Blog Post
32 Comments
- Marianne_BCNAMemberhi @lrb_03 ,
Thanks for your feedback. I'll pass it onto the podcast team and keep you updated. - lrb_03MemberHi @Marianne_BCNA, @Riki_BCNA
I've just listened to the first couple of episodes, and must say that I tend to agree with @Jax1964 about the sound quality.
On the other hand, I thought the content was informative. One suggestion I would make would be to have a podcast or 2 around the main treatment pathways. Different types of surgery, chemo - neodjuvant or adjuvant, radiotherapy, conditions when each might be recommended.
Only 4 years ago, when I started neoadjuvant chemo, I had terrible trouble trying to find information or even anyone else that had had or was having neoadjuvant chemo. In the intervening years it's become a lot more common. Even the information that you have on the website now didn't exist then. - Riki_BCNAMemberApologies @Jax1964 for the typo above
- Riki_BCNAMemberHi @Jaz1964 will do. Thanks for letting us know.
- Riki_BCNAMemberHi @Jax1964 I will look into it and check with the production team at BCNA. I listened to the side effects podcast recently and had no issues. The podcasts are based on individuals and their experience so your point is a good one that it may or may not resonate with one's own experience. Any ideas most welcome for future podcasts.
- Jax1964MemberI have just binged all 5 episodes of the Upfront podcast.
I have to say...the sound quality is awful.
I have an excellent bluetooth system in my vehicle and listen to 100s of podcasts about 4 hours a day - I had to turn Upfront off - I could not hear most of the discussion.
Please PLEASE get a proper sound engineer and check the levels - especially when you have 3 people mic'd.
I won't comment too much about the content - I could not relate to most of it.
My pathway through the medical minefield did not match what was being said and if I had listened to this podcast when I was first diagnosed, I would have had very inflated expectations. - lrb_03MemberExactly the point that I was about to raise, @pammiesyd. So important
- pammiesydMemberAnother important issue is getting arm measurements done in case lymphedema rears its ugly head.
- AfraserMemberGood financial advice would be timely - the 7.30 Report last night quoted two breast cancer patients, one citing
$25,000 out of pocket and counting, without outlining what made up the amount. My own experience was nothing like that. Very scary if the impression is given that all treatment involves such sums.
Related Content
I'm 39 from Hervey Bay QLD I have just been diagnosed with Invasive Breast Cancer HER2 positive and ER positive. Looks like I've caught it early. My first appointment with surgeons is in 2 weeks. I ha...
3 months ago532Views
1like
22Comments
Hi folks - I just got my diagnosis this morning and am going through ALL of the emotions. Seeing my GP on Monday for referral to a surgeon, but this site is huge - any suggestions for where to start?...
4 days ago113Views
1like
8Comments
Hi all, I'm new here. I'm 48. I had my last Mammogram in November 2022, and was due for my next December 7th....however.... I went to the GP in November after feeling a breast lump for 10 da...
6 months ago245Views
0likes
5Comments
Hi there Gail here. This is my first post. I was diagnosed on 24 May (7 weeks ago today) and had surgery 2 weeks later on 7 June. I start radiotherapy on 29 July. After that, on to hormone blockers...
11 months ago76Views
3likes
1Comment
Hi everyone, BCNA is developing some podcasts for people
with metastatic breast cancer and would welcome your input. The first podcast
is titled ‘Metastatic breast cancer-what now?’ What questions...
7 years ago322Views
0likes
6Comments