VERY newly diagnosed Mucinous breast cancer

Options
2»

Comments

  • Romla
    Romla Member Posts: 2,092 ✭
    Options
    @Taji there is a well laid out journal as part of My Journey kit but also keep good records until it arrives
  • Kiwi Angel
    Kiwi Angel Member Posts: 1,952 ✭
    Options
    @Taji. Sorry to see u here but welcome and big hugs. I am recent diagnosed and have had 3 surgeries this year and have just started chemo and this forum has been an amazing spice ot support and advice. I got myself what I call a giant zip up pencil case and keep all my paperwork in there and take it with me to any cancer related appointment. Good luck and take care xoxoxo
  • kmakm
    kmakm Member Posts: 7,974 ✭
    edited April 2018
    Options
    Oh and put 'mucinous' in the search bar above and see what you come up with.

    It's not an unfamiliar term to me. I grew a mucinous cyst in my vagina when I was pregnant with my first child. I was told it was quite unusual, and had to have an operation to have it removed six weeks after my son was born. That was 18 years ago, no problems since I'm happy to say. I do remember the general anaesthetic made my breast milk green! That was startling to say the least  :o  :D  :)
  • SoldierCrab
    SoldierCrab Member Posts: 3,445 ✭
    Options
    HI Taji, 
    I am posting links to some things I think you might of already found ....others maybe not and how to use the forum and find things more easily on here.... IF you hit any stumbling block on here just ask a question someone will always point you in the direction of the answer. 

    Below are a couple of links to help you find your
    way around the forum and also how to find a breast care nurse and how to order
    a MY journey Kit if you haven't got one yet. 

    It can be a a whirlwind when we first get a
    diagnosed.... Breathe and take it one step at a time. 



    The what and how thread.

    http://onlinenetwork.bcna.org.au/discussion/14879/the-what-and-how-thread/p1 

    Breast Care Nurses

    https://www.mcgrathfoundation.com.au/OurMission/OurNurses/FindANurse.aspx 

    My Journey Kits and other
    resources. 

    https://www.bcna.org.au/resources/

    BCNA Helpline 1800 500 258

    If you have any questions, concerns or require any further information
    or support please call 1800 500 258.  The Helpline is open Monday,
    Wednesday and Friday from 9 am till 5 pm EST and Tuesday and Thursday from 9 am
    till 9 pm EST. 

    How to understand your pathology reports

    https://www.cancer.org/treatment/understanding-your-diagnosis/tests/understanding-your-pathology-report/breast-pathology/breast-cancer-pathology.html

    Yes there are men and women on this forum as approx 149 men per year are diagnosed with BC 

    Sorry we have need to welcome you to the forum but know this group are supportive and will always encourage, laugh, cry and listen to your vents when needed. 

    Soldiercrab
  • Taji
    Taji Member Posts: 13 ✭
    Options
    Thank you kmakm - sounds like we are very similar - planners & not help-accepters. Thank you for the advice about accepting help - I hadn't really thought about it, plus even if I don't want it myself, it could be a big relief for my husband.
  • Taji
    Taji Member Posts: 13 ✭
    Options
    Wow so many responses - thank you!!!  The record keeping thing has been such a great piece of advice for me - I will start preparing it tomorrow as I already seem to have reports and receipts and bits and bobs that need to be kept organised. Thank you too SoldierCrab for all of the links - I couldn't remember the name of the McGrath Foundation so that is extra helpful. By the way, I lived in Bathurst for over 25 years before moving here to Noosa, Qld.
  • SoldierCrab
    SoldierCrab Member Posts: 3,445 ✭
    edited April 2018
    Options
    wow Taji, when did you move to Noosa, ?  I moved to Bathurst in 2002 never going back to sydney ....  does that mean CSU was your workplace also? 


  • Taji
    Taji Member Posts: 13 ✭
    Options
    Yes, I worked at CSU for almost 30 years!! I had to retire when I was 50 due to having had multiple spinal surgeries - thankfully I had another spinal fusion in the middle of last year and I can now walk, sit etc., like a normal human being. Bit of a smack in the face to get that fixed and find I now have bc, but at least I only have to worry about the bc now. I moved to Noosa in the middle of 2013 and kept working for CSU for 6 months from here. Being retired, I have another thing I don't have to think about compared to those who are still trying to juggle work and their illness at the same time. 
  • SoldierCrab
    SoldierCrab Member Posts: 3,445 ✭
    Options
    Ouch re spinal surgery.... I look for all positives in a Sh*tty situation called BC ( refuse to call it a journey (ROLLER Coaster from hell) .... none of us want it to begin with but we learn to deal with it in our Lives .... I am now nearly 6 years out from diagnosis and Cancer free.  You might want to join the Lets talk about Vaginas group as sexual health can change due to treatments we have a Q&A session this Tuesday night. 

  • Taji
    Taji Member Posts: 13 ✭
    Options
    Thanks SoldierCrab - once I see the specialist and find out what’s going to happen with me and will no doubt have to stop HRT if I am pos+ on the hormone tests, I will join the sexual health group. 
  • jennyss
    jennyss Member Posts: 1,959 ✭
    Options
    Dear @Taji , ditto to all above and 
  • Taji
    Taji Member Posts: 13 ✭
    Options
    Just received the My Journey Kit from BCNA. What a fabulous resource. Filling out the included diary today. Thank you BCNA & am making a donation to provide this fabulous kit to another newly diagnosed bc woman/man.

Categories