New to the group with spinal mets
Comments
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@FYONA1 I only know how I feel, and yes the uncertainty is without doubt, hard. I was diagnosed 10 months ago and it was hardest then, in many ways. I’ve got more used to not knowing, my oncologist does not give much away nor does she really know. Of course, no one really does. I have my own ways of dealing with this which I am happy to share but... sometimes positive thinking and peppy people aren’t what one wants to hear. It’s not everybody’s cup of tea! Sometimes though (not always!), that way of thinking helps me. I do also think giving yourself time helps...try to relax, breathe and treat yourself at this really difficult time0
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Hi @FYONA1 , sure thing:
I feel glad I, and my loved ones, have time to prepare for the end - which hopefully is a very long way off!
i feel grateful I am being so well cared for, by my loved ones and the medical team plus the wonderful charities like BCNA
I also treat myself to the following whenever I can: listening to music, have hot baths, spend time with friends/family - especially those I don't feel I have to make an effort with!, I exercise a lot (walking, swimming, cycling etc), I try to relax, read a book, I've taken up learning the piano and I love it, I get out in nature even if that's just in the garden, I stroke the cat, I try to meditate, enjoy the winter sun, and eat good food. And I try hard (not always successfully!) to be in the moment when I'm doing any of those. I work for myself so I'm trying to give myself time off and at the same time make my work as un-stressful as possible.1 -
Hi@gjf
thanyou so much for sharing this with me
i went to the hairdresser today and had my hair cut and she checked it for me I will be continuing to do this with her every three weeks as I'm worried about it thinning out or losing it
most of the women on this combination have experienced some sort of hair thinning1
