Nerlynx for Her2 + early stage breast cancer
Smellycrackle
Member Posts: 21 ✭
That is great news about Nerlynx. I finished Herceptin in Jan 2018 - a bit over 12 months ago. I have read that to be eligible for Nerlynx you have had to have had Herceptin in the last 12 months. I know this is a new drug but has anyone heard whether survivors like myself who are a couple of months out of that 12 month period would still be allowed Nerlynx... I do so hope so...
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Hi @Smellycrackle I'd not heard of this drug. After reading your post I googled it. Do you know if you still take your AI's as well. I would qualify I think, I finished hercepton in October last year. I have an appointment with my Oncologist at the end of April I will ask him about it. Hopefully you to will be able to access it. The side effects don't sound to flash though.🤔0
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Hi @Smellycrackle and @kmcin28 you may find the information on our website about Nerlynx helpful to aid your discussion with your oncologist for access to this drug.
https://www.bcna.org.au/news/2019/03/bcna-welcomes-the-tga-s-approval-of-nerlynx-neratinib/
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Thanks @Riki_BCNA for that information, that all sounds promising. I hope my Oncologist will be on board with discussing this option with me.0
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Hi Ladies yes it is all very new out. I am not sure about what other medications you can or cant take. Thanks Riki I will read the link you sent. Fingers Crossed...0
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There's also a new discussion on here at the moment with the old links. Here's the title below.
Good news for some .................new drug
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Thanks very much poodlejules - I just found the link and read a the other ladies comments. I have probably missed the boat also as I finished herceptin Jan 2018 - maybe that is not a bad thing as from one of the ladies who did the trial - it sounded horrendous.1
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Hope you are going well... xx1
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You too ! All the best for a complete recovery and some 'normalness'
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