two weeks after first chemo. They were right to the day, both times. It was a great comfort knowing I had the wig there ready if I needed it. The funniest thing was the second time. I had ordered this really short wig with streaks. It was a different colour to the one I tried on at the shop. I picked it from one of those hair samples. I went to pick it up and it looked awful. No worries she said, I will send it back and a new one will be here next Thursday. I nearly died...."I need hair on Monday" I cried as my hair had started falling out already. Luckily there was a different wig that I actually liked better in the shop and I took that one. The lady was really nice and shaved my head for me as it had started to come out in clumps.
Anyway that's my wig(or one of them...have many)story.
A drive sounds like fun. Love Byron Bay.
Enjoy yourself.
Paula 0 -
I'm taking my, until just lately, very staid mother along with me. Something is going on with her that I can't put a finger on. All of a sudden she is talking about getting streaks in her pepper and salt coloured hair. I'm like "really?". I think it's a great idea but it is so out of character for her to even think about it. I am wondering whether she's watching me and thinking lifes too short to not be having some fun. I hope so.
Anyway, there will be a lot of giggling going on I can assure you. I can be as silly as a cut snake when the mood takes me and I won't think twice about choosing a bright green wig just for a reaction :P My mother just pretends she doesn't know me hahaha.....
Please feel very sorry for the oncology doctor and nurses who are about to witness cyclone Cas. I only do what I'm told if I like the idea
I would be in a state of panic too if my wig wasn't going to be available mind you I've been having a lovely time looking at scarves and fringes lately. I'm going to see if the Cancer Council sell the beanies and scarves and fringes otherwise I will order them online. When I know whether I will have chemo or not.
Cas0 -
The shop,I went to was amazing. It was in a little country town near where I live. At the back of a hairdressers. Apparently she was horrified with the lack of this service that she set one up herself. It was in a private room. She had everything, hats, scarves bandanas. 1st diagnosis I hardly ever wore my wig as I live in the tropics and it was way to hot. Only at work which was air conditioned or really special occaisions. I rocked the bandana look. Loved them as they were cotton, had so many. Also had a great hat for when I went in the sun. It was lined with a tight t-shirt lining that made it snug on your head so no chance of flying off in the wind. My friends and I would laugh if we went out to dinner and I took my hair out.
The second diagnosis wore my wig a bit more as it was cold and it kept my head warm
Great idea to wait and find out first though....don't want to be stuck with a green wig you don't need. LOL.
I wish your oncologist good luck when they meet you. Hehehe
Cheers Paula
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Do you think I should warn them? Or just have the fun of seeing their faces? Meh! Warning people is overrated, I like to see them squirm.
I wondered whether the wigs are hot? I'm on the Gold Coast and right now it is almost Townsville type of humidity. I don't mind the idea of scarves but I can't cope with sympathy (unless I want a seat on the train) or with people staring. I am hoping to be mentoring at uni next year so unless I want to frighten the teenagers I'd better get used to a wig.
I'll tell you what though. I never had large breasts but I always wore a bra. I'm now getting very used to the idea of not wearing one and just wearing a camisole and a shirt. No one has noticed that I'm missing a breast. I was finding that even wearing very soft sports bras with a prosthetic was creating a bruise along under my scar and I was getting swelling under my arm. 3 days of no bra and the swelling is almost gone as is the bruising. I'm going hippy No shoes, no bra and soon to be no hair :P Bring it on man...hahaha
I'll report tomorrow night on how much the Cancer Council had in the way of wigs and hats and things and on how much fun and giggling went on.
Cas0 -
Cas, you're a laugh a minute. Just brilliant!
I hope your energy and enthusiasm doesn't falter. Well done you.
Love Janey xxx0 -
Love you too Janey ...mwah!...
Paula, I had a ball at the Cancer Council. The lady, Jenny, is just the nicest person. There was giggling but no flourescent green wigs.
I have a gorgeous wig, 2 fringes, one to wear at the front, one at the back (with a hat or scarf) and 3 hats. I was offered as many things as I wanted to take and I can borrow them for as long as I like, no questions asked. They didn't even want me to sign for anything nor did they want any information from me. I was almost flabbergasted (a large task where I'm concerned).
They even gave me a booklet that has instructions to make some of the caps that I borrowed. My mother has worked out that she can make them from my old tshirts or $5 tshirts from Best and Less. Doncha just love clever mums?
I'm booked for the next Look Good Feel Better makeup morning on December 3rd and I've been told to phone any time I want to talk to anyone and come back whenever I like to exchange hats, scarves or wig.
They were just the most fabulous people I've met yet.
Queensland Cancer Council - Southport, well done ladies and guys.
Cas0
