First diagnosed in 2011, 35 years of age and 32 weeks pregnant. Right sided mastectomy, level 2 clearance 3/26 nodes. Chemo 6 months, radio plus Tamoxifen. Switched to Zolodex and Aromasin 2016. Original tumour was 3cm ER+ PR+ HER2- Stage 2B, Grade 3. Four weeks ago after having an abdominal ultrasound for gallstones mets were found in my liver and bones. Total shock as I haven't experienced any real pain and LFT's all normal. Currently awaiting approval for a clinical trial for Palbociclib and have started on Denosumab and staying on Aromasin for the time being. Onco continues to tell me treatable but not curable. I am a hugely positive person but I am still struggling to get my head around all of this. I am a single mum of 12 and don't know how to live my new kind of normal. Where do I even begin?

Hi Tennille,Sorry to hear about your diagnosis. I was diagnosed with mets in my bones & liver in 2016. I spent the next few months in tears. I was mourning the loss of my old life. But life continues. I have two young kids that need there mum around for a few more years. So now I live life to the fullest & take nothing for granted. Cancer sucks!!Ange

Hi Tennile, so sorry you find yourself in this situation...i too had similar experience in that i was 15 years c,earance from first instance of B/C only to have mets diagnosed in spine, liver and recently abdominal wall...i too had very little pain leading up to diagnosis which is now stage four and supposidly incuable. I too am on denosumab (xgeva) monthly injection, and was on femera, switched to aromsin and actually now have 6 months of chemo due to breathing issues and mets on the liver..... i struggle with the 'incuable' bit but I'm pretty strong minded which i think is half the battle with a positive attitude.So hang in there, keep strong and positive and have good people behind you....and just know that sometimes it is a bit daunting and we have to pick ourselves up and keep fighging tne fight!

I can't even imagine how hard it is for you with this news but just wanted to let you know we are here and listening. I hope you get on that clinical trial soon and you respond really well to your new regime. Kath x

Hi Tennille,Sitting here thinking about what I can say. I want to acknowledge that even as a positive person, the struggle to get your head around your situation is real and personal. Just also want to repeat what primek has said.

Hi @Tennille, CRAP!!!!! I can't imagine what a shock that must be. Crossing fingers your trial approval comes through soon and that you can be stabilized. Sending a big hug. Xx Cath

Finding a new kind of normal

primek
Member
8 years ago
I can't even imagine how hard it is for you with this news but just wanted to let you know we are here and listening.

I hope you get on that clinical trial soon and you respond really well to your new regime.

Kath x
BarbieAnne
Member
8 years ago
Hi Tennille,
Sitting here thinking about what I can say.
I want to acknowledge that even as a positive person, the struggle to get your head around your situation is real and personal.
Just also want to repeat what primek has said.
socoda
Member
8 years ago
Hi @Tennille, CRAP!!!!! I can't imagine what a shock that must be. Crossing fingers your trial approval comes through soon and that you can be stabilized. Sending a big hug. Xx Cath
Jenv
Member
8 years ago
Hi Tennile, so sorry you find yourself in this situation...i too had similar experience in that i was 15 years c,earance from first instance of B/C only to have mets diagnosed in spine, liver and recently abdominal wall...i too had very little pain leading up to diagnosis which is now stage four and supposidly incuable. I too am on denosumab (xgeva) monthly injection, and was on femera, switched to aromsin and actually now have 6 months of chemo due to breathing issues and mets on the liver..... i struggle with the 'incuable' bit but I'm pretty strong minded which i think is half the battle with a positive attitude.
So hang in there, keep strong and positive and have good people behind you....and just know that sometimes it is a bit daunting and we have to pick ourselves up and keep fighging tne fight!
LMK74
Member
8 years ago
Tennille, I'm so sorry you are in this situation. My thoughts are with you.
Lisa x
Cosette
Member
8 years ago
Hi @Tennille, our Hope & Hurdles resource is designed for people who have been diagnosed with metastatic breast cancer. It has a lot of useful information that you can explore when you're ready. You can order it online here or call us at 1800 500 258.
Brenda5
Member
8 years ago
What we all secretly dread that supposedly cured of breast cancer, sneaks in to somewhere else unknown to you. At least though it is now known to you and your team of specialists can deal with it as it unfolds. My dad has the demosaub injections every month. He was on pain patches but decided he prefers pills to patches. His normal is resting up as much as possible and picking his day and time to do things when he is having a good day. Other days aren't so great and it gets him down a bit but he is always ready and schemes up plans of what to do on his good days. Here's hoping you have lots and lots of 'good' days. <3
angg66
Member
8 years ago
Hi Tennille,
Sorry to hear about your diagnosis. I was diagnosed with mets in my bones & liver in 2016. I spent the next few months in tears. I was mourning the loss of my old life. But life continues. I have two young kids that need there mum around for a few more years. So now I live life to the fullest & take nothing for granted. Cancer sucks!!

Ange
DebP
Member
8 years ago
Hi Tennille
Im not sure what to say but so sorry to read what you are going through. Take care and be kind to yourself.
Hugs
Deb
Tennille
Member
8 years ago
Ange...How are you going with treatment? Especially with liver mets? I worry more about my liver than bones.