Why not join the Living with metastatic private group? Access group via the link here.
New metastatic diagnosis
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Thank you julez1958. I updated my profile, I am not sure how to join the private group. I will have a look.
I had just got comfortable as best as possible with the Riboclclib, but now got to start again on a new medication, I feel very blessed to be able to try another treatment. I have lovely nurses at Port Macquarie hospital. Hopefully if I get on the trial I will be monitored closely. Thank you again for your reply much appreciated 🥰0 -
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Without going into a long drawn out msg I got bone Mets at 46 and am now 55 and going strong(not perfect but strong). Still got lots of options with meds.Try and stay positive, stay as fit as you can. It sounds like a cliche but trying to live in the moment don’t sweat the small stuff and you can have a happy life watching those kids grow to beautiful humans
my daughter was 7 when I was originally diagnosed she is now 26
take care9 -
Thank you isarbrown. Much appreciated 🥰0
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Thank you Hankster
I just had another CT scan and bone scan, hopefully everything will be ok to start the new treatment. It's so wonderful to hear positive feedback, I hope you are well. I said to my children I am going to be around a lot longer just to annoy them 😂. They are so wonderful. Got to keep keeping on 🥰2 -
Thanks Hankster. Just what I needed to read. I'm 46 and just started the metastatic journey.
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