Looking for support for Lobular carcinoma (LCIS)

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mingi
mingi Member Posts: 3 ✭
edited August 2013 in General discussion

Hi

I am looking for anyone with Lobular Carcinoma Insitu who can give me some support and would like to know what experice they have had with the condition.

Thanks

Cheryl.

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  • Cherylek
    Cherylek Member Posts: 197 ✭
    edited March 2015
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    There is a great book titled Breast Cancer taking control by Professor John Boyages which explains all aspects of BC from diagnosis through to different treatment options. Definitely worth a read or maybe try typing LCIS in the search engine on the top right of this page. Hope this helps. Cheryle :)
  • mingi
    mingi Member Posts: 3 ✭
    edited March 2015
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    Hi

    Thanks for replying.

    It has been 2 years since my diagnosis. It was on the MRI that showed the first signs of LCIS. I then had a vacuum assited biopsy which showed positive.

    Six months later I found another lump in my right breast .  The results showed LCIS but not invasive yet. My specialist suggested having both my breasts removed. She said that I had a chance of 30% of it turning it breast cancer. I have decided to take a chance.  I had another vacuum assisted biopsy on the left breast 6 months later & it showed suspicious cells. So I had to have another lumpectomy which showed LCIS

    I have a Ultra sound every 6 months, a mammogram once a year & a MRI once a year.

    I just don't like living like this with the fear & worry hanging over my head all the time.

    How often do you get tested?

    Regards

    Cheryl

     

  • adean
    adean Member Posts: 1,036 ✭
    edited March 2015
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    Hi Cheryl, my mum had bc at 35 so I have had mammogram every year since I was that age I'm now 52 my tumor did not show up on mammogram I found it myself although it did show when I was sent for scans on the ultrasound and MRI and cat scan, at least your in the system and are being monitored . Living in fear is always there even after a cancer diagnosis and even still when it's time for check ups. You are doing what you feel is right for you and you have that choice to be diligent. It's something that will always be part of you but you seemed we'll informed. Regards adean
  • hilsandglen
    hilsandglen Member Posts: 95 ✭
    edited March 2015
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    I had a lumpectomy then needed a mastectomy the next day ! was diagnosed with an 80mm  invasive lobular cancer with lots of smaller  invasive cancers as well as  invasive ductal ca with4  metastatic nodes Oestrogen +++ and Her2+++ chemo +rads+herceptin+overy removal+arimadex. this was in 2011 . And I too find it really dificult to put this behind me. But I am learning how to live with it :) What I do know for sure tho is that this is a fantasic forum for us all to meet, vent,cry , dispare and also find joy and support. I am continuing to find a new life for myself ( love my gardening and have gone back to school ! ) I also have found a Dragon boat club for breast cancer survivors - great exercise and great support from other pink sisters. All the best and keep in touch Regards Hilary x

  • Sarah P
    Sarah P Member Posts: 51
    edited March 2015
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    Hi Cheryl

    I was diagnosed with LCIS earlier this year, and because I have a strong family history of breast cancer, I decided to go ahead with a double preventative mastectomy and reconstruction at the end of August. It is now just over 5 weeks since my surgery so I am mid way through the recovery period. I have found it all more challenging than expected, but am still glad I have done it, so as not to have the threat of breast cancer, and its treatment, hanging over my head.

    Everyone's situation is unique to them. It is a very big surgery and recovery period, so it is an important decision to research and make with your doctors. I have started a blog so as my family & friends can follow my progress, but I thought others with similar conditions might be interested too. It is http://watermelonheartsblog.com/ and you can find more info in the 'about' and 'resources' tabs at the top of the home page.

    I hope that is of help and wish you all the best with your reseach and decision making. 

    Sarah

  • Sarah P
    Sarah P Member Posts: 51
    edited March 2015
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    Hi Cheryl

    I was diagnosed with LCIS earlier this year, and because I have a strong family history of breast cancer, I decided to go ahead with a double preventative mastectomy and reconstruction at the end of August. It is now just over 5 weeks since my surgery so I am mid way through the recovery period. I have found it all more challenging than expected, but am still glad I have done it, so as not to have the threat of breast cancer, and its treatment, hanging over my head.

    Everyone's situation is unique to them. It is a very big surgery and recovery period, so it is an important decision to research and make with your doctors. I have started a blog so as my family & friends can follow my progress, but I thought others with similar conditions might be interested too. It is http://watermelonheartsblog.com/ and you can find more info in the 'about' and 'resources' tabs at the top of the home page.

    I hope that is of help and wish you all the best with your reseach and decision making. 

    Sarah

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