When your child is ill (not cancer)

Maria333
Maria333 Member Posts: 191
edited March 2012 in General discussion

I forgot about my ailments, aches and pains while I was at my 9 year old daughters bedside for 10 days.

She had not been well for some time, a wrong diagnosis because she did not have the classic symptoms and doctors not listening to me to check her chest meant that she got the attention she needed later rather than sooner.

Once finally diagnosed as having pneumonia she was given antibiotics in emergency, the Dr. said there was something else she could not put her finger on - her instincts told her not to let us go until we could have further tests and she could confer with her collegues. Something else was showing on her xray which did not look right.

We had been to emergency a week before and were turned away being told she did not have appendix problems. Duh - yes I knew this, just listen - it is her chest. My fear was that she was having a heart attack. Our poor darling never complains about pain so I knew this was serious.

After emergency surgery for pleural effusion and in childrens icu for a day and a night. Our darling daughter had a drain in her side with suction. Being slowly weaned off the morphine and as the days passed removing as many canulas as we could from the five canulas she awoke with in icu.

The strong antibiotics given intraveneously were not working all because we were given antibiotics and morphine at the very beginning there would be no culture grown. So it was trial and error. Her temperature would continue to spike. The surgery team would come every morning, prod and poke, listen to her chest. Then the respiratory team, then the infectious diseases team, then the physio. OMG how exhausting. The hospital was doing everything in their power.

I was not eating well (she was not eating at all) and not sleeping well - my ankle pain would annoy me late at night so I would pace up and down the ward to loosen and stretch. I remembered I had not taken my fish oil for days so I sent my husband a text message to put them aside to send in for me. Days later the pain went away, thank goodness for fish oil tablets.

I watched as our darling girl screamed when blood had to be taken. I stood there when new stronger antibiotics were given via IV, she screamed it was stinging. I demanded they stop, I remembered how my veins hurt when I was having chemo. OMG I thought this is just like chemo. the meds are killing all her bugs, bad ones and good ones. How can this be happening.

I prayed, I meditated, I sent her healing energy,  I called out for every favour from all those I knew and even all those ancestors that had passed. Angels, fairies (my girl loves fairies). So here we are at home. One day at a time. Slowly healing.

Comments

  • traxx65
    traxx65 Member Posts: 252
    edited March 2015

    Hi Maria, what a traumatic time for you all.  I know I would be devastated having to watch one of my children go through all that.  Poor little thing must have been so scared.  (I know I was when I had the pleurodesis back in January and I am a lot older than 9).

    I want to wish you both all the best and hope she starts to feel better soon. 

    Take care and best wishes.

    Tracey

  • MandaMoo
    MandaMoo Member Posts: 500
    edited March 2015

    Oh maria

    How difficult for you.  I hope that she is healing well and that you are both resting together. 

    much love,

    Amanda x

  • Amy
    Amy Member Posts: 233
    edited March 2015

    Love to you and your family Maria.

    I'm glad she's back home.

    Amy x

  • Amy
    Amy Member Posts: 233
    edited March 2015

    Love to you and your family Maria.

    I'm glad she's back home.

    Amy x

  • Di_BCNA
    Di_BCNA Member Posts: 896
    edited March 2015

    Oh dear, they just seem so little and vulnerable when they're sick, don't they?  So glad to hear your daughter is on the mend, though.  Even if it is a slow process, it's still sounds like she's heading in the right direction.

    *hugs to you*

    Di

  • Di_BCNA
    Di_BCNA Member Posts: 896
    edited March 2015

    Oh dear, they just seem so little and vulnerable when they're sick, don't they?  So glad to hear your daughter is on the mend, though.  Even if it is a slow process, it's still sounds like she's heading in the right direction.

    *hugs to you*

    Di

  • Maria333
    Maria333 Member Posts: 191
    edited March 2015

    Thank you so much for your well wishes - so much appreciated. :-)

    Maria333

  • Maria333
    Maria333 Member Posts: 191
    edited March 2015

    Thank you so much for your well wishes - so much appreciated. :-)

    Maria333

  • Ann-Marie AK
    Ann-Marie AK Member Posts: 166
    edited March 2015
    Oh Maria

    What a terrible time you and your family have had. How is your daughter now? Hoping she is fighting fit again.

    Ann Marie x
  • Ann-Marie AK
    Ann-Marie AK Member Posts: 166
    edited March 2015
    Oh Maria

    What a terrible time you and your family have had. How is your daughter now? Hoping she is fighting fit again.

    Ann Marie x