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Friday Update - 22nd July 2022

Mez_BCNAMez_BCNA VictoriaAdministrator, Staff, Member, Moderator Posts: 411
edited August 5 in General discussion


Friday Update 22nd July 2022

Hi everyone,

Welcome members old and new to the latest update. I hope you find the update and information provided useful. Please always feel free to provide feedback of information you would like to see, and I will always try my best to provide (Send me a private msg or comment in this discussion).

We have had some lovely sunny, frosty days here in Melbourne. Here is a picture from my walk this morning. Take care.



Community highlights

Men living with breast cancer group

We released a new podcast today (details in this update). Therefore it is a timely reminder about the online network private group Men living with breast cancer . This is a private group for men who have breast cancer, whether recently diagnosed, or living with the disease. Partners are welcome to join this group. There are no topics off limits, so feel free to ask questions, give advice, form friendships, or just know you are not alone in the world of pink.

 

Popular forum discussions

Members new and old may have missed some of the forum discussions that have been most active the past fortnight:

1. 5 years and all good - yabbadabbadoo!!

2. Eyebrows

3. Chemo side effects

4. Roller-coaster of a Ride - Sad, Scared and feeling paraysed

 

Posts by ‘Category’ Name’ 9 Jul 22 – 22 Jul 22



Community News

Did you miss the BCNA Launceston TAS forum?

BCNA hosted its second Information Forum for 2022 in Launceston, Tasmania for people living with breast cancer. There were two concurrent information sessions throughout the day - one for people with early breast cancer and one for people with metastatic breast cancer.

We heard from a number of guest speakers, including medical oncologist and supportive care physician Dr Ben Forster on the latest in treatment and care, and oncology senior social worker Dr Carrie Lethborg on managing the challenges of living with breast cancer. 

To watch the on-demand videos of each presentation, please click here.


Breast Cancer Statistics 2022


The 2022 breast cancer statistics have just been released by the Australian Institute of Health and Welfare. These statistics provide insight into how Australians are affected by breast cancer today. The number of women and men being diagnosed with breast cancer is increasing; however the mortality rate continues to decrease. The chance of surviving at least five years (five-year relative survival) has risen to 91.8 percent. This means that Australia has one of the best breast cancer survival rates in the world. You can read more on the BCNA website page Understanding breast cancer

 

Counterpart Online Workshop – How to live well with metastatic cancer

Date: Wednesday, 27/07/2022
Time: 11.00am–12.00pm

Counterpart are running a session next week, facilitated by cancer support nurse and counsellor, Tracey Moroney.  Tracey works at Ringwood Private Hospital coordinating the cancer support service which includes counselling and psychological support, cancer support groups and education forums. She will give a short presentation and then open up discussion and sharing for the women present. CLICK HERE for more info


Cancer Australia – Strengthening the Australian Cancer Plan through collaboration

Cancer Australia has been working with stakeholders and the Department of Health and Aged Care across the cancer system to develop the first Australian Cancer Plan (ACP). The aim of the ACP is to provide an overarching national approach to cancer control that meets the needs of all Australians now and in the future and will address unacceptable disparities in outcomes. To read more and sign up to receive regular updates go to the link  Cancer Australia | Update July 2022 (australiancancerplan.gov.au)

 

Webcasts - Register Now!


In this webcast, we will hear from Medical Oncologist Professor Fran Boyle, Metastatic Breast Care Nurse Alice Gibson, BCNA Consumer Representative Ros Casperson and BCNA member Cybele Orton.  

Fran practices at the Mater Hospital in Sydney and is a professor at Sydney Medical School. Her research focuses on breast cancer treatment, supportive care and health professional communication. Alice has been a breast care nurse since 2018 and supports her patients and their families as they navigate the complexities that come with their diagnosis. 

Ros is a young mum who has lived with metastatic breast cancer for over five years and Cybele was diagnosed with early breast cancer in 2010. Genetic testing showed Cybele had the BRCA2 gene mutation, prompting her to have a double mastectomy and hormone-blocking treatment. Then, in 2017 she was diagnosed with metastatic breast cancer.  

The webcast will address what is important to know in those first few weeks after a diagnosis of metastatic breast cancer including navigating the health system, treatment options, identifying key members of your treating team, and the support and care available to you Register now via the following link: https://bit.ly/metastatic-webcast-bcna

Did you miss Ask the Expert digital event with Dr Michelle White on managing side effects of hormone blocking treatment? Dr Michelle White and BCNA Consumer Representative Kym Berchtenbreiter discuss the side effects of hormone blocking treatment and how to manage them. The video is now available to be viewed on-demand https://bit.ly/3nGDe1w


Podcasts

Episode 45: In Conversation with Harry and Pieter: Raising awareness for men with breast cance

Let’s be Upfront about men who are diagnosed with breast cancer.

Joining us for this In Conversation episode are Harry and Pieter. Harry was diagnosed with early breast cancer in 2005 and metastatic breast cancer in 2018. Pieter was diagnosed with triple-positive grade 3 breast cancer in 2021, five years after losing his wife to the same disease.

During this candid conversation between Harry and Pieter, we’ll hear their stories, including their initial reaction to their diagnosis, the biggest challenges they faced, who they went to for support and why they want to help spread awareness of the disease for other men.

Listen via this link or wherever you get your podcasts: https://www.bcna.org.au/.../episode-45-in-conversation.../

(Here are some pics of Harry & Pieter from the recent Pink Lady Match at the MCG)





That is all for today. Hope you found the update informative and if you have feedback or any concerns while online, please contact one of the moderators:

@Jenny_BCNA @Carissa_BCNA @Anna_BCNA @Pat_BCNA @Mez_BCNA

If you need to speak with someone regarding your concern, please call 1800 500 258 alternatively, you can email [email protected]

Take care,

The mod team – Mez, Carissa, Jenny, Anna & Pat

“If you have the power to make someone happy today, do it. The world needs more of that” –  Unknown Author

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