Lymphoedema Sleeves

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  • sandramj
    sandramj Member Posts: 253 ✭
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    @Joannie fixed. Thank you very much. 
  • [Deleted User]
    [Deleted User] Posts: 0 ✭
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    The user and all related content has been deleted.
  • SoldierCrab
    SoldierCrab Member Posts: 3,445 ✭
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    @Respectnfreedom
    can you tell me more about the mapping at Mac Uni please how expensive is it etc. I am on Pension and work part time so I have no private health I wondered if it is worth going to get it done but I need to budget for it . 

  • SoldierCrab
    SoldierCrab Member Posts: 3,445 ✭
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    Information I got Yesterday at Relay for Life is they are targetting lymphodema They have cards that you can sign to help get more funding for lymphodema etc.... 

    https//www.cancercouncil.com.au/blog/why-we-need-to-act-lymphoedema/

    Cancer Council NSW has joined the Lymphoedema Action Alliance to urge the NSW Government to fund additional services for people living with lymphoedema.

    Take action for more lymphoedema services


    Read more at https://www.cancercouncil.com.au/blog/why-we-need-to-act-lymphoedema/#DSbSxRe3h7zpQWYd.99
  • Respectnfreedom
    Respectnfreedom Member Posts: 4 ✭
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    @SoldierCrab
    I think it was about $800-, you could ring them and find out.  First you get a referral from your GP, then see the Professor and have the mapping which I think may be a part of the diagnostic clinic https://www.mqhealth.org.au/hospital-clinics/lymphoedema-clinic/make-an-appointment
    I've attached photos below, so you can see what they do.  As you can see one arm is significantly larger than the other, which means what has been happening hasn't been working for me over the past 10 years.  I wish it had been done 10 years ago (although it wasn't available then).  This was just the first part of the diagnosis.  I went to Mt Wilga rehabilitation hospital for 3 weeks (supposed to be 4) for daily therapy and education and to be fitted for a garment which I found out that many people who have lymphodema go there every 6 months.  This was covered completely by the health fund. Next, I am looking at surgery (liposuction and then LVA).  Happily, I feel that my lymphodema is at least under control now, since my DIEP breast reconstruction with lymph node transfer, rather than continuing to get worse and worse.  My plastic surgeon referred me to Macquarie Uni and he told me that having the scar opened up and fresh, new flesh transplanted there would help me first and foremost.  He said that he couldn't guarantee the lymph node transfer, but the mapping confirmed that it is alive and working :)

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