The role of Carer

Hello everyone
I often read posts or comments from members who are also carers. I refer you to the post by @arpie titled Are you Caring for a Partner & Parents with Dementia/Alzheimers.
Many members care for a sibling or a child who has a condition meaning they are unable to function independently. Whilst it is common to hear of dementia or old age being the culprit it can be a number of varying conditions.
Perhaps BCNA could have a private group where members can connect and share with other carers as often they have similar worries or needs.
Does anyone else think this would be helpful to those very special people who spend their life as carers ?
Anne
I often read posts or comments from members who are also carers. I refer you to the post by @arpie titled Are you Caring for a Partner & Parents with Dementia/Alzheimers.
Many members care for a sibling or a child who has a condition meaning they are unable to function independently. Whilst it is common to hear of dementia or old age being the culprit it can be a number of varying conditions.
Perhaps BCNA could have a private group where members can connect and share with other carers as often they have similar worries or needs.
Does anyone else think this would be helpful to those very special people who spend their life as carers ?
Anne
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Many people, male and female, are the carers for a wide range of needs. My carer role is due to hubby's early onset dementia, a friend has a disabled daughter, another friend cares for a disabled foster child - everyone needs a support network who can offer advice, a caring shoulder or information as to what may be available.
Not all have family and not all have friends who can understand, step in and help. One's friend network often fades away due to the fear of the disability. A very sad society at times.
Thank you sincerely for your post.
Hoping others will respond.
Like me and @June1952, we ended up as carers too - and that will also happen to other members, even if not ‘paid for’ or recognised by Centrelink.
We could raise emotional issues that would best be discussed in private ... from legal issues (guardianship etc) to personal issues and how to cope with them without going mad.
@Giovanna_BCNA - could this please be raised with the team, and discussed as a new group?
Any thoughts @Giovanna_BCNA ? The carers of members in the Metastatic Group would surely appreciate this group, too.
Tips for stupid things, like make sure you keep a copy of your IPTAAS/isolated patients docs before you post them .... the mongrels lost all mine and Keith’s - so am now having to get them all signed off again! Grrr
Thank you @BlackWidow for raising this issue again. Caring can come to any of us at any time and for a variety of reasons, so a private group in which to discuss things would be great.
Whilst doctors etc try to give advice there is nothing better than the support of someone experienced. The little things such as trying different products is good as not all areas have outlets for everything can make a huge difference to the carer.
Good advice, @arpie. I went for my pre-surgery nipple dye injection 😖 on the day of my surgery to find the reports had not arrived but I was fortunate to be able to hand the radiologist my huge folder with all the scans !