BCNA Online Network
Day to day
Just want to talk and get some advice
Awesome messages. Thank you so much to those all of you. I am sooo much more comfortable chatting on line than in person. Comments of other sole travellers make me laugh, we humans are so complex aren’t we! One of my girlfriends told me last night, Cathrine, you didn’t even have to ask for help, you just had to say yes! That changed the way I have started to think about my journey. I can be less angry with everyone (why I am doing this I do not know). I do think I will try to be more accepting in the future of “sharing” my journey.
yes this is my first year on anastrazol , I’ve done a bit of swapping between that and tamoxifen. Absolutely no libido on either, the pain has fallen on me like an avalanche in the past two months. Previously I’ve had little to no pain at all.
Im quite an anxious person so I’ve also been on an antidepressant for that for many years. I’m wearing myself down on my dosage of that so that’s all contributing to my discombobulation 😂.
im 57, but I’m struggling to find meaning at times. I’m optimistic but am feeling a bit like I’ve come unmoored from the dock!!
i was interested in the comment about magnesium, I didn’t know about that so I might try rubbing some of that on.
So happy to have found you all, thank You!
Catherine, your comment, 'I feel unmoored from the dock' is perfect! When we hear our diagnosis its as though everything that held life in place, made sense, kept us going through the tough times, gave us joy etc. etc. has slipped away, a friend said, 'Its like I'm slipping on fishes!' Meaning that even the ground feels weird under our feet! I realised after a few months that I actually still had my hand on the tiller, there were things and events that made sense and kept me mentally and emotionally healthy. I have severe peripheral neuropathy in my feet and the pain is cruel, it is impacting on my quality of life and I've had to adjust. I'm also a sole traveller but have learned to ask, never easy, but I am becoming better as I've come to understand just how much people want/need to feel that they are doing something to make my life a little easier. I've learned to appreciate their intentions which mostly come from care and compassion. Struggling to find meaning? Again, to be diagnosed is to have your world tipped upside down, I think we must create some new meanings and I've done that by becoming more aware of things I appreciate, I find that satisfying, eg, a text from a friend, birdsong in the garden, a decent cup of coffee etc. basically the simple things and that sustains me through those times when I feel totally fed up! To be able to chat on line with those who share similar experiences is GOLD!!!!
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